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Social Anxiety

shimma

By shimma
in Coping with Celiac Disease

Recommended Posts

calisherbear Rookie
calisherbear
Posted

I was diagnosed with social anxiety yesterday, but I've know that I've had it for a long time now. My doctor wants me to try Paxil CR, but I can't seem to get a difinitive answer as to whether or not it's safe. I've seen the regular formulation of Paxil on the gluten free drug lists, but not the CR version. I called GlaxoSmithKline and their response was that while they don't believe that any ingredients contain gluten, they can't confirm that is the case for any of the ingredients that are coming from an outside supplier. Does anyone know for sure? This disease is frustrating enough.....finding things to help you shouldn't be. :(

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YankeeDB Contributor
YankeeDB
Posted

Calisherbear, you can have your pharmacist call their source for the medication directly and confirm that their formulation is gluten-free and if not, have them use one that is. Pharmacists are a great resource in situations like this.

Good luck to you!

calisherbear Rookie
calisherbear
Posted

YankeeDB,

I tried that yesterday when I picked the prescription up, and my pharmacist was less than helpful. He couldn't find the phone number and then told me to just call Glaxo myself. The person I talked to at Glaxo this morning was a pharmacist, but still couldn't give me a straight answer. I guess besides figuring out whether or not this drug is safe, I also need to find a more knowledgable pharmacist. UGH!!

Wanda Rittue Newbie
Wanda Rittue
Posted

Linda,

I'm glad to hear that constipation is a sign of celiac, I was beging to think my doctor was wrong in diagnosing me because everthing I've read on this site for the past 3 weeks was about people having severe diarrhea & like you I can't go.

If any body has any helpful list of what I can & can't eat I'd appreciate it, I'm only 3 weeks into this & still don't have much of a clue.

Thanks,

Wanda

angel-jd1 Community Regular
angel-jd1
Posted

I find that it is much easier to just call the pharmaceutical company myself. That way I know exactly what the person on the other end says. I also think that pharmacies are very busy places, and I am sure they have enough problems to deal with. I call on my own....but do always ask for the company name that produced my drug.

-Jessica :rolleyes:

plantime Contributor
plantime
Posted

My favorite pharmacy is small and very busy. I make sure that I am always friendly, and respect their posted break times. Whenever I have a question, I call and leave a message that includes my name, phone number, and exactly what the question is. The pharmacist then has time to look up the answer, and calls me back when he has time. Because I make sure to stay on excellent terms with everyone in the drugstore, I have never had to wait more than 24 hours for an answer.

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      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
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