Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Guesssss Whatttttt

JerryK

By JerryK
in Coping with Celiac Disease

Recommended Posts

JerryK Community Regular
JerryK
Posted

Thinks she's gluten intolerant also.

My daughters are starting to pay more attention. They are starting to understand why dad steers

clear of the Chinese Food, the Subway Sandwiches and cake. My nearly 18 year old daughter is

showing clear symptoms after a glutenated weekend. My daughter is hard of hearing, and knows sign well. We were at a birthday party this weekend and she was clearly signing what she thought was going to happen (to her) if she ate that big piece of cake....:)

Wife and oldest daughter remain uninterested in the gluten free lifestyle ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
Thinks she's gluten intolerant also.

My daughters are starting to pay more attention. They are starting to understand why dad steers

clear of the Chinese Food, the Subway Sandwiches and cake. My nearly 18 year old daughter is

showing clear symptoms after a glutenated weekend. My daughter is hard of hearing, and knows sign well. We were at a birthday party this weekend and she was clearly signing what she thought was going to happen (to her) if she ate that big piece of cake....:)

Wife and oldest daughter remain uninterested in the gluten free lifestyle ;)

I'm tellin ya....Jerry you're a one man recruiting team.! :P

miles2go Contributor
miles2go
Posted

I am really hoping that explosive D in ASL is something along the lines of spelling out wheat and doing the tummy rub sign.

:)

Glad your daughter's catching onto ya!

Margaret

lonewolf Collaborator
lonewolf
Posted

Good for your daughter! My 15 yo discovered the same thing and is very dedicated to the diet now. So much better to avoid problems than to try to fix them when you're older.

NoGluGirl Contributor
NoGluGirl
Posted

Dear JerryK,

I am not surprised! These things are genetic! It is good she is learning now. The later you find out, the more problems can be caused. That girl is smart!

Sincerely,

NoGluGirl

JerryK Community Regular
JerryK
Posted
  • Author
I am really hoping that explosive D in ASL is something along the lines of spelling out wheat and doing the tummy rub sign.

:)

Glad your daughter's catching onto ya!

Margaret

It's actually more like making a fist with one hand. Your palm goes flat against the bottom of the fist....

and then you make a motion, indicative of a "valve opening". It's quite descriptive for those in the know :lol:

For greater emphasis, you can hold the "valve" open multiple times and with more vigor!

Phyllis28 Apprentice
Phyllis28
Posted

Your daughter is a very smart and sensible girl to be able and willing to take responsibility for her own health.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miles2go Contributor
miles2go
Posted

I learn the coolest things here. Thanks, Jerry!

JNBunnie1 Community Regular
JNBunnie1
Posted

HAHAHAHAHA!!! You know, I think I had a deaf guest make that sign at me at work once. I worked in a hotel. I'm pretty sure it was in reference to one of my coworkers... heh heh heh....

On another note, has anyone noticed how RECENT of a disease this is? I honestly think it's only really been around for about 150 years. Funny how it came along with the advent of commercial processed flours and sugars..... Perhaps theres been some genetic breakdown? I think the Weston A Price foundation has it nailed. Start eating food from 500 years ago and your body will thank you. It's quite a hard process, I'm not even there myself yet purely because of the VOLUME of food I require (I'm one those disgusting skinny people that HAS to eat all the time). But I give this whole caveman diet thing a lot of credit.

Julie-uk-nz Apprentice
Julie-uk-nz
Posted

I think you're right BNBunnie1, check out this acticle

Open Original Shared Link

Nancym Enthusiast
Nancym
Posted
On another note, has anyone noticed how RECENT of a disease this is? I honestly think it's only really been around for about 150 years. Funny how it came along with the advent of commercial processed flours and sugars..... Perhaps theres been some genetic breakdown? I think the Weston A Price foundation has it nailed. Start eating food from 500 years ago and your body will thank you. It's quite a hard process, I'm not even there myself yet purely because of the VOLUME of food I require (I'm one those disgusting skinny people that HAS to eat all the time). But I give this whole caveman diet thing a lot of credit.

No, no. It's been around since antiquity.

A Brief History of the Disease

As far back as 250 A.D., Aretaeus of Cappadocia included detailed descriptions of an unnamed disease in his writings. When describing his patients he referred to them as "koiliakos," which meant "suffering in the bowels." Francis Adams translated these observations from Greek to English for the Sydenham Society of England in 1856. He thus gave sufferers the moniker "celiacs."

I'd say go back to eating food from 10,000 years ago, pre-neolithic times. :) The ancient egyptians were about the first to start suffering from modern diseases that we currently have and they ate a lot of grain.

Wheat is pretty new to the human diet and is becoming a larger and larger component of it.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Julie-uk-nz,

Thanks for the link!

Dear Nancym,

Hey, I read about that too! Heart disease did not exist, nor did obesity until people began cultivating grain! I read about it in "ZonePerfect Meals in Minutes" by Dr. Barry Sears. I found that fascinating! Thanks for the info! That just proves Celiacs have been around for a very long time. I am with Dr. Sears, I do not think we were ever supposed to have eaten grain at all.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.