Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutenease


wdwmaggie

Recommended Posts

wdwmaggie Rookie

Does anyone know anything about GlutenEase? I went to a celiac support group the other night and there was a lady there promoting it like it was a miracle drug. She said that if you took it and then ate gluten that you would not have any reaction to the gluten or any damage to the intestines. I didn't believe her so I tried to find info online and I didnt find any, so I thought I'd ask if anyone knew anything. Thanks for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Here's a recent thread we had on the subject. It has a lot of information.

Open Original Shared Link=

Lisa Mentor

There are no miracle drugs. Gluten free is the only way to go. I does upset me that people want to profit on someone's illness.

Nantzie Collaborator

There is no way on earth they would be able to prove that there is no damage without biopsies, doctors, specialists, hospitals and long-term studies. It sounds like this woman is excited because it helped her symptoms and wants to share, but celiac is much more complex than just symptoms. It's well-known that people with celiac can be completely asymptomatic and they only find out their villi are worn away after a biopsy.

There are several of us who are interested in Glutenease to find out if it helps in the case of cross-contamination. I bought a bottle, but I only use it in certain settings.

My kids are gluten-free too and are preschoolers. There is no way I'd use a pill that they're much too young to take only to have them suffer from a glutening that I'm not suffering from because I took a pill. The last time all three of us were glutened, my poor husband just about crawled under the couch to get away from us. :blink: It's pretty bad. The guilt of them going through it and me not would be worse for me than the glutening.

I am, however, planning on taking it with me the next time I go with my husband on a business conference, which I get a chance to do a couple times a year. I'd love to see if it worked POST-glutening. I get such a wide variety of reactions it would be interesting to see which, if any, might be helped by it.

Nancy

  • 1 year later...
linda7276 Newbie
There are several of us who are interested in Glutenease to find out if it helps in the case of cross-contamination. I bought a bottle, but I only use it in certain settings.

I am, however, planning on taking it with me the next time I go with my husband on a business conference, which I get a chance to do a couple times a year. I'd love to see if it worked POST-glutening. I get such a wide variety of reactions it would be interesting to see which, if any, might be helped by it.

Nancy

I'm curious to know if you tried the Glutenease and what you thought. Are you still using it. I know this is an old thread, I've been reading about enzymes and trying to decide which are best for me, and I saw this about Glutenease and am very curious about it. Anyone else that has any information, please share. Thanks.

ShayFL Enthusiast

Oh Geez...

Rachel--24 Collaborator
I'm curious to know if you tried the Glutenease and what you thought. Are you still using it. I know this is an old thread, I've been reading about enzymes and trying to decide which are best for me, and I saw this about Glutenease and am very curious about it. Anyone else that has any information, please share. Thanks.

Linda,

There are some fairly recent threads which I've posted in regarding enzymes such as Glutenease and Peptizyde. I posted a list of different enzymes and what they work best for.

Example...Peptizyde is great for non-celiacs (on or off the diet)...but not recommended for Celiacs as a "safety net" for cross-contamination.

Glutenease....is good for non-celiacs (on or off the diet)....and can also be used by Celiacs to help reduce possible cross contamination reactions.

There was alot of enzymes on the list....I'm sure these threads will come up in a search. I'd post links but I'm on a sluggish computer right now.

I'm always interested in how people are doing with enzymes. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



linda7276 Newbie
Linda,

There are some fairly recent threads which I've posted in regarding enzymes such as Glutenease and Peptizyde. I posted a list of different enzymes and what they work best for.

Example...Peptizyde is great for non-celiacs (on or off the diet)...but not recommended for Celiacs as a "safety net" for cross-contamination.

Glutenease....is good for non-celiacs (on or off the diet)....and can also be used by Celiacs to help reduce possible cross contamination reactions.

There was alot of enzymes on the list....I'm sure these threads will come up in a search. I'd post links but I'm on a sluggish computer right now.

I'm always interested in how people are doing with enzymes. :)

Rachel, you're such a sweetie...thank you, I did find your very excellent and extensive list. I copied and pasted it into an enzyme folder, and then looked up Glutenease, and was thinking about trying it, since I do not have Celiac but only gluten sensitivity, not to minimize that with an 'only', because I was so sick while eating it. But it would be nice to know I could go out to eat and not worry about CC and maybe even cheat a little.

I was also reading that with malabsorption there is a problem with pancreatic function, did you read that? I found that very interesting and it makes sense too me, because over the last 8-10 years, I've had a lot of problems with hypoglycemia, which means the pancreas is working overtime, pumping out that insulin. My doctor said prediabetic. Anyway, I was on the Enzymedica site all afternoon reading.

Do you know of anyone whose used it and have they done well with it?

Linda

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.