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Test Results

deedub

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deedub Rookie
deedub
Posted

i got my blood test results back and the "TTG IgG AB" is high at 81 and ferritin was slightly low, so the doc wants to do a biopsy tomorrow. I am totally shocked that the blood tests is pointing towards a celiac condition. once i learned that I may have celiac, I've been monitoring when I eat wheat , barley and/or rye and feel no ill effects ? Yes, I know that everyone doesn't have the same or even any symptoms, but is it possible that the blood test is wrong ? Lastly, after my biopsy, if my small intestine looks fine, villi are not flattened, then what ? Is a gluten free diet still necessary even though there are no physical affects ?

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Jestgar Rising Star
Jestgar
Posted

Someone posted a bit ago that she was absolutely symptomless, except that she only weighed 80 pounds....

She (if I remember correctly) had total villus destruction before she went gluten-free.

I think the symptomless version is the most dangerous. You have no physical cues that you've eaten gluten, except that you are absorbing no nutrition and are slowly killing yourself.

If your antibodies are high, and your ferritin is low, then something's wrong, right?

deedub Rookie
deedub
Posted
  • Author

Right, everyone's different. I am getting nutrition based on my weight, acitivity and overall health. I feel great. I have always had lower ferritin all my life, and at 32, I'm thriving. Yes something is wrong with my digestion with regards to excessive gas which is occasional and bloating which is also occasional. My question was if anyone has had a positive blood test with no damage to the villi ?

What would the doc look for next ?

Jestgar Rising Star
Jestgar
Posted

Well, I don't know what a doc would look for, but I expect people on this forum would suggest you keep a food diary to find out if there's some specific food that gives you problems.

Some common intolerances are soy and dairy. Others include eggs, corn, sulfates, msg (okay that's not really a food, but you get the idea).

And it could be something like whole eggs give you gas, but eggs baked into something are fine. Your diary needs to be pretty specific.

deedub Rookie
deedub
Posted
  • Author

is it typical that my blood test did not check for anti-gliaden IgG and anti-endomysium ?

just wondering that if the entire " panel " was not done, how accurate is the bloodwork ?

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    • Hmart
      Is this celiac?

      By Hmart · Posted

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
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    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

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    • Trish G
      Fiber Supplement

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      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
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