Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Throwing Up With Wheat?


bremac

Recommended Posts

bremac Apprentice

I was so excited to eat this millet and flax bread that my friend (not celiac) me about. I made myself a sandwhich and ate it at school for lunch and about 2 hours later my tummy started cramping, I threw up several times, and then I had my usual D the next 2 days. Does anyone else actually vomit when they get gluten-poisoning? I realized later that the bread package said "made in NON gluten free facility" but when I bought it I only saw gluten free facility. :( So I am sure it must have been contaminated with wheat as it was made in a regular BAKERY. The other time I had wheat (soy sauce contamination) I also threw up, but usually I "just" get the D.

Does anyone else throw up if they eat the tiniest bit of wheat? It seems that barley (eg malt) only makes me get the D, but that wheat makes me throw up AND D.

Sorry for the long rambling gross post!

PS I dont' know if anyone will see this because it's not "pinned" like all the other topics. How do you pin your thread so people will see it? :-/


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



DebbieInCanada Rookie

Oh, I feel your pain. For me, it usually depends "how much" of the bad things I get. I'm intolerant of corn products as well, and corn will definitely make me throw up. Small contaminations usually only cause headache, cramps, and D, but a larger amount - well, you've been there.

I learned the hard way, to read every label, every time. And search out all the OTHER names for wheat and corn based ingredients.

Hope you are feeling better, and you are not alone.

Debbie

Ashley Enthusiast

Yep, I throw up too. If I get gluten in me, it takes about 2 hours before I start throwing up like you described. It also depends on the amount of which I take in on whether I throw up or not. Last time I threw up from gluten it was horrible. My throat was burning so bad. Eventually, it quit before the stomach acid starting coming up really bad.

Hope you're feeling all right. It feels like you're about to die after it's all over. :(

-Ash

PS: A moderator has to pin a topic. It sometimes it might take a little bit for they run up on it.

johnsoniu Apprentice

Yep I throw up occasionaly, did just yesterday when I got CC'ed. I think it all depends on how each persons body decides to attack the "foreign invaders". Hope you feel better soon

sherylj Rookie
I was so excited to eat this millet and flax bread that my friend (not celiac) me about. I made myself a sandwhich and ate it at school for lunch and about 2 hours later my tummy started cramping, I threw up several times, and then I had my usual D the next 2 days. Does anyone else actually vomit when they get gluten-poisoning? I realized later that the bread package said "made in NON gluten free facility" but when I bought it I only saw gluten free facility. :( So I am sure it must have been contaminated with wheat as it was made in a regular BAKERY. The other time I had wheat (soy sauce contamination) I also threw up, but usually I "just" get the D.

Does anyone else throw up if they eat the tiniest bit of wheat? It seems that barley (eg malt) only makes me get the D, but that wheat makes me throw up AND D.

Sorry for the long rambling gross post!

PS I dont' know if anyone will see this because it's not "pinned" like all the other topics. How do you pin your thread so people will see it? :-/

hi,,YES, YES, YES, used to throw up all the time..never had the big D, was constipated instead..Go figure!!! one of the classic symptoms is the big D so I was always confused about whether I did have celiac or not. After 10 years of off and symptoms and off and on gluten-free diet my dr. did recommend the biopsy because I ended up in the hospital with possible bowel blockage. ( I ate two loaves of cinnamon bread that week,,yes,,comfort food: no wonder I ended up in ER after vomiting for 18 hours. ) DR. ignored my symptoms before then even though I told him my Dad was celiac. He said the test was "too invasive". oh, prior to my ER visit I had visited his office in the a.m. aftr vomiting all night and he said I had an intestinal infection and sent me on my way with a script for antiboitic. I never filled the script cause I wanted some internal exams so I waited until his office closed and went to the ER! The ER folks took one look at my pain level and admitted me for the weekend. He was not happy with me.. .. managed health care and HMO's don't always encourage dr. to recommend testing??? I wish I had insisted when I first saw him 10 years ago but he saw my depression diagnosis and put me in a category!! :blink:

Ps. have not thrown up since I started being serious about gluten-free..But I know with all the "hidden" glutens it is bound to happen at some point.

I am considering switching dr. I have not yet called him to request a referral for nutritionist? Having had a celiac Dad and doing some dabbling with rice flour etc and reading labels I feel like I know enough??? ha!!!!!!!!!!! What I never had before was the motivation to be committed to the gluten-free diet,,,(not commited to the hospitallll....my attempt at humor). You all probably think I am crazy to not have changed dr before now!!! I did chastise him when he gave me this reproachful look for going to the ER...he seemed to think I had made the mistake!! I really should switch dr...or should I try and educate him so he dosn't make this mistake with others?? I guess Dr. have a learning curve as well.

I do blame this partly on managed care, partyly dr. and partly myself for not being assetive.

Lisa Mentor

I have found that the longer that you are gluten free the more sensitive you reacts to "mistakes", or cross contamination.

Regarding your question about pinning....When a new topic is posted, a moderator will look at it to see if it is appropriate and in proper form and place, then they will pin it. If it takes a while, all the moderators are away from their computers. :)

kbtoyssni Contributor

Yep, I throw up, too. It never occured to me it wasn't normal to throw up several times a week until I went gluten-free and it stopped!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGluGirl Contributor
I was so excited to eat this millet and flax bread that my friend (not celiac) me about. I made myself a sandwhich and ate it at school for lunch and about 2 hours later my tummy started cramping, I threw up several times, and then I had my usual D the next 2 days. Does anyone else actually vomit when they get gluten-poisoning? I realized later that the bread package said "made in NON gluten free facility" but when I bought it I only saw gluten free facility. :( So I am sure it must have been contaminated with wheat as it was made in a regular BAKERY. The other time I had wheat (soy sauce contamination) I also threw up, but usually I "just" get the D.

Does anyone else throw up if they eat the tiniest bit of wheat? It seems that barley (eg malt) only makes me get the D, but that wheat makes me throw up AND D.

Sorry for the long rambling gross post!

PS I dont' know if anyone will see this because it's not "pinned" like all the other topics. How do you pin your thread so people will see it? :-/

Dear bremac,

As far as I know, millet has gluten. That is what made you sick. It is a gluten no-no, at least according to what I have read. I get violently ill from a microscopic amount of gluten in any form.

Just the other day I got it again. I am the only gluten free member of our household, so cross contamination is a big worry. Luckily, the other day, I popped a promethazine before the heaves could start. The other week, I was not so lucky. I normally get really nauseated, break out in a sweat, need to have a bowel movement, and sometimes get bad dry heaves that make me feel like they will never stop and like my sides are going to emplode. The anti-nausea medication is the only thing that saves me from the misery. My side still hurt though, and so did my back afterwards. Don't worry, you are not alone!

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.