Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New With Questions


Joanne11

Recommended Posts

Joanne11 Apprentice

Hi,

My name is Joanne and I am 26 years old. I have been having gi issues for the past 4 years or so, worse in the past two; nausea,bloating,diarhhea,gas off and on every week to every day. I had the whole GI work up last spring with no solid diagnosis except for IBS. My IgG and IgA levels were elevated into the 40's so my doctor ordered a small bowel biopsy which came back negative. I have been reading about the different types of celiac and was wondering if :

1: I could still have celiac even though my biposy was negative

2: I may be predispositioned to celiac and may develop it later

3: If going gluten free would be benificial to my health even if I do not have active celiac, or if it could help prevent future health issues

Thanks for taking the time to read this, any help would be great!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Hi Joanne, and welcome :)

Since you tested positive on the blood, and given your symptoms, I would say you have a problem with gluten and need to be on a gluten-free diet.

The biopsy really can not rule out Celiac--it can only rule it in. The damage to the intestine can be patchy, therefore easily missed.

Since you've completed your testing, I would suggest going gluten-free--100%. There is a ton of information here to help you with that. Some tips that will get you started--

In addition to everything you are consuming, you need to check for gluten your personal care products, make up, vitamins and any medications you are taking.

Go through your kitchen and replace any wooden utensils and cutting boards, collander, toaster and scratched non-stick cookware. Those can all harbor gluten that is next to impossible to wash away.

Be wary of eating out in the first few weeks--when you do venture out, you need to make sure the servers and manager (if possible) know about gluten and cross contamination.

Best of luck--let us know if there's anything we can help you with.

Joanne11 Apprentice

Thanks for your advice!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      ttg iga high (646 mg/dl) other results are normal

    2. - RMJ replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      ttg iga high (646 mg/dl) other results are normal

    3. - kpf posted a topic in Introduce Yourself / Share Stuff
      0

      Vegetarians and vegans with celiac disease

    4. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    5. - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,335
    • Most Online (within 30 mins)
      7,748

    Kathleen Groner
    Newest Member
    Kathleen Groner
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • kpf
      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.