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Share Your Best Post-glutening Remedies

melie

By melie
in Coping with Celiac Disease

Recommended Posts

melie Apprentice
melie
Posted

Hi,

After having two hair raising bouts of D, (10 days one time!) from Gluten exposure, I seem to be getting more sensitive to gluten as time goes on (now one year gluten free!) I have never had such severe reactions and would like to know what people do to get back to normal, bowel wise.

Does anyone else have such long and severe reactions to gluten, especially when it wasn't that severe before?

I took some Immodium tablets yesterday for the latest 3 day D jag, seems to be working so far.

I thought this thread would be a good place to write about what you do to get the gluten out of your system, and intestines happy again, other than of course maintaining a strict gluten free diet.

Thanks,

Melie

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flowergirl Rookie
flowergirl
Posted

Hi there, three things does the trick for me after a glutening and D

* a teaspoon of slippery elm mixed with water

* aloe vera juice

* peppermint tea

after that I usually sleep it off for about 3 days and take some dandelion root or milk thistle to help the liver so that my BM's can return to normal.

Flowergirl

darlindeb25 Collaborator
darlindeb25
Posted

I'm sure my answer will be of no help, yet for me, I just let nature do it's job. I find if I take anything, it usually prolongs the agony. Imodium works at the time, yet I will suffer even more so in a few days. I tend to live with my heating pad and just deal with the accident.

I do think it would be wonderful if they could come up with something that could help when glutened.

melie Apprentice
melie
Posted
  • Author

Yeah, the Immodium wore off, and guess what....back to D! So frustrating! I can't believe how long a post-glutening reaction can go on for...is this common?

I seem to recall others saying they suffered for a week after a glutening, I used to be skeptical about that, but no more!!

Melie

NoGluGirl Contributor
NoGluGirl
Posted
Yeah, the Immodium wore off, and guess what....back to D! So frustrating! I can't believe how long a post-glutening reaction can go on for...is this common?

I seem to recall others saying they suffered for a week after a glutening, I used to be skeptical about that, but no more!!

Melie

Dear Melie,

I think this is common. I am more sensitive to it now that before going gluten free. My reaction is very violent. It includes my bowels, but actually affects my upper tract worse. I break out in a sweat, then get terribly nauseated, need to have a bowel movement, my stomach swells and cramps, and I begin shaking. Sometimes my hands even go numb and/or tingle! I have to make sure to swallow my promethazine before the dry heaves that make it feel like my insides are emploding start. Then, I get really drowsy and sleep. I am usually really fatigued for a couple of days afterward, too.

Sincerely,

NoGluGirl

confused Community Regular
confused
Posted
Dear Melie,

I think this is common. I am more sensitive to it now that before going gluten free. My reaction is very violent. It includes my bowels, but actually affects my upper tract worse. I break out in a sweat, then get terribly nauseated, need to have a bowel movement, my stomach swells and cramps, and I begin shaking. Sometimes my hands even go numb and/or tingle! I have to make sure to swallow my promethazine before the dry heaves that make it feel like my insides are emploding start. Then, I get really drowsy and sleep. I am usually really fatigued for a couple of days afterward, too.

Sincerely,

NoGluGirl

That is me to a tee, and i hate it. The other night it happened and then i let my anxiety kick in, it took me about an hour to calm myself down. My poor family just looks at me like im odd, but they have learned to let me deal with it all on my own, when they try to calm me down, it is worse. Im still recovering from friday, every day is a little better but not much. Or maybe it was cause i licked the back of an envelope last night. I was so mad at myself for that lol

paula

JNBunnie1 Community Regular
JNBunnie1
Posted

You can get glutened from envelopes?

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Lisa Mentor
Lisa
Posted
You can get glutened from envelopes?

I don't know if this is one of the old gluten tales, and I have never seen the ingredients in envelope glue.....but it is not recommended.

KAG Rookie
KAG
Posted

I get serious gas and constipation from gluten. I also don't tolerate many carbohydrates or legumes either very well. I just recently learned that when you eat something that causes an alergic reaction, you can have inflamation in the intestines and that can cause constipation. Anyway, to get myself back on track I eat the following chicken soup recipe that I got from Jordan Rubin's book about healing your digestive disorders. I eat only this soup for a few days to calm the inflamation in my intestines and then for the next few days I add spinach, zuccini, turnip greens (frozen from a bag), etc. to the soup and I'm back to normal(?).

(I don't use the chicken feet, or the structured water concentrate) Also - when I make this soup (which is just about every other week) I freeze individual portions so if I need any I can just defrost single servings. What's important is to make sure you cook this soup for at least 12 hours.

1 medium whole chicken

JNBunnie1 Community Regular
JNBunnie1
Posted

Huh. And I thought I was paranoid before....... Good thing they make sticky stamps.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Paula,

Yep, that is like with me. My parents do not get it. They probably have Celiac too! They just won't admit it. My mother takes Phenergan, Levsin SL, Equate anti-diarrheal liquid (liquid cork I like to call it) and some other pill for her stomach. She refuses to try the diet. She also could not care less if I get glutened because it does not effect her. I am just being a hypochondriac to her.

