Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help And Advice Please....really Sick


Annnettem

Recommended Posts

tarnalberry Community Regular

Please, please both miles2go and ursa, don't assume I'm taking anyone's side or saying anything with anyone else. I'm not. I'm trying to correct a common misconception that came up coincidentally, that's all.

Sorry if I sound defensive, but it's frustrating to have people put words into my mouth that I didn't put there, especially after I try to correct it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



miles2go Contributor
So, really, you need to do something about the cancer immediately... Anyway, I hope you figure it all out and start feeling better soon.

Ursa, I just wanted to say that I'm sorry for overlooking this statement of yours embedded in a somewhat lengthy post. I don't think we're in disagreement here at all, I was misunderstanding you to be saying to wait on the cancer issue.

Tarnalberry, sorry likewise if you thought I was putting words in your mouth.

CarlaB, sorry that you're so sick, I really appreciate the links...

and Annettem I hope you get better soon, whatever you do. If you need some more info, please don't hesitate to PM me.

CarlaB Enthusiast

Thank you, miles2go. I actually feel blessed to finally know what it is so I can be treated! It was a long road and I had to figure it out for myself, just as many of us with gluten intolerance do. Doctors are too specialized and narrow-minded because of it ... they just don't even consider these systemic illnesses! We all end up looking like hypochondriacs.

miles2go Contributor
Thank you, miles2go. I actually feel blessed to finally know what it is so I can be treated! It was a long road and I had to figure it out for myself, just as many of us with gluten intolerance do. Doctors are too specialized and narrow-minded because of it ... they just don't even consider these systemic illnesses! We all end up looking like hypochondriacs.

I think I may have lost my golden retriever that hiked with me for a while on the trail to that. He had the classic bull's-eye rash and then died a year later while running with my dad. I think it may have been carditis; the medical diagnosis was heat exhaustion. Maybe not, but he was a great dog. Sad times...

I hope you start feeling better, soon!! It's not fair that we started gluten-free at about the same time and I am starting to feel better while you are not. That's just not right.

Margaret

CarlaB Enthusiast
I think I may have lost my golden retriever that hiked with me for a while on the trail to that. He had the classic bull's-eye rash and then died a year later while running with my dad. I think it may have been carditis; the medical diagnosis was heat exhaustion. Maybe not, but he was a great dog. Sad times...

I hope you start feeling better, soon!! It's not fair that we started gluten-free at about the same time and I am starting to feel better while you are not. That's just not right.

Margaret

Sorry about your golden retriever. Sounds like it could have been ...

Well, if you think about it, the whole gluten-free thing isn't fair either!! :P

miles2go Contributor
Well, if you think about it, the whole gluten-free thing isn't fair either!! :P

No one said that life was going to be fair, but that doesn't mean that it could be!!

;)

Ursa Major Collaborator
Ursa, I just wanted to say that I'm sorry for overlooking this statement of yours embedded in a somewhat lengthy post. I don't think we're in disagreement here at all, I was misunderstanding you to be saying to wait on the cancer issue.

Apology accepted, it was just a misunderstanding, no hard feelings here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGluGirl Contributor

Dear Ursa Major, Tarnalberry, CarlaB, and miles2go,

Boy am I glad you guys are not fighting anymore! :P I was getting worried there for a bit! At least we can calmly discuss issues here. At least we are all mature enough to be adults. I wish I could say the same about Rosie O'Donnell and Donald Trump! What are they, in kindergarten? I just want to say to them, "Get a life already and grow up!" :lol:

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.