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Joanne11

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Joanne11 Apprentice

Hi,

My name is Joanne and I am 26 years old. I have been having gi issues for the past 4 years or so, worse in the past two; nausea,bloating,diarhhea,gas off and on every week to every day. I had the whole GI work up last spring with no solid diagnosis except for IBS. My IgG and IgA levels were elevated into the 40's so my doctor ordered a small bowel biopsy which came back negative. I have been reading about the different types of celiac and was wondering if :

1: I could still have celiac even though my biposy was negative

2: I may be predispositioned to celiac and may develop it later

3: If going gluten free would be benificial to my health even if I do not have active celiac, or if it could help prevent future health issues

Thanks for taking the time to read this, any help would be great!


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jerseyangel Proficient

Hi Joanne, and welcome :)

Since you tested positive on the blood, and given your symptoms, I would say you have a problem with gluten and need to be on a gluten-free diet.

The biopsy really can not rule out Celiac--it can only rule it in. The damage to the intestine can be patchy, therefore easily missed.

Since you've completed your testing, I would suggest going gluten-free--100%. There is a ton of information here to help you with that. Some tips that will get you started--

In addition to everything you are consuming, you need to check for gluten your personal care products, make up, vitamins and any medications you are taking.

Go through your kitchen and replace any wooden utensils and cutting boards, collander, toaster and scratched non-stick cookware. Those can all harbor gluten that is next to impossible to wash away.

Be wary of eating out in the first few weeks--when you do venture out, you need to make sure the servers and manager (if possible) know about gluten and cross contamination.

Best of luck--let us know if there's anything we can help you with.

Joanne11 Apprentice

Thanks for your advice!

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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