Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Ingredients To Look For On Labels (new At This!)


Disney323

Recommended Posts

Disney323 Apprentice

Our 16 mo. old DS was just dx and I started reading labels yet I have no idea what to look for (the obvious being wheat) but what other ingredients to steer clear of? Is there a list out there?

TIA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Yes, on the home page here you can find a list of safe ingrediences and fobidden ingrediences. I believe it is listed on Site Index.

That would get you off to a good start.

FeedIndy Contributor

That list is really long and most of it comes down to 4 things-wheat, barley, rye and malt. There are a lot of additional "no-nos" that are wheat-based, but in the US if it doesn't say wheat in the ingredients it has to have the "contains wheat ingredients" warning on the label.

happygirl Collaborator

Anything with wheat is required by the Food Allergen Labeling Law of 2006 to be listed clearly. So if you see something with modifed food starch, but doesn't say wheat anywhere---then it is not derived from wheat. Before, they weren't required to list it, so we wouldn't know if the MFS was wheat derived or not.

After that, its oats, rye, barley/malt (malt is usually derived from barley). There is a list of companies that state that not only do they list all wheat, but they will clearly list any gluten (i.e., it might say natural or artificial flavorings, but unless it says wheat/rye/barley/malt/oats, they are not 'hidden').

Check out this topic that has a good list of reliable companies. Luckily, it covers "most" of the big brands...some of them (like Unilever) own everything! The first, second, and last posts have what you will need. Open Original Shared Link

Best of luck. Let us know what we can do to help, and if you are looking for "replacements" for an item that has gluten....we can find it for you!!!!

Laura

Disney323 Apprentice

Thank you so much for your advice girls! I honestly don't know what I would do without this site! We haven't had to make or purchase any gluten free items as of yet because ds needs to be eating it until his biopsy next week. I just want to be prepared what to look for. Thanks again!

vampella Contributor

Just remember that reading lables is GREAT but you have to call thhe companies too. I found a soup that the ingreds said was gluten free but upon calling the company it was not.

So just be careful.

Good luck

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748

    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.