Question On Testing

[swinkler]

We got the blood results today my dr said below 7 was negative for celiac we were at 1. But prior to finding out we took him off gluten for about 10 days and then started him back on it and his poop has been explosive - he has had a rash on hos face and he's been very mean. Would you have the biopsy done even if his blood work was negative. He's two I don't want to put him through anything that wasn't necessary

[GeoffCJ]

We got the blood results today my dr said below 7 was negative for celiac we were at 1. But prior to finding out we took him off gluten for about 10 days and then started him back on it and his poop has been explosive - he has had a rash on hos face and he's been very mean. Would you have the biopsy done even if his blood work was negative. He's two I don't want to put him through anything that wasn't necessary

Blood test are notorius for false negative. Consider getting further testing, but it sounds like the dietary test was clear!

[CarlaB]

Whether or not you have the biopsy is purely up to you. He may be what I'd call "pre-celiac" and have to have much more damage before the tests pick it up. He may be non-celiac gluten intolerant. Either way, he needs to be gluten-free.

[Christine E]

Blood tests and endoscopys are commonly negative for children under three. My son was negative for both at 13 months, but had a positive gene and the diet worked. The doctor will rely more on the blood test after he turns three. If the diet helps, keep it up.