Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What A Crappy Day

johnsoniu

By johnsoniu
in Coping with Celiac Disease

Recommended Posts

johnsoniu Apprentice
johnsoniu
Posted

10 days into being gluten free and things were going well. Felt much better and actually enjoyed being in the kitchen again. Then yesterday afternnon, wham! Worst cramping and bloating since December, and eventually D all night. Didn't eat anything yesterday that I hadn't already had earler in the diet, think I got CC'd from an old plastic bowl at work I used to heat up some leftovers for lunch. I used to use it for Campbell's Chunky Soup, which would trigger the exact same reactions.

Anyhow, feeling a little better this morning and the toast and banana seem to be sitting all right so far, 3 hours now.

Then the doctor called a half hour ago. We had our two daughters tested Monday. 14 year old came back negative(yeaaa!) but the 9 year old tested positive. He's sending her to Riley's Children Hospital in Indianapolis for further testing and confirmations. Rats. She's 9 and lives for cereal and Mac & Cheese. Although this does bring her recent troubles with ADHD and migraines into proper focus.

Thanks all, venting over. Now on to see if I can start gaining some of the weight back some of the weight I lost last night that I had worked so hard this week to gain( weight loss is a major issue with me, by the time I was finally diagnosed my malabsorption had turned to non-absorption, my magnesium,potassium,calcium, albumin, sodium, and chloride levels had all dropped to critical levels and had to be hospitalized and hooked up to IV's and a heart monitor).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

Luckily your little one will still be able to have mac n' cheese and cereal... Cocoa Pebbles and Fruity Pebbles are both gluten free as well as Disney's Little Einsntein's, Mickey Mouse Clubhouse, and Dora's Cinnamon Stars. They are all readily found in mainstream grocery stores. Tinkyada pasta and Kraft orange cheese powder in a shaker (or Velveeta) make a mean mac n' cheese! You can make the mac n' cheese in bulk and then freeze it so that it's easy to heat up for lunches or snacks. She will adjust to the gluten free diet just as you are. And, it will make her life so much easier once her symptoms resolve she will likely not even look back. Plus, you are saving her (by putting her on the gluten free diet) from a lifetime of mysterious ailments, aches and pains, etc. This really is a positive thing. It may be easiest to make your entire household gluten free now that two of you have tested positive. This way you (or whoever cooks) won't feel the need to make two seperate meals for the family. Plus, making the house gluten free will cut down on temptation and contamination sources.

johnsoniu Apprentice
johnsoniu
Posted
  • Author
Luckily your little one will still be able to have mac n' cheese and cereal... Cocoa Pebbles and Fruity Pebbles are both gluten free

Fruity Peebles are gluten free!!!??? Darling, you just made MY day. My cereal was thing hardest thing for me to give up. :P

As for this all being for my daughters best in the long run, oh absolutely! As I said earlier, this will help so much with the ailments(symptoms?) that have plagued her the last year.

kbtoyssni Contributor
kbtoyssni
Posted

I buy Kraft mac and cheese, take out the cheese packet, give the noodles to a friend and use the cheese with gluten-free noodles. There's something about boxed mac and cheese...

cajun celiac Rookie
cajun celiac
Posted
I buy Kraft mac and cheese, take out the cheese packet, give the noodles to a friend and use the cheese with gluten-free noodles. There's something about boxed mac and cheese...

WHAT A GREAT IDEA!!! I'm going to do that tomorrow! You are a genius!

bremac Apprentice
bremac
Posted
I buy Kraft mac and cheese, take out the cheese packet, give the noodles to a friend and use the cheese with gluten-free noodles. There's something about boxed mac and cheese...

Seriously????!!!!! That is such a good idea!!!!

johnsoniu Apprentice
johnsoniu
Posted
  • Author
WHAT A GREAT IDEA!!! I'm going to do that tomorrow! You are a genius!

Tomorrow nothing! A friend of mine gave me a box of Glutino brown rice elbow macaroni at church tonight, said they were the best she's found. Saw kbtoyssni post about the kfraft idea and raced off to the kitchen. Just finishing off my second helping.

KB, you're an angel and a genius!!! Thank you bunches

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


babygirl1234 Rookie
babygirl1234
Posted

my day was crappy, stomach pains, feeling blah tired of taking pills all i want to do is feel better how long does it take for your celiac disease to get under contol ?

larry mac Enthusiast
larry mac
Posted
I buy Kraft mac and cheese, take out the cheese packet, give the noodles to a friend and use the cheese with gluten-free noodles. There's something about boxed mac and cheese...

kb,

There is something about boxed mac & cheese; I'm with you there. My daughters (now that they're grown) like the fancy schmancy deluxe with the squeese cheese. Sorry, no can do. Too mild; not near enough good old fashioned kraft mac & cheese flavor. I'm supposed to pay extra for less flavor? I don't think so. You don't mess with a good thing.

You try to bring your kids up the best you know how, and this is how they repay you?

BTW, I like to condense everyone's user name down to as small an abbreviation as possible, yet incorporate all syllables or parts. Your ruining my evil plan. What's up with that name?

yours truly, stumped in wylie

lm

Canadian Karen Community Regular
Canadian Karen
Posted
Tomorrow nothing! A friend of mine gave me a box of Glutino brown rice elbow macaroni at church tonight, said they were the best she's found. Saw kbtoyssni post about the kfraft idea and raced off to the kitchen. Just finishing off my second helping.

KB, you're an angel and a genius!!! Thank you bunches

There are even some stores where you can buy the Kraft cheese packets in a box by themselves, without the noodles...... Kids never know the difference! LOL!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,556
    • Most Online (within 30 mins)
      7,748
    dflorio
    Newest Member
    dflorio
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      Well said, @Mari!
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.