Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Not Feeling Good Physically Or Emotionally!


Walter S

Recommended Posts

Walter S Explorer

I am feeling awful tonight! All I have been doing is running to the bathroom and I do mean RUNNING! The stomach cramps I have on top of it all are almost unbearable! I am getting very upset and frustrated with this whole thing. I feel bad enough that I maybe should get to a hospital tonight, but honestly I am sick of it!!! I have been to so many doctors, etc. in the past couple of months that I just have run out of steam for dealing with this right now. I realize tha is a ridiculous and counterproductive way to be but it's just the way I feel right now. Also, I am getting more stressed about dealing with work. The worse I feel, the more I think there is no way I can go back to work yet, even though I've been out sick for two months already!!! It may wind up being necessary that I even have to make some kind of a career change, but I just don't want that! I have been doing this job since I got out of college. I am only three courses away from having my principal's license/certification, and I have the job that I want. I am well established in my job and I don't know what else I would do if I had to make a career switch. Oh, how I hate this whole mess I am in. I realize I am probably "preaching to the choir" with that one. I think it's safe to assume that everyone on this site is tired of dealing with illness. Basically, I feel very sick to my stomach and I am very upset emotionally tonight, too. I don't even know what else to say. Words can't really describe how lousy I am feeling.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



luckygfme Rookie

i definately know the feeling. not very helpful, but i do hope you start to feel better sooon.

lonewolf Collaborator

So sorry you're feeling bad. I see on your other thread that you just started the gluten-free diet this month. It takes most people more than 2 weeks to feel significantly better, so you're not alone. Breathe, relax, don't worry about your career right now. I was told to make a career change 11 years ago, but my health has improved so much that I'm healthier now than I was before I got so sick. There's hope for you too.

You might want to try a VERY bland diet - rice, fish, chicken, cooked vegetables, applesauce, bananas, water and herbal tea until your digestive tract settles down.

I hope you start feeling better soon - it really WILL get better.

cyberprof Enthusiast

Walter, I really feel for you.

And I agree with Liz/Lonewolf. Try a really bland diet, chicken, applesauce, bananas, rice.

Take care of yourself and try to relax.

~Laura

Nantzie Collaborator

I wish I had something helpful to offer. I just hope you feel better soon.

:(

Nancy

darlindeb25 Collaborator

Hang in there. It does get better. I think probably at least 80% of us know just how you feel. Don't make any major changes right now in your life. Just keep working on gluten free and give your body a chance to feel better.

Samanthasmomma Apprentice

Try some Chamomile tea, it will help relax you, soothe your stomach and help get some fluids back in you....I know how you feel, Im in the same situation and it gets very frustrating and old!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

I hope you are feeling better today--so sorry you were feeling so lousy yesterday. Any possibility that you had a stomach virus on top of all the other problems?

Hang in there.

sansglutengrl Explorer

Dear WalterS,

I hope that by now you are feeling a little better. I agree with everyone about the bland diet. As soon as you find something that stays in your belly, stick with it! Also, about the whole going back to work and public restroom issue, have you tried any medication to give you a little peace of mind during the day? I've had really good luck with immodium, some people talk about pepto - and noglugirl can tell you about promethazine (a prescription) to help with the nausea/vomitting issue. Maybe if you try some of these things before you go back to work and you see that they work, you won't be so nervous. Also, are you sure that your whole house/menu is gluten free? You could be getting glutened by hidden gluten and not knowing it. Tell us a little about what you're eating/using. The other thing that you might want to try is an elimination diet. It could be the case that you are eating something that is gluten free but that you are also allergic to, which would give you a gluten-like reaction. I know that it's overwhelming and doesn't seem like it will get any better, but it will. Try not to worry about your career until you feel a little better, I know that's not easy, but it will work out for the best.

-sansglutengrl

gfp Enthusiast
I hope you are feeling better today--so sorry you were feeling so lousy yesterday. Any possibility that you had a stomach virus on top of all the other problems?

Hang in there.

I dunno except he could be me when I've been glutened....

Walter .. this sounds so far away right now! IT GETS BETTER....

DO NOT MAKE ANY IMPORTANT LIFE DECISIONS WHEN GLUTENED!

