Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Share Your Best Post-glutening Remedies


melie

Recommended Posts

melie Apprentice

Hi,

After having two hair raising bouts of D, (10 days one time!) from Gluten exposure, I seem to be getting more sensitive to gluten as time goes on (now one year gluten free!) I have never had such severe reactions and would like to know what people do to get back to normal, bowel wise.

Does anyone else have such long and severe reactions to gluten, especially when it wasn't that severe before?

I took some Immodium tablets yesterday for the latest 3 day D jag, seems to be working so far.

I thought this thread would be a good place to write about what you do to get the gluten out of your system, and intestines happy again, other than of course maintaining a strict gluten free diet.

Thanks,

Melie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flowergirl Rookie

Hi there, three things does the trick for me after a glutening and D

* a teaspoon of slippery elm mixed with water

* aloe vera juice

* peppermint tea

after that I usually sleep it off for about 3 days and take some dandelion root or milk thistle to help the liver so that my BM's can return to normal.

Flowergirl

darlindeb25 Collaborator

I'm sure my answer will be of no help, yet for me, I just let nature do it's job. I find if I take anything, it usually prolongs the agony. Imodium works at the time, yet I will suffer even more so in a few days. I tend to live with my heating pad and just deal with the accident.

I do think it would be wonderful if they could come up with something that could help when glutened.

melie Apprentice

Yeah, the Immodium wore off, and guess what....back to D! So frustrating! I can't believe how long a post-glutening reaction can go on for...is this common?

I seem to recall others saying they suffered for a week after a glutening, I used to be skeptical about that, but no more!!

Melie

NoGluGirl Contributor
Yeah, the Immodium wore off, and guess what....back to D! So frustrating! I can't believe how long a post-glutening reaction can go on for...is this common?

I seem to recall others saying they suffered for a week after a glutening, I used to be skeptical about that, but no more!!

Melie

Dear Melie,

I think this is common. I am more sensitive to it now that before going gluten free. My reaction is very violent. It includes my bowels, but actually affects my upper tract worse. I break out in a sweat, then get terribly nauseated, need to have a bowel movement, my stomach swells and cramps, and I begin shaking. Sometimes my hands even go numb and/or tingle! I have to make sure to swallow my promethazine before the dry heaves that make it feel like my insides are emploding start. Then, I get really drowsy and sleep. I am usually really fatigued for a couple of days afterward, too.

Sincerely,

NoGluGirl

confused Community Regular
Dear Melie,

I think this is common. I am more sensitive to it now that before going gluten free. My reaction is very violent. It includes my bowels, but actually affects my upper tract worse. I break out in a sweat, then get terribly nauseated, need to have a bowel movement, my stomach swells and cramps, and I begin shaking. Sometimes my hands even go numb and/or tingle! I have to make sure to swallow my promethazine before the dry heaves that make it feel like my insides are emploding start. Then, I get really drowsy and sleep. I am usually really fatigued for a couple of days afterward, too.

Sincerely,

NoGluGirl

That is me to a tee, and i hate it. The other night it happened and then i let my anxiety kick in, it took me about an hour to calm myself down. My poor family just looks at me like im odd, but they have learned to let me deal with it all on my own, when they try to calm me down, it is worse. Im still recovering from friday, every day is a little better but not much. Or maybe it was cause i licked the back of an envelope last night. I was so mad at myself for that lol

paula

JNBunnie1 Community Regular

You can get glutened from envelopes?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
You can get glutened from envelopes?

I don't know if this is one of the old gluten tales, and I have never seen the ingredients in envelope glue.....but it is not recommended.

KAG Rookie

I get serious gas and constipation from gluten. I also don't tolerate many carbohydrates or legumes either very well. I just recently learned that when you eat something that causes an alergic reaction, you can have inflamation in the intestines and that can cause constipation. Anyway, to get myself back on track I eat the following chicken soup recipe that I got from Jordan Rubin's book about healing your digestive disorders. I eat only this soup for a few days to calm the inflamation in my intestines and then for the next few days I add spinach, zuccini, turnip greens (frozen from a bag), etc. to the soup and I'm back to normal(?).

(I don't use the chicken feet, or the structured water concentrate) Also - when I make this soup (which is just about every other week) I freeze individual portions so if I need any I can just defrost single servings. What's important is to make sure you cook this soup for at least 12 hours.

1 medium whole chicken

JNBunnie1 Community Regular

Huh. And I thought I was paranoid before....... Good thing they make sticky stamps.

NoGluGirl Contributor

Dear Paula,

Yep, that is like with me. My parents do not get it. They probably have Celiac too! They just won't admit it. My mother takes Phenergan, Levsin SL, Equate anti-diarrheal liquid (liquid cork I like to call it) and some other pill for her stomach. She refuses to try the diet. She also could not care less if I get glutened because it does not effect her. I am just being a hypochondriac to her.

