Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Feeling Awfully Down

Walter S

By Walter S
in Coping with Celiac Disease

Recommended Posts

Walter S Explorer
Walter S
Posted

I feel so depressed today! I went back to work yesterday (Tuesday). I woke up feeling lousy. Then, when the work day got into full swing, I was ok in the morning, but after lunch I was feeling terrible. By 2:30 I was unable to go on any longer. I simply could NOT stay awake in front of my class of students. It was more than just being tired. I honestly could not physically go on any longer, had to get class coverage and lay down. It was so ridiculous. I called the doctor at lunch today (because I felt bad this morning also) and I am waiting for a call back tonight. So, I am simply frustrated and down/depressed. I just don't know what else to do anymore?!? I hate this! Still everyday, I get exhausted, weak, and dizzy spells! And of course my stomach acts up at times. I hate depression. I simply hate it and I never seem to be able to make it go away! On top of everything I was observed for my yearly evaluation today by our new principal who I really dislike! I need this stress and depression to stop so badly.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I'm sorry it's so hard Walter. I get that dizziness and complete fatigue, too. The fatigue isn't necessarily from the depression, the body needs lots of energy to heal.

Are you taking anything for depression? I take St. John's Wort, but check for drug interactions if you are on any other prescriptions.

My doctor started me on NT Factor for fatigue. You have to get it through a doctor to get full-stregth. It seems to be working. Google it and see what you think.

Walter S Explorer
Walter S
Posted
  • Author

I am taking lexapro for anxiety and depression, but I guess it's not quite enough right now. I hope the doctor can come up with something to give me for fatigue so I can get some energy. I will look up NT Factor online- thank you for telling me about it. I just couldn't believe how I wore out! I was sitting with my entire class reading in front of me and I could not do anything to keep myself awake no matter how hard I tried! UUUGGGHHH!!!!

LoveBeingATwin Enthusiast
LoveBeingATwin
Posted

~Walter~

I just wanted to say that I am really sorry that you are not having a good day! I don't know if I can be much of any help when it comes to your depression, but I can tell you that stress and not liking your place of work does not help. I was in that situation, and fortuanatley I was able to get out of it. I would leave for work sick to my stomach because I hated it so much.

I am not sure what type of situation your are in, but you might need to consider a different line of work or maybe you just need a break. I would definitley see what the doctor has to say and if they don't get back to you soon, you definitely need to call them back.

In the mean time, I would try and find something that you like to do and go do it. If that is going for a walk, listening to your favorite music, go do it. Try and get yourself out of the rut that your in and you might feel a little better. I wish you the best and I hope the doctor gets you feeling better soon.

WAKE4ME Newbie
WAKE4ME
Posted
:( WALTER SORRY YOUR NOT FEELING WELL, I AM NEW AND I NEVER HEARD OF THIS DISEASE, THEY WERE TREATING ME FOR M.S. WITH CHEMO, COPAXONE, STEROIDS, FOUND OUT I DO NOT HAVE M.S. A LIFE THAT I AM NOT GOING TO SPEND IN A WHEELCHAIR!! :D I HOPE TO BE AS LUCKY AS YOU AND GO BACK TO WORK, EVEN IF IT IS FOR 2-DAYS A WEEK. GOOD LUCK TO YOU B) HOPE YOU ARE FEELING BETTER
ravenwoodglass Mentor
ravenwoodglass
Posted

Walter,

I am so sorry you are going through this. Is there any way you can take a couple weeks more leave of absence? One thing that may help fairly quickly with the fatigue is sublingual B12, you should be able to get it in a drug store. It will help those neurotransmiters a lot which will help with the fog and fatigue.

Also it sounds like you are a teacher. Chalk for the boards is often not gluten free. I just thought I would give you a heads up. I learned it the hard way. I used to wear gloves, kids would look at me funny sometimes but most if you just say "I'm allergic" let it go at that. Unless it is middle school of course. :D

Also you need to keep in mind that there is a withdrawl period for most of us in the early stages. This can be prolonged if you keep accidentally glutening yourself. There is not much that can be done other than getting through it.

On the med issue, double check with your pharmacist that the form of the drug you are taking is for sure gluten-free. Generics can vary the binders and change suddenly, something the name brands don't usually do. In addition for many with celiac antidepressants can be either not effective or even cause the depression to become worse. It of course does not happen to all but it is something you should be aware of. If you should start to feel any self destructive urges make sure you let your doctor know right away. But do not stop taking them suddenly without the doctor direct order. Stopping suddenly can cause seizures and other really nasty stuff.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748
    LG2
    Newest Member
    LG2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.