Realising its a reaction and you will get better very soon is perhaps the most helpful thing I can say...

Take some immodium tablets (not liquid which apparently contains gluten) just to give yourself some respite.... get some rest as in sleep and some rest for your intestines....

I know this feeling sucks... you probably can't sleep.... and your worrying about stuff you certainly can't doi anything about right now....

Fiddle-Faddle Community Regular

Walter? You okay?

Walter S Explorer

Hello everybody. I'm feeling a bit better emotionally, but not physically. Can someone explain how to go about following the "elimination diet"? Also, I never realized that liquid immodium has gluten! I just figured it is faster acting becasue it's a liquid! Also, I'm sorry for the long delay in responding/posting. I live in NJ and we had a horrible storm and I spent the last 30 or more hours bailing and pumping water out of my flooding basement! I was still having stomach problems and I didn't get any sleep. What a mess, but what can you do?

Fiddle-Faddle Community Regular

My goodness, Walter, you've been through just about everything except being swallowed by a whale!

The elimination diet is when you eliminate all common causes of stomach distress from your diet, which pretty much leaves you with plain broiled chicken or fish (NO seasonings except maybe salt), chicken broth, broiled plain hamburger (no ketchup yet!), white rice, applesauce, and bananas (someone please corret me if these are incorrect!). Then you add foods ONE AT A TIME, every 3 days or so, starting perhaps with a hardboiled egg, then adding cooked carrots a few days later, etc. Condiments come MUCH later!

It's pretty much how you start a baby on new foods--one at a time!

Now, the difficulty here is, some people actually can't tolerate rice--but they can tolerate other things. And some can't tolerate potatoes, or corn. And if you introduce two new things at once, you won't know which one causes a reaction (if any).

It's a major pain in the butt, but hopefully it will eliminate the current pain in your butt!

Another question comes to mind--what are you drinking? Perhaps you are sensitive to something in your water-supply system? Maybe try distilled water for a a week or so, see if that helps. I can't remember if you were drinking tea or coffee, but you should probably just drink plain water for now, especially with all the D, you might be dehydrated.

I'm tempted to suggest Gatorade, except for the artificial flavors and colors. I remember reading that you could make your own, by adding salt, sugar, and a lemon slice (if you are not sensitive to citrus) to water. Google "Gatorade recipe" and see what comes up.

I bet others will come up with better suggestions, but this at least can help you get started.

gfp Enthusiast
Hello everybody. I'm feeling a bit better emotionally, but not physically. Can someone explain how to go about following the "elimination diet"? Also, I never realized that liquid immodium has gluten! I just figured it is faster acting becasue it's a liquid! Also, I'm sorry for the long delay in responding/posting. I live in NJ and we had a horrible storm and I spent the last 30 or more hours bailing and pumping water out of my flooding basement! I was still having stomach problems and I didn't get any sleep. What a mess, but what can you do?

Walter a big thing works for me is the sub-lingual immodium....

One thing to explain (facts are normal, I'll make clear when its my interpretation and beliefs)

gluten is classed as a exorphin which means it binds to the bodies endorphin receptors

endorphin controls mood

gluten damages the endorphin receptors

immodium binds to the endorphin receptors

immodium supposedly doesn't damage them

I believe a large part of the depression indiced by gluten is actually withdrawal... the receptors are damaged and so the body can't regualte its moods and we feel like crap at the same time so the mood that dominates is .. well feeling like crap... and that extends to about yourself, about life.. etc .

This seems to be how it affects me.... usually you feel crap so the body makes more endorphins... but in our case the receptors are damaged so they are not actually effective. We can sink low but we can't go to the happy extremes... because our whole endorphin release and adsorbtion is outa whack...

This isn't a great help to you right now but as soon as I think I might have been glutened I take 2 sublingual immodium.

Its the fastest route into the body into the blood and hopefully beats the digestion part.

My theory is get the immoium in 1st... keep the endorphin receptors blocked while the gluten passes by...

Its real hard judge exactly how well this works ... but I really think it helps a lot... its a bit inconvenient to be blocked up if it was a false alarm but the earlier the better... I honestly find not having to spend all the time on the loo as a beneficial side effect...

the depression part is way more important to me....

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.