Dear JNBunnie1,

Nope, you are not paranoid. You know, I never licked the envelopes anyway. I always taped them. They never stuck well. I was safeguarded from that early!

Dear KAG,

Thanks for the recipe! I put it in my gluten free food file. Dr. Ruben seems to know more about health than most people. He actually mentioned Celiac on the show I saw him on! ;) Now here is a guy I think seems to know what is happening!

Sincerely,

NoGluGirl

KAG Rookie
KAG
Posted

Yes, Jordan Rubin knows a lot about digestive disorders! The only problem is that he uses a lot of barley in his supplements. I wish that he would go completely gluten free! I would spend the extra money on his supplements. I use a few and they are great!

num1habsfan Rising Star
num1habsfan
Posted

Yes, my symptoms and reactions and sesativities have gone bad, to the point I dont think it could get worse. You can imagine how i felt when I had to eat gluten 5 days for a test...it took me almost 2 weeks to recover. I get sick from breathing in flour/grains, too.

Unfortunately I dont know what can help, the only solution I have for myself is to be paranoid :lol:

~ lisa ~

snowcoveredheart Apprentice
snowcoveredheart
Posted

i just drink peppermint tea for the pain and lemon juice with honey to try and help clear out the badness.... and let nature take its course.

Nantzie Collaborator
Nantzie
Posted
You can get glutened from envelopes?

I always used to get nauseous, headachy and really anxious and upset when I paid bills. It made sense when we were barely making ends meet, but once we started making enough money to live within our means, I thought I just hated paying bills for some reason.

Once I learned about gluten being a possible ingredient in the adhesive, SO much made sense. :lol:

I'm sure it's not on all of the envelopes, but it's on at least some. There's just no way to check and verify. So it's a better safe than sorry thing.

Nancy

JNBunnie1 Community Regular
JNBunnie1
Posted
Yes, Jordan Rubin knows a lot about digestive disorders! The only problem is that he uses a lot of barley in his supplements. I wish that he would go completely gluten free! I would spend the extra money on his supplements. I use a few and they are great!

I know! I wish he'd go gluten-free too, his book is what helped me make my self-diagnoses when all my doctors were being obtuse. I was taking his probiotic until a few weeks ago when I read the ingredients again after a YEAR of not paying attention, I think I've been glutened twice in that time from his pills, now that I know that. I couldn't figure out those glutenings before. So they're obviously very good quality, but still not worth the risk.

melie Apprentice
melie
Posted
  • Author

On average, how many days after a glutening do you suffer? It used to be less than one day for me, but now on up to a week, I keep thinking it would be washed from my body early on, and the last several days is just the bowels being cranky and irritable because there was gluten in there, an 'overreaction' that they have to recover from.

Insights?

I have come to the depressing conclusion that I am highly likely to be glutened at restaurants and I have to give eating out up, at least for now, because this weeklong misery afterwards is not worth it.

JNBunnie1 Community Regular
JNBunnie1
Posted
On average, how many days after a glutening do you suffer? It used to be less than one day for me, but now on up to a week, I keep thinking it would be washed from my body early on, and the last several days is just the bowels being cranky and irritable because there was gluten in there, an 'overreaction' that they have to recover from.

Insights?

I have come to the depressing conclusion that I am highly likely to be glutened at restaurants and I have to give eating out up, at least for now, because this weeklong misery afterwards is not worth it.

I usually suffer for about two days. The fatigue and brain blurring last a few days longer though. You might try suggesting restaurants that have really nice salad bars, not pizaa restaurants though. I can usually go to Ruby Tuesday's (chain) and they have such a great salad bar that I actually get filled up, and I don't have to worry about anything really being cross contaminated, because the salad bar prep station in the back is separate from where they cook the 'real' food, and usually washed a lot more often too.

NoGluGirl Contributor
NoGluGirl
Posted

Dear KAG,

:( That is a bummer about the barley. It would be nice if Dr. Ruben stopped using it. So many things are off limits because of it! He seems to have his pulse on the right thing, though. I am glad someone does!

Dear num1habsfan,

I know exactly what you mean. The reactions do tend to increase intensity after being used to being gluten free. It is horrible! I am paranoid as well. I am afraid to leave my coffee cup alone, for fear of cross contamination! My mother got toast crumbs on the paper towels! :angry: Now I have to open a whole new roll for myself, and try to keep it safe.

Dear Melie,

I just have to let nature take its course. The promethazine makes me incredibly drowsy. For a couple of days after, I usually feel sluggish and my stomach is irritated. Sometimes a week is how long it takes to get completely out of my system. I have read in some books that you can reduce the suffering by hurrying it out of your system with a laxative. My stomach often cramps when I take these, especially anything with psyllium husk. I never could take that stuff.

Sincerely,

NoGluGirl

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