Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lethargy


holdthegluten

Recommended Posts

holdthegluten Rising Star

I don't have anemia or any nutitional defincies, but I feel so tired and lethargic after lunch around 2:00 and it lasts almost until i go to bed.........anyone else feel this way. I never used to get so exhausted after lunch. I get really sleepy and kind of dizzy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

I don't know too much about it, but perhaps your blood sugars many be off. Hypoglycemic.

johnsoniu Apprentice
I don't have anemia or any nutitional defincies, but I feel so tired and lethargic after lunch around 2:00 and it lasts almost until i go to bed.........anyone else feel this way. I never used to get so exhausted after lunch. I get really sleepy and kind of dizzy.

I never came up as anemic, but my B12 was low. I was taking supplements for that for a month and still feeling like you described. Then wham!, did a blood test and doc called me 2 days later at 7 a.m. and told me to get to the emergency room immediately, all my major levels had dropped to critical levels, basically I was absorbing nothing. My electrolyte levels were so low I was in danger of cardiac arrest, which would have been almost fatal since my heart had nothing to power it back up on it's own. Got my levels back up with IV's and that's when they ran the blood panels and biopsies. All positive.

Are you having any other symptoms besides the lethargy? Are you taking any vitamin supplements now? If you are, they may be keeping your levels above water even if you are having some mal-absorption issues. I'd definately keep an eye on your nutrition levels, especially if you are displaying any other effects of celiacs or intolerance.

Don't mean to paint a doomsday scenario, but you don't want that phone call I got. Good luck, stay in touch.

holdthegluten Rising Star
I never came up as anemic, but my B12 was low. I was taking supplements for that for a month and still feeling like you described. Then wham!, did a blood test and doc called me 2 days later at 7 a.m. and told me to get to the emergency room immediately, all my major levels had dropped to critical levels, basically I was absorbing nothing. My electrolyte levels were so low I was in danger of cardiac arrest, which would have been almost fatal since my heart had nothing to power it back up on it's own. Got my levels back up with IV's and that's when they ran the blood panels and biopsies. All positive.

Are you having any other symptoms besides the lethargy? Are you taking any vitamin supplements now? If you are, they may be keeping your levels above water even if you are having some mal-absorption issues. I'd definately keep an eye on your nutrition levels, especially if you are displaying any other effects of celiacs or intolerance.

Don't mean to paint a doomsday scenario, but you don't want that phone call I got. Good luck, stay in touch.

I had blood tests ran and all my levels are good.........protein, hemoglobin, etc. Im stooped.

johnsoniu Apprentice
I had blood tests ran and all my levels are good.........protein, hemoglobin, etc. Im stooped.

Well, that's good. I'd just make sure you keep on eye on those levels, mine were all ok too and then just went into the basement. Hope you get something figured out soon, I know how horrible it is to drag thru the afternoon.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748

    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.