Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions Re: Symptoms

nama shivaya

Recommended Posts

nama shivaya Explorer
nama shivaya
Posted

Are these symptoms typical of either celiac disease or other food-related sensitivities?

Migraine (accompanied with upper sinus drainage)

Anxiety

Lump in throat

Gas (burping and "wind". Wind does not expel easily)

Stomach pains (small, sharp here and there)

Intestinal bloated feeling

Weakness in legs and arms (some tingling and muscle twitches)

Also, I can eat a sandwich, a bowl of oatmeal or a pancake and be full all day!!! When I eat only meat and veggies, I seem to digest them quickly and feel OK.

For the past week I've been cutting out all gluten-containing foods but my tummy/guts still feel tender and bloated. I'm keeping a journal of everything I eat in relation to physical and emotional symptoms, but am not coming up with any super-clear connections (besides corn/wheat/oats/rice flour). Also, I'm on Bactrim antibiotic for some folliculitis and when I take that pill I get a lump in my throat and immediate sinus drainage.

I have to say that my doc experience has been really frustrating! Neuro is pursuing an MS dx, PCP is just too dang busy to focus on all my problems. I've seen an ENT who wants to do allergy skin prick testing. Testing for allergies seems a good way to go, but skin prick for a few things? Perhaps my money would best be spent doing the Lame Advertisement for 150 different things.

Anway, this seems so overwhelming that I'm wondering if I could get some input from those of you who have been here, done this.

Thanks!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Celiac can be causing the symptoms you describe. It's really hard to get 100% of the gluten out of your diet right away, so that may be why you aren't feeling better ... plus it takes time to feel better.

If you end up with an MS diagnosis, be sure you test for Lyme. The symptoms are just about the same and the steroids they give you for MS is REALLY bad for Lyme .... makes it MUCH worse. They really should make it part of MS testing to rule out Lyme, but the medical community is trying to deny that Lyme even exists!

I should add, that celiac also has similar symptoms. My Lyme doc rules out celiac before he diagnoses Lyme. I really hope that it ends up being a gluten problem for you and not Lyme or MS.

Keep researching ... if it wasn't for my researching I never would have found either my Lyme or my gluten intolerance! My docs never thought of either possibility!

nama shivaya Explorer
nama shivaya
Posted
  • Author

Thanks, Carla. I had a ton of blood drawn this week (at my insistance). My PCP added Lyme to the list as well as B12, Folate, IgA EMA, serum IgA and Anylase/Cipase (sp?). I've been only really gluten-free for maybe a week, so am thinking it shouldn't affect the tests.

You seem to be a very vocal member of this forum, and I want to personally thank you for taking the time to help those of us who are searching for answers!

Best,

Nama :)

CarlaB Enthusiast
CarlaB
Posted

Nama, you're welcome. I still feel pretty bad, so I spend some time here answering questions from my laptop. You can tell when I'm having a good day because you won't see me much!

I'm sure you'll get more answers to this question during the week. The weekend is slow.

Hopefully, you will get an answer from this round of tests!

Rachel--24 Collaborator
Rachel--24
Posted
Thanks, Carla. I had a ton of blood drawn this week (at my insistance). My PCP added Lyme to the list as well as B12, Folate, IgA EMA, serum IgA and Anylase/Cipase (sp?). I've been only really gluten-free for maybe a week, so am thinking it shouldn't affect the tests.

Nama...please be aware that there is no test available to rule out Lyme at this time. The bloodtests dont always detect Lyme for many different reasons. IgeniX lab in CA is the lab with the most sensitive test...its the best available.

Other labs which Dr.'s use have less than 60% sensitivity and miss more cases of Lyme then they pick up. A Dr. who is knowledgeable about Lyme would know this for sure.

If the Dr. who runs your test tells you you dont have Lyme based on negative bloodwork.....especially coming from a lab which is not Igenix....you should not rule it out. When there is a possibility of MS being diagnosed....Lyme should be looked at in every way before making any decisions about treatment for MS.

The two diseases are impossible to tell apart and the wrong diagnosis has hurt many people who've actually had Lyme. Steroids weaken the immune system and drive the infection deeper into the tissue....making a bad situation a whole lot worse.

I'm glad you are being persistent....you are your own best advocate. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...
    2. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    3. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    5. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,443
    • Most Online (within 30 mins)
      7,748
    Mprice
    Newest Member
    Mprice
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.