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Question On Testing

swinkler

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swinkler Newbie
swinkler
Posted

We got the blood results today my dr said below 7 was negative for celiac we were at 1. But prior to finding out we took him off gluten for about 10 days and then started him back on it and his poop has been explosive - he has had a rash on hos face and he's been very mean. Would you have the biopsy done even if his blood work was negative. He's two I don't want to put him through anything that wasn't necessary

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GeoffCJ Enthusiast
GeoffCJ
Posted
We got the blood results today my dr said below 7 was negative for celiac we were at 1. But prior to finding out we took him off gluten for about 10 days and then started him back on it and his poop has been explosive - he has had a rash on hos face and he's been very mean. Would you have the biopsy done even if his blood work was negative. He's two I don't want to put him through anything that wasn't necessary

Blood test are notorius for false negative. Consider getting further testing, but it sounds like the dietary test was clear!

CarlaB Enthusiast
CarlaB
Posted

Whether or not you have the biopsy is purely up to you. He may be what I'd call "pre-celiac" and have to have much more damage before the tests pick it up. He may be non-celiac gluten intolerant. Either way, he needs to be gluten-free.

Christine E Newbie
Christine E
Posted

Blood tests and endoscopys are commonly negative for children under three. My son was negative for both at 13 months, but had a positive gene and the diet worked. The doctor will rely more on the blood test after he turns three. If the diet helps, keep it up.

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      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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