Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions Re: Symptoms

nama shivaya

Recommended Posts

nama shivaya Explorer
nama shivaya
Posted

Are these symptoms typical of either celiac disease or other food-related sensitivities?

Migraine (accompanied with upper sinus drainage)

Anxiety

Lump in throat

Gas (burping and "wind". Wind does not expel easily)

Stomach pains (small, sharp here and there)

Intestinal bloated feeling

Weakness in legs and arms (some tingling and muscle twitches)

Also, I can eat a sandwich, a bowl of oatmeal or a pancake and be full all day!!! When I eat only meat and veggies, I seem to digest them quickly and feel OK.

For the past week I've been cutting out all gluten-containing foods but my tummy/guts still feel tender and bloated. I'm keeping a journal of everything I eat in relation to physical and emotional symptoms, but am not coming up with any super-clear connections (besides corn/wheat/oats/rice flour). Also, I'm on Bactrim antibiotic for some folliculitis and when I take that pill I get a lump in my throat and immediate sinus drainage.

I have to say that my doc experience has been really frustrating! Neuro is pursuing an MS dx, PCP is just too dang busy to focus on all my problems. I've seen an ENT who wants to do allergy skin prick testing. Testing for allergies seems a good way to go, but skin prick for a few things? Perhaps my money would best be spent doing the Lame Advertisement for 150 different things.

Anway, this seems so overwhelming that I'm wondering if I could get some input from those of you who have been here, done this.

Thanks!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

Celiac can be causing the symptoms you describe. It's really hard to get 100% of the gluten out of your diet right away, so that may be why you aren't feeling better ... plus it takes time to feel better.

If you end up with an MS diagnosis, be sure you test for Lyme. The symptoms are just about the same and the steroids they give you for MS is REALLY bad for Lyme .... makes it MUCH worse. They really should make it part of MS testing to rule out Lyme, but the medical community is trying to deny that Lyme even exists!

I should add, that celiac also has similar symptoms. My Lyme doc rules out celiac before he diagnoses Lyme. I really hope that it ends up being a gluten problem for you and not Lyme or MS.

Keep researching ... if it wasn't for my researching I never would have found either my Lyme or my gluten intolerance! My docs never thought of either possibility!

nama shivaya Explorer
nama shivaya
Posted
  • Author

Thanks, Carla. I had a ton of blood drawn this week (at my insistance). My PCP added Lyme to the list as well as B12, Folate, IgA EMA, serum IgA and Anylase/Cipase (sp?). I've been only really gluten-free for maybe a week, so am thinking it shouldn't affect the tests.

You seem to be a very vocal member of this forum, and I want to personally thank you for taking the time to help those of us who are searching for answers!

Best,

Nama :)

CarlaB Enthusiast
CarlaB
Posted

Nama, you're welcome. I still feel pretty bad, so I spend some time here answering questions from my laptop. You can tell when I'm having a good day because you won't see me much!

I'm sure you'll get more answers to this question during the week. The weekend is slow.

Hopefully, you will get an answer from this round of tests!

Rachel--24 Collaborator
Rachel--24
Posted
Thanks, Carla. I had a ton of blood drawn this week (at my insistance). My PCP added Lyme to the list as well as B12, Folate, IgA EMA, serum IgA and Anylase/Cipase (sp?). I've been only really gluten-free for maybe a week, so am thinking it shouldn't affect the tests.

Nama...please be aware that there is no test available to rule out Lyme at this time. The bloodtests dont always detect Lyme for many different reasons. IgeniX lab in CA is the lab with the most sensitive test...its the best available.

Other labs which Dr.'s use have less than 60% sensitivity and miss more cases of Lyme then they pick up. A Dr. who is knowledgeable about Lyme would know this for sure.

If the Dr. who runs your test tells you you dont have Lyme based on negative bloodwork.....especially coming from a lab which is not Igenix....you should not rule it out. When there is a possibility of MS being diagnosed....Lyme should be looked at in every way before making any decisions about treatment for MS.

The two diseases are impossible to tell apart and the wrong diagnosis has hurt many people who've actually had Lyme. Steroids weaken the immune system and drive the infection deeper into the tissue....making a bad situation a whole lot worse.

I'm glad you are being persistent....you are your own best advocate. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,016
    • Most Online (within 30 mins)
      7,748
    HONEYSUCKLE
    Newest Member
    HONEYSUCKLE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.