Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This Site


mothermayiamof2

Recommended Posts

mothermayiamof2 Newbie

Glad I found you all. I wasn't easy registering here took me many trys but I did it. For some reason it wouldn't send my home email address a comfirmation so Ihad it sent to work???

Where do I get started? My Daughter who is 51/2 had the blood work done for Celiac's antiboties were very high, she had the endoscopy and biopsy done this past Thursday pretty much confriming the fact that she has it. We willhave aformal consult next Thursday. I was told to go ahead and put her on a Gluten free diet. I am in mourning for her and all the foods she can no longer have. I feel sad but I am not letting her see this. We haveb een shopping and found a few good things. have a million questions but I guess I will start with 2.

Is hidden Valley Ranch salad dressing gluten-free or not? I'm getting mixed messages from everywhere

How about M&M's? Her two favorite foods. Would love to chat with anyone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Glad I found you all. I wasn't easy registering here took me many trys but I did it. For some reason it wouldn't send my home email address a comfirmation so Ihad it sent to work???

Where do I get started? My Daughter who is 51/2 had the blood work done for Celiac's antiboties were very high, she had the endoscopy and biopsy done this past Thursday pretty much confriming the fact that she has it. We willhave aformal consult next Thursday. I was told to go ahead and put her on a Gluten free diet. I am in mourning for her and all the foods she can no longer have. I feel sad but I am not letting her see this. We haveb een shopping and found a few good things. have a million questions but I guess I will start with 2.

Is hidden Valley Ranch salad dressing gluten-free or not? I'm getting mixed messages from everywhere

How about M&M's? Her two favorite foods. Would love to chat with anyone.

Glad you found us as well. Welcome.

First, know that eating gluten free is much healthier than not. Five and a half is a wonderful age to teach her to eat well and healthy.

Hidden Valley Ranch is not gluten free, but Kraft Ranch is. And m&m's are my snack food of choice. (but not the crunchy m&m's)

Next question? :) Feel free to chat away!

PS: NoGluGirl has a wonderful starter list. I am sure she will post with it.

Lisa

sarah ruth Newbie

I remember when it seemed *impossible* to eat a diet without wheat, it felt so empty - what would I eat???!!! ..but it gets easy I promise. We had pizza last night, we eat noodles and cookies and toast, you just need to clear out your cupboards and shift your recipes, different is just as good! That said, the biggest change has been that pizza, toast, cookies and noodles are treats more than staples, as I am trying to shift to more nutrient dense foods. Check out the cookbook section of your local library, ours has MANY gluten free cookbooks. Lately I took out Annalise Roberts' Gluten Free Baking Classics and her recipes are very delicious, my husband says he wouldn't mind eating any of them regularly (he's the bread lover). We make pancakes with almond flour, eggs, yogurt, pinch of baking soda & a splash of vanilla - delicious! A person posting here has a seriously good sandwich loaf recipe in that forum, cookies are very easy to make without flour, let alone gluten-free flour - you and your daughter will be OK!

For me, the difficulty is saying "no" to offered foods, and being so particular about what can go in my and my kids mouths in a culture where we are swamped by options. But it's worth it to have healthy happy selves and kids, so worth it. It helps me to have a scientist's view of humanity - wheat is new for us, especially it's modern prevalence, it only makes sense that some can't thrive on it, we need to listen to our bodies.

best wishes!

bchapa Newbie

Hello mothermayiamof2!!

I am new also, my son was diagnosed a couple of months ago and after our consultation with the nurse practitioner my wife was in tears over our sons intolerance. However, after time, Momma Goose is right, eating gluten free foods is better for her and she will feel so much better after you free her from gluten.

Have you been tested yet? I was told by others the parents should be screened.

Nic Collaborator

I so know that feeling of mourning (as does all the other parents). My son was diagnosed 2 years ago and he was so sad to give up his favorites (cheerios were at the top of the list). But, he developed all new favorites in a very short time. He loves the gluten free pizza I make him. I buy a mix from my health food store and I make it weekly. We have found a tremendous amount of options you just have to look for them. I use 2 different health food stores and I also shop at Whole Foods and Trader Joes. If you have a trader joe by you get the rice pasta, it is identical to regular pasta. And besides all of the naturally gluten free foods out there we have found some very good special treats as well. Gluten free pantry has a lot of good mixes and I feel they taste the same as regular baked goods. Take some time to look around and try different products and soon enough you will find her some new favorite foods.

Nicole

VegasCeliacBuckeye Collaborator

Welcome to the board!

Fell free to ask any question you like! Someone here should know the answer or send you in the right direction!

Also, I always advise new folks to start their learning of the disease by getting the book from "Gluten Free for Dummies" - its by D. Korn and you can get it on amazon .com.

FYI, D. Korn is the founder of R.O.C.K. (Raising our Celiac Kids). The book is great - I just bought it for my mother, who was recently diagnosed.

Also, get your daughter a new toaster and double check her shampoos, soaps and lotions.

BB

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.