Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick From Wheat Flour In The Air? Does This Happen To You?


nederlandse

Recommended Posts

nederlandse Newbie

Hi everyone, thanks for reading. I'm 26, living gluten-free for 2.5 years and starting to feel significantly better as of 8 months ago. *

Whenever I visit my parents (3 times since starting to get better) I get very sick - very quickly. It's the same pattern every time: my joints start cracking and hurting, my stomach hurts and balloons (I look pregnant), my mood plummets for no apparent reason, and then I become fatigued and foggy-brained. This all happens over the course of 2-3 days and keeps getting worse until I leave. The effects linger for 2 weeks.

While at Mom & Dad's, I cook my food separately and on my special kitchenware and I eat from my special gluten-free plates etc. The only thing I can think of is that there is flour still in the air and on things that I touch. My mom bakes loads of regular wheat bread and maybe my problem is that the flour remains in the house enough to make me sick. Does this happen to anyone else? Do you react to this kind of trace amount of gluten? Do you react so quickly? Have you figured out any solutions or is my best option to stay away from Mom & Dad's house all together?

I just want to be able to get an idea if this is anywhere close to normal. Are there any tips and tricks I'm missing? Would washing my hands more often help? Thanks for your replies.

Nederlandse

*It took ~2 years for me to start feeling better because even though I was gluten-free, I was sharing cook and dish ware with non-gluten-free people and was washing my kitchen ware with the same sponge as used by people who ate Gluten containing foods. I didn't know using separate kitchen ware, cutlery and cleaning supplies would make such a big difference for me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Byte Me Apprentice

I think it is entirely possible that wheat flour in the air could be making you sick, especially if your mom is baking right before or during your stay. For a while, I let my kids bake their own pancakes/biscuits/whatever from bisquick mix. I wasn't even in the house during the whole process - I went next door to my mom's and waited for them to get completely done, cleaning up and all. Every single time, I would still get symptoms within a couple hours of coming back home, especially with the fatigue and bloating.

Tritty Rookie

I've been feeling all out of sorts lately and just read on here the other day that drywall has wheat in it. My husband is finishing our basement. So all of the dust from that must be getting to me - I would think it's possible. I wonder if you could suggest your mom taking an alcohol based wipe to all of her kitchen counters, handles, etc before you come. Maybe it is just laying on the surfaces - gluten is sticky - not just anything will clean it from what I understand...

Guhlia Rising Star

I can't go near the bakery in my grocery store or I'll get nauseous a few hours later. I've never had a full blown attack from this, but I can see how someone could. Light nausea is usually my first symptom.

darlindeb25 Collaborator

I was thinking about this the other day. There are those out there that feel it isn't possible for us to get sick just because we think there is flour in the air. I was sweeping my steps off. I have a basement apartment and I had salted the steps because of ice. As I started sweeping, I could taste the salt--proving that you can get airborne objects such as flour ingested. I always knew we could, yet the steps proved it to me, not a shadow of a doubt now!!!

We often have patients bring donuts, pastries, or cookies in and the other 2 women will sit the box down on the schedule book--I keep telling them they can not do that. They simply refuse to understand, they simply do not care. It doesn't effect them, so it doesn't matter! Sad, isn't it?

nederlandse Newbie

Thanks everyone ! I'll try the alcohol swabbing and hopefully that will help. My parents are very understanding and I don't want them to give up their home made whole wheat (since I don't live at home). Also, even though my symptoms are manifesting clearly - its good to hear from you as a sanity check - no, its' not in my head! Thanks again,

Jessica

powderprincess Rookie

I experienced an air-glutening a few months ago. My husband and I were packing up and moving to a new place. I was outside putting something in the car, meanwhile, my dear hubby dumped a container of wheat flour from the back of the cabinent down the sink, we wouldn't need it at the new place. Of course when I walked inside I could smell it and went outside. My mouthful of wheat in the air was enough to get pretty sick afterward. It can happen and it's no fun!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.