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Feeling Fed Up With Celiac

Paulr

By Paulr
in Doctors

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Paulr Rookie
Paulr
Posted

PLEASE GIVE ME ADVICE FOUND OUT IN DEC/07 BLOOD POSITIVE FOR CELIAC GLUTEN FREE SINCE JAN/07 BLOOD NO BIOPSY DONE YET.SICK AS HELL FOR A YEAR NOW, DOCTOR SAY'S IT WAS ALWAY'S THERE BUT STRESS BROUGHT IT RIGHT OUT. MY SYMPTOMS ARE LOOSE WATERY STOOLS,DRY SKIN ON MY BELLY & FACE ,THE SHAKES WHEN I GO TO THE BATHROOM,MY FACE IS RED ON & OFF AND MAJOR DEPRESSION MY QUESTIONS ARE - WHEN DO YOU START TO FEEL BETTER?IAM DOWN ALL THE TIME AND IS IT NORMAL TO QUESTION WHETHER YOU HAVE CELIAC OR SOMETHING WORSE ,ALSO ARE BLOOD TEST'S 100% EFFECTIVE I BURN UP JUST WORRING ABOUT THIS PLEASE BE HONEST AND TELL ME WHAT YOU KNOW THANKS

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mouse Enthusiast
mouse
Posted

It depends on the person as to how fast they react to the diet. It is normal to question the results. You can never have a false positive on the blood test, but you can have a false negative. You did not say if you were having the endoscope or not. If you are, then you must eat gluten for 3 to months prior to the biopsies. The endoscope can not rule out Celiac as it can only confirm it. They have to take about 8 biopsies from the right places to get a positive diagnosis.

Good luck and know most of us have been where you are. Time heals.

Lisa Mentor
Lisa
Posted

Paulr:

Being diagnosed with Celiac is not as drastic as it may appear. A lot of it is a mind game. You need to know that what you put in you mouth can cause you serious problems. If you eat gluten you will be sick, if you don't you will feel better. That is the bottom line.

Celiac has over 200 symptoms. I too have the shakes after a year on the diet. It may take some time for you to remove gluten.

The learning curve may be steep but not do able. And you have a lot of very informed people here to answer you questions.

You can have success.

ravenwoodglass Mentor
ravenwoodglass
Posted
PLEASE GIVE ME ADVICE FOUND OUT IN DEC/07 BLOOD POSITIVE FOR CELIAC GLUTEN FREE SINCE JAN/07 BLOOD NO BIOPSY DONE YET.SICK AS HELL FOR A YEAR NOW, DOCTOR SAY'S IT WAS ALWAY'S THERE BUT STRESS BROUGHT IT RIGHT OUT. MY SYMPTOMS ARE LOOSE WATERY STOOLS,DRY SKIN ON MY BELLY & FACE ,THE SHAKES WHEN I GO TO THE BATHROOM,MY FACE IS RED ON & OFF AND MAJOR DEPRESSION MY QUESTIONS ARE - WHEN DO YOU START TO FEEL BETTER?IAM DOWN ALL THE TIME AND IS IT NORMAL TO QUESTION WHETHER YOU HAVE CELIAC OR SOMETHING WORSE ,ALSO ARE BLOOD TEST'S 100% EFFECTIVE I BURN UP JUST WORRING ABOUT THIS PLEASE BE HONEST AND TELL ME WHAT YOU KNOW THANKS

You haven't been gluten free for very long and it is easy to 'mess up' and let a little in without knowing it at first. The blood tests when they are positive are definate. You most likely are still getting gluten somewhere as well as going through a gluten withdrawl.

Are you living in a house with other gluten eaters? If so you need to be have your own cooking space and utensils and you need to have your own toaster and cutting board. When you cook imagine that everyone else had a real bad case of the flu and clean all surfaces before using them.

How much mainstream 'gluten free' food are you eating? For many we need to shop the outside of the store for a few months while we heal. Fresh or frozen veggies and fruits, fresh meats, organic unfortified rice, eggs, nuts and later on dairy are what you should eat for a while.

If you have not cut out dairy and alcohol do so for a bit. If you must have alcohol make it gluten free beer or wine. Later on when you are feeling better you can add them back in (challenge) and see if you tolerate them well. You also need to make sure there is no gluten derived ingredients in your toiletries and in hobby or craft stuff.

It takes a while to heal, and there is a big adjustment but it does get better.

Don't give up sometimes it takes a long time.

babygirl1234 Rookie
babygirl1234
Posted

i was fine up unit my mom died then the pains came back along with the D, which i havnt had when i was 1 Dx with it it could of been the bolw inf i had that caused the D but the stomach pains after i eat are still there went for a endscopy and colonscopy and both showed that my celiac disease is casing me so much pain, im on s sendative for the stomach pains so hopeful that will help and after all this time for being pain free for 10 or so years it can cause as much pain as it did when i 1st Dx with it grrrrrrr damn flar up lol

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