Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling A Little Low Today


bookbabie

Recommended Posts

bookbabie Apprentice

Hi all, I'm new here and so glad to have found a place where people understand what it's like to be "gluten challenged" in a gluten filled world. I've been gluten-free at home for many years, but in denial when going out to eat (I didn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I understand how you feel but believe me it gets better, much better. Just keep with it. I still have days when I want to just cry. There are a lot more positives though about being gluten free, and they outweigh all the gluten filled foods you miss.

dlp252 Apprentice

Hello and Welcome!!!

nama shivaya Explorer

Hi!

Sorry to hear you're feeling so low! I understand completely! Weird as it may seem to you, I am actually praying for a celiac diagnosis! I'm in the testing stages for Multiple Sclerosis, which, in my opinion, it tons worse than celiac disease. celiac disease is an MS mimic, so I'll see after testing which (or both!) I will be dealing with.

I have been pretty picky about my diet all my life, and am actually a sugar addict, so cutting out bunches of foods will work ok for me, I think. It's still not the same as being "normal", whatever that is!

I bet you'll do well, and soon!

Hugs,

Nama :P

missy'smom Collaborator

My mom has been instututionalized since I was a teenager and only recently did they figure out that she can't have gluten. She's had alot of permanent damage and still really suffers so I have a really clear picture of what happens if I didn't stay gluten-free. If I didn't have that it might be harder for me to stay on track, although I really like feeling well. :)

Eating out is hard. In the past 4 times I've eaten out, I've gotten glutened once and had to send plates back to the kitchen 3 times, even at a place with a gluten-free menue. I don't go out very often anymore. I try to stick to 4 or 5 that I know I can get a safe meal at. 2 have gluten-free menues. At one I end up getting the same thing every time because I know it's safe. Eating out was our hobby before. My husband works long hours so sadly, it's one of the few things that we could do together. Giving it up has been hard on our relationship.

Lately, I feel like I spend my life in the kitchen and with alot more cooking comes alot more clean up. :(

Sorry I don't sound more positive, I've been struggling lately too. I hear you. Hang in there. It's worth it. Overall, I'm immensely grateful that I discovered celiac disease and that I can do something about it. After seeing what my mother has gone through, I really believe this has save my life. Even though I've had to give up alot, I've gotten my self back and that's something of value.

bluejeangirl Contributor

First of all welcome to the boards its always nice to see a new member. I think denial is common especially when your young and you don't get symptoms that aren't real bad. There's nothing you can do about that now, its in the past and what you do for now on is whats important. The more days your into the diet clean the more you'll feel better physically and emotionally where you're better able to handle situations.

Once I was feeling better then I ever have in some time the decision to eat out were made from a position of strength and confidence and I owned my right to stand on the decision. Friends are fun to be around and you can get caught up in having fun but make a plan ahead of time what you'll say when one of them can't understand why you won't go to have pizza. Maybe rehearse it or write down what you'd say. Having no plan is a actually a plan to fail.

I don't eat out that much but when I do its usually with the same group of people and I almost always order a salmon fillet with no seasonings with a baked potato and salad with an oil and vinegar type of dressing on the side. Sometimes if I don't know the restaurant well I bring my own dressing in a little container in my purse. I explain I can't even have a crumb when it comes to wheat because of an allergy so I can't have a salad that had croutons on and were picked off. My husband will usually chimes in at this point because he's good with people (he knows how to smooze as they say) and cracks a few jokes. I find this approach to be the best instead of sounding too threatening if you know what I mean.

Hopefully you'll get a few more suggestions on the card thing because I never used them. I'm so glad you're making this a priority in your life and you won't regret it. Health is so important. The quicker you get on board the less damage done and your still young so not to worry.

Gail

Slackermommy Rookie

I can understand the whole feeling low thing. I am still feeling so low, and I don't know what to do to get out of it myself. :( I used to love to cook, and be in my kitchen, now I honestly hate it. :angry: I am the only one gluten free, my husband and children do not need to be, and they are so understanding. But I hate something I used to love. And it is overwhelming when you start thinking about all the other events that it affects, and that if you attend, you won't be eating with everyone else.

From what I understand from all the other wonderful people here, it just takes time.

I guess my post here is just to tell you, you aren't alone in these feelings, other do understand.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bookbabie Apprentice

Thanks everyone. Eating out is a big pain and it's such an important part of socializing, I guess it's just going to suck. I did have a happy gluten-free moment today. I went to a different grocery store to see what they had for us gluten-free types and as I scanned their tiny gluten-free section I was bummed. But just as I was getting ready to checkout I spied a nice sized freezer loaded with gluten-free stuff! Bagels, muffins, breads, stuff I've seen mentioned here. I stocked up and I'm actually looking forward to breakfast so I can try the sesame bagels! :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,823
    • Most Online (within 30 mins)
      7,748

    Patty Andres
    Newest Member
    Patty Andres
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bronwyn W
      Thank you 😊 I will certainly have those tests done to be thorough although bright red color indicates lower down.  This information is very interesting,  Thank you so much 🙏🏻 
    • trents
      As Plumbago mentioned, bleeding in the upper end of the GI track tends not to show up as bright red in color because it gets acted upon by the digestion process and more thoroughly mixed in with food residues that are passing through the intestines.
    • plumbago
      @Bronwyn W Working with your medical provider, you could do a complete blood count test. If you were bleeding say from an ulcer in the stomach (and let's hope not), your red blood cells could be low and your hemoglobin low as well. Your stools may show up as the proverbial "dark and tarry," indicative of a bleeding site further away from the anus. Basically, you may be anemic. Your heart may be beating extra fast as a way to compensate for the decreased number of blood cells, your oxygen saturation may be lower than normal on a pulse oximeter, and so on. But talk to your doctor.
    • Bronwyn W
      Thank you for this insight. I have had rectal bleeding after glutening and subsequent constipation (+ IBS-C) and always attributed it to internal hemorrhoids (diagnosed). What I wasn't aware of is the possibility of bleeding further up the digestive tract. Please can you elaborate on the causes and symptoms to watch for?
    • Scott Adams
      Be sure to be eating gluten daily until all of your celiac disease tests are completed (at least 2 slices worth of wheat bread per day for at least 6-8 weeks before any blood tests, and 2 weeks before an endoscopy).
×
×
  • Create New...