Dear JNBunnie1,

Nope, you are not paranoid. You know, I never licked the envelopes anyway. I always taped them. They never stuck well. I was safeguarded from that early!

Dear KAG,

Thanks for the recipe! I put it in my gluten free food file. Dr. Ruben seems to know more about health than most people. He actually mentioned Celiac on the show I saw him on! ;) Now here is a guy I think seems to know what is happening!

Sincerely,

NoGluGirl

KAG Rookie

Yes, Jordan Rubin knows a lot about digestive disorders! The only problem is that he uses a lot of barley in his supplements. I wish that he would go completely gluten free! I would spend the extra money on his supplements. I use a few and they are great!

num1habsfan Rising Star

Yes, my symptoms and reactions and sesativities have gone bad, to the point I dont think it could get worse. You can imagine how i felt when I had to eat gluten 5 days for a test...it took me almost 2 weeks to recover. I get sick from breathing in flour/grains, too.

Unfortunately I dont know what can help, the only solution I have for myself is to be paranoid :lol:

~ lisa ~

snowcoveredheart Apprentice

i just drink peppermint tea for the pain and lemon juice with honey to try and help clear out the badness.... and let nature take its course.

Nantzie Collaborator
You can get glutened from envelopes?

I always used to get nauseous, headachy and really anxious and upset when I paid bills. It made sense when we were barely making ends meet, but once we started making enough money to live within our means, I thought I just hated paying bills for some reason.

Once I learned about gluten being a possible ingredient in the adhesive, SO much made sense. :lol:

I'm sure it's not on all of the envelopes, but it's on at least some. There's just no way to check and verify. So it's a better safe than sorry thing.

Nancy

JNBunnie1 Community Regular
Yes, Jordan Rubin knows a lot about digestive disorders! The only problem is that he uses a lot of barley in his supplements. I wish that he would go completely gluten free! I would spend the extra money on his supplements. I use a few and they are great!

I know! I wish he'd go gluten-free too, his book is what helped me make my self-diagnoses when all my doctors were being obtuse. I was taking his probiotic until a few weeks ago when I read the ingredients again after a YEAR of not paying attention, I think I've been glutened twice in that time from his pills, now that I know that. I couldn't figure out those glutenings before. So they're obviously very good quality, but still not worth the risk.

melie Apprentice

On average, how many days after a glutening do you suffer? It used to be less than one day for me, but now on up to a week, I keep thinking it would be washed from my body early on, and the last several days is just the bowels being cranky and irritable because there was gluten in there, an 'overreaction' that they have to recover from.

Insights?

I have come to the depressing conclusion that I am highly likely to be glutened at restaurants and I have to give eating out up, at least for now, because this weeklong misery afterwards is not worth it.

JNBunnie1 Community Regular
On average, how many days after a glutening do you suffer? It used to be less than one day for me, but now on up to a week, I keep thinking it would be washed from my body early on, and the last several days is just the bowels being cranky and irritable because there was gluten in there, an 'overreaction' that they have to recover from.

Insights?

I have come to the depressing conclusion that I am highly likely to be glutened at restaurants and I have to give eating out up, at least for now, because this weeklong misery afterwards is not worth it.

I usually suffer for about two days. The fatigue and brain blurring last a few days longer though. You might try suggesting restaurants that have really nice salad bars, not pizaa restaurants though. I can usually go to Ruby Tuesday's (chain) and they have such a great salad bar that I actually get filled up, and I don't have to worry about anything really being cross contaminated, because the salad bar prep station in the back is separate from where they cook the 'real' food, and usually washed a lot more often too.

NoGluGirl Contributor

Dear KAG,

:( That is a bummer about the barley. It would be nice if Dr. Ruben stopped using it. So many things are off limits because of it! He seems to have his pulse on the right thing, though. I am glad someone does!

Dear num1habsfan,

I know exactly what you mean. The reactions do tend to increase intensity after being used to being gluten free. It is horrible! I am paranoid as well. I am afraid to leave my coffee cup alone, for fear of cross contamination! My mother got toast crumbs on the paper towels! :angry: Now I have to open a whole new roll for myself, and try to keep it safe.

Dear Melie,

I just have to let nature take its course. The promethazine makes me incredibly drowsy. For a couple of days after, I usually feel sluggish and my stomach is irritated. Sometimes a week is how long it takes to get completely out of my system. I have read in some books that you can reduce the suffering by hurrying it out of your system with a laxative. My stomach often cramps when I take these, especially anything with psyllium husk. I never could take that stuff.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Accuracy of testing concerns

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,256
    • Most Online (within 30 mins)
      7,748

    Christie Fassel
    Newest Member
    Christie Fassel
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.