Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This

MyOnlyHope4U

Recommended Posts

MyOnlyHope4U Newbie
MyOnlyHope4U
Posted

Hello,

I am a teenager who is new to celiac disease. I feel soooo much better since going gluten-free, but I feel like I still may be missing something. About once a week I will feel sick and when I look back on what I ate, i find the culpirate or a potentional one. Im fine with the specialty gluten-free items- but the mainstream products seem to be problematic. I have a couple of questions-

* How do I make sure my kitchen is safe w/o cross contamination?

* How should I handle eating out (this is where most of the problems occur)

* How should I handle school and friends?

Thanks Again! We have had to research this all on our own since my dietition is booked until May :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

Hi and Welcome to the board.

When dealing with your friends it can be very emotional, If you have a few close friends who you stick with on a daily basis, try to educate them on what you have and the foods you can no longer eat. If you have been sick for awhile, explain that by no longer eating those foods you will start feeling better and be back to hanging out like the good old days. It might take a few times for people to understand. You may encounter people who will never understand, but brush it off and focus on getting better.

I would try to no eat out until you get the diet down and you are feeling better. Places like Outback, Carrabras, Bone Fish Grill, PF CHangs, Charlie Brown's Steakhouse, and a few others have gluten free menus. I only have experience with Outback since the others are not in my area.

Getting the kitchen gluten free can be tricky especially if you have other family members who still eat wheat/gluten. If you eat toast, a seperate toaster is a must. I would buy your own pasta strainer, maybe a few seperate dishes, cups, etc just for yourself to use. I know this sounds like a lot of work. I would wash my own dishes. Maybe is there a way you can get your own cabinet for your dishes and food. This way all of your things can be in one spot.

I hope this helps you.

If you have any other questions feel free to ask. We will be here to help you. Good Luck!!

Guhlia Rising Star
Guhlia
Posted

Welcome to the forum! Don't forget about the silly little stuff like hand/body lotion, makeup, shampoo, hair mousse, lip gloss/chap stick, old cutting boards, etc... Those are easy places to get glutened in addition to what Amanda said.

Lisa Mentor
Lisa
Posted

Welcome again,

This site is your answers to most if not all of your questions. Any question can be answered here. :)

Wendy - www.wendy.com

Taco Bell - www.tacobell.com

Outback - www.outbacksteakhouse.com

Olive Garden - www.olivegarden.com

Noodles & Co. - www.noodles.com

McDonald's - www.mcdonalds.com (fries, are controversial)

Hard Rock - www.hardrockcafe.com

Don Pablo's - www. donpablos.com

Dairy Queen - www.dairyqueen.com

Chilie's - www.chilis.com

Chic-fil-A - www.chickfila.com

Chevy's Fresh Mex - www.chevy.com

Arby's - www.arbys.com

Check out these sites, maybe this can open up more options for you to hang with your friends and not feel so different. :)

Guhlia Rising Star
Guhlia
Posted

Momma goose, I e-mailed Hard Rock Cafe about a month ago and they told me that they absolutely cannot cater to those choosing a gluten free diet. They were actually kind of rude I thought.

Lisa Mentor
Lisa
Posted
Momma goose, I e-mailed Hard Rock Cafe about a month ago and they told me that they absolutely cannot cater to those choosing a gluten free diet. They were actually kind of rude I thought.

Rude and cannot cater....well the heck with them!

blueeyedmanda Community Regular
blueeyedmanda
Posted
Rude and cannot cater....well the heck with them!

LOL....well, they are just missing out on some great guests!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,650
    • Most Online (within 30 mins)
      7,748
    Alexandersgirl
    Newest Member
    Alexandersgirl
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Medication

      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
    • Julie 911
      Medication

      By Julie 911 · Posted

      Good day! New members here and I have a question about medication. My gastroenterologist made me stop some medication during the gluten challenge beforenthe screening test but I have a little surgery tomorrow and I need to know if I can use tylenol for half a day or if it will give me false results using it.   Thanks 
    • Scott Adams
      Buckwheat

      By Scott Adams · Posted

      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Buckwheat

      By trents · Posted

      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.