Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My First Glutening After Going gluten-free - Weird


flowergirl

Recommended Posts

flowergirl Rookie

Hi everyone, I think I may have experienced my first glutening. :blink: It was terrible but I am not sure if it was a glutening or just a cold? :huh:

5 Days ago I had a few sips of hot chocolate and 2 gluten-free chocolates for the first time since going gluten-free. The hot choc was with cows milk and I am lactose intolerant. I thought I'd give it a try and see what happens. That afternoon I developed an inflammation in my throat that went on to a full blown cold the next day. I was sleeping all the time and feeling feverish and fuzzy with a running nose. I had been constipated up untill this morning when I had a few semi normal bm's and then yellow D. It was scary! It was almost fluorescent like described in Open Original Shared Link.

Can I call it a glutening? Do you think there may have been wheat in the hot choc or is it the lactose? Or soy or something else in the chocolates?

I am dumbfounded by this :blink:

I'd appreciate your opinions.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



katecopsey Newbie

'Hi everyone, I think I may have experienced my first glutening. It was terrible but I am not sure if it was a glutening or just a cold?

5 Days ago I had a few sips of hot chocolate'

I don't know about the rest of this crowd - but 5 days seems too long. I get a reaction within hours, sometimes even before the end of a meal (do NOT wear close fitting waistbands that cannot be discretely undone!!LOL).

flowergirl Rookie

Thank you, I thought about what you said, it makes sense. I should also mention that I took an ibuprofen last night for period pain. Can that cause D?

Tritty Rookie

You said that afternoon though - right? Is that the only thing you ate? Was it surrounded by something else? I'm new at this -but maybe that wasn't the culprit. I think that when I'm finally healthy from going gluten-free that's going to be the hardest thing - pinpointing what made you sick!

Good luck - hope you're feeling better...

flowergirl Rookie

Yes, the hot choc and the two gluten-free chocolates were the only out of the ordinary things I ate. I knew they may make me ill but my partner and I wanted to test it out. We are slowly moving towards reintroducing things and seeing what happens.

We had a few stressful weeks and I know my immune system is very low so I was not surprized by the cold and runny nose. That it happened right after having NO NO's may be a coincedence... or not. I am just very surprized at the yellow, flourenscent D I had this morning. I haven't eaten anything out of the ordinary since the chocs besides taking the ibuprofen last night. :huh: I guess the D was either the choc, milk or Ibuprofen. When I became ill my digestive system halted and I became constipated and now 5 days later this happens... It is very strange and hard to pinpoint. :unsure:

You said that afternoon though - right? Is that the only thing you ate?

Thanks, I am feeling better now.

ana Rookie

I bet it was a coincidental, I got glutened after going gluten-free and within a half hour I was in the bathroom. Your cold was probably already brewing.

You might be sensitive to Ibuprofren, especially if you're allergic to asprin or any thing that is related to asprin. and sensitivities can just show up at any time in your life. It's worth it keeping a food log and writing down the stuff you eat as well as OTC meds you might be taking.

I guess the D was either the choc, milk or Ibuprofen. When I became ill my digestive system halted and I became constipated and now 5 days later this happens... It is very strange and hard to pinpoint. :unsure:

Thanks, I am feeling better now.

gfp Enthusiast
I bet it was a coincidental, I got glutened after going gluten-free and within a half hour I was in the bathroom. Your cold was probably already brewing.

You might be sensitive to Ibuprofren, especially if you're allergic to asprin or any thing that is related to asprin. and sensitivities can just show up at any time in your life. It's worth it keeping a food log and writing down the stuff you eat as well as OTC meds you might be taking.

It could be any or all....

My advice is give reintroducing a break until you feel better... you soon will.... then you can be more objective and retry....

If you only made one mistake then your doing way better than I did when I first went gluten-free!!!!!!

Take it easy, spoil youself... buy some nice stuff like essential oils and ask hubby for a massage... take a nice long hot bath with some nice candles... ask hubby for some HUGS... how about you rent a film and hug up on the sofa ....

It could just be "girl stuff" related as well..just a funny cycle... . but you know it doesn't matter... take care of yourself and give yourself some treats...

You're doing GREAT.... one mistake is nothing... it might not feel like it but put it in perspective...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flowergirl Rookie

Thanks everyone, I don't know what I would have done without this forum. Only you guys can understand these things. :rolleyes: I realise now that glutening or getting ill makes you loose your objectivity and clear thinking. Now that I look back on it... I chose the completely wrong time to start re-introducing nasties in my diet. Thanks again. ^_^

kookaburra Rookie

So sorry you were ill..

for whatever it's worth, my 4yo has a lot of allergies but the only time his poop turns that flourescent yellow is when he's been glutened (including oats). I guess it's a good indicator which I should appreciate in a weird sort of way.... Easier than just fixating on the behavioral signs.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,905
    • Most Online (within 30 mins)
      7,748

    Croissantl0v3r
    Newest Member
    Croissantl0v3r
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.