Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scd Diet


Guest AlabamaGirl

Recommended Posts

Guest AlabamaGirl

Found an older thread with a few doing SCD, and wanted to know if you all are still doing the support group. I thought about starting this when I come back from vacation about the middle of May. Is anyone on this, or has anyone tried it? I'm really interested in your experiences! Hate to waste my time if it's all a hoax. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



EG+FC Apprentice

That's really funny because i was thinking the same thing. I plan on starting it the beginning of May. I was looking at the older threads about SCD but then people just stopped talking about it.

Michi8 Contributor

I just took "Breaking the Vicious Cycle" by Elaine Gottshcall out of the library, and am interested to hear how many others are doing the SCD too. AFAIK, it's not a hoax...I'll be reading through the book before I try the diet though.

Michelle

corinne Apprentice

I've been on a variation of the SCD for 1.5 years. So far so good. I have collagenous colitis not celiac disease (which also responds for many with a gluten free diet). Just gluten free didn't work for me, but the SCD does. I still can't tolerate dairy, nuts and allowed beans yet.

EG+FC Apprentice

Well this diet help with a bloated stomach?

Michi8 Contributor
Well this diet help with a bloated stomach?

It should. The point of the diet is to help the gut properly heal.

Michelle

dlp252 Apprentice
I've been on a variation of the SCD for 1.5 years. So far so good. I have collagenous colitis not celiac disease (which also responds for many with a gluten free diet). Just gluten free didn't work for me, but the SCD does. I still can't tolerate dairy, nuts and allowed beans yet.

Corinne, wow, a year and a half already! You've done so very well!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ReneCox Contributor

I tried this diet for about two weeks minus the homemade yogurt. I too would like to restart it beginning May. It would be great to have a bunch of us do it together...its a very limited diet!

EG+FC Apprentice
I tried this diet for about two weeks minus the homemade yogurt. I too would like to restart it beginning May. It would be great to have a bunch of us do it together...its a very limited diet!

It's true it is a really limited diet but I'm willing to try it because I'm tired of feeling like this. I am always miserable and uncomfortable . At this point I will try anything that will help me. I already set the date that I'm going to start May 5th Yay!!!.....lol

But I have a question, I love cheese and there over 200 types of cheeses how do I know if a certain type is legal? the legal list only list a few cheeses. the one that I am asking about is Taleggio cheese

Guest AlabamaGirl
But I have a question, I love cheese and there over 200 types of cheeses how do I know if a certain type is legal? the legal list only list a few cheeses. the one that I am asking about is Taleggio cheese

I found a yahoo group recently where you could post questions and receive answers regarding SCD. I think the pecanbread.com website links to it. Maybe someone on there knows. From looking at the legal/illegal list, it seems like all cultured cheeses are safe, but I'm not completely sure about that.

corinne Apprentice

I wondered for a while if I needed to still stay on the SCD. Well, I went on a ski trip to Tahoe with a friend 2 months ago and I decided to go off the diet while on the trip because it would be much easier. I got sick which was not fun while on the mountain (I did see a lot of nice trees though :rolleyes: ). It took 6 weeks for the D to settle back down. That's been motivational for me to behave myself and stick with it.

Guest AlabamaGirl
That's been motivational for me to behave myself and stick with it.

ha! Know how ya feel. Corinne, what stage of SCD on you on? I've found a table that helps with introducing foods, but it doesn't include dairy. Do you start out with the yogurt & cheeses??? I know you have to proceed slowly, but curious how you have handled all that.

I am also going to start SCD soon. There are just too many foods that I react to, so I'd love to see if doing this diet can help/heal me. I haven't set a start date yet; we are leaving tomorrow for a couple of weeks vacation. I want to do this right, so I thought I'd order my yogurt maker while I was out of town so it would be home waiting on me when I came back. Please post if you are interested in starting another (newer) support thread. Corinne, we could really use your expertise!

corinne Apprentice

I actually don't eat dairy or nuts. I know that dairy is considered an important component of the diet, but so far I react very strongly to even a teaspoon of yoghurt. A number of people suggest introducing dairy only when you have been free of D for some time, at the minimum a month.

I was up to stage 4 (on the pecanbread website), but going off the diet has thrown my insides into a spin. I finally decided to go back to stage 1 three weeks ago and I've been free of D now for 2.5 weeks. Because I have colitis, not celiac, I probably progress much slower than average and have more ups and downs. I introduce foods one at a time and no more than one every 4-7 days so I can be sure that a new food is ok.

Things are looking up though. I came down with the stomach flu this weekend (I teach and 3 of my students came to class sick last week - arrghhh) and I didn't get D. I had cramps, nausea and a fever, but it looks like that's it.

Mutual support would be great if others are planning to try the diet. It is stricter than most diets, doesn't work for everyone, but it's worth it to feel well if it does work for you.

WakeupNurse Newbie

I got very sick a back in January with intestinal troubles. Lost about 40 pounds within a month, constant D, nausea, couldn't eat or drink, had to have weekly IV's. Doctors said they thought it was celiac (negative blood tests) but I didn't get any better on gluten free diet. Had to go on medical leave because I was so weak...wound up in hospital for 6 days, was so dehydrated I couldn't walk and every system in my body was starting to suffer.

Wound up going on SCD after I got out of the hospital and all of my symptoms went away. really quickly. They're still pretty sure it's celiac, but because it got so out of hand I have basically developed secondary allergies/malabsorption issues. As long as I stay on it I'm pretty good, as soon as I go off of it, I'm feelin it.

The planning and not being able to eat out on SCD sucks but for me it means my life. I'm still working on finding some things that seem to upset my balance lately that I might be missing but at least I feel like I'm starting to live again. A lot of my coworkers have made the comments "i don't think I could do that....that's way too much work...you don't get to eat any real food..." but I think people fail to realize how healthy of a diet it really is and you'll do anything you have to when you've been where I was.

EG+FC Apprentice

I'm glad to know that the SCD Diet has helped you a lot.

I was wonder if you have to have severe D because in every story I read people talking about have D. See I don't have D, I actually have the complete opposite. Is this Diet also good for people with no D?

Michi8 Contributor
I'm glad to know that the SCD Diet has helped you a lot.

I was wonder if you have to have severe D because in every story I read people talking about have D. See I don't have D, I actually have the complete opposite. Is this Diet also good for people with no D?

Yes, it's supposed to be. I really recommend reading Breaking the Vicious Cycle by Elaine Gottshcall. Or at least checking out her website: Open Original Shared Link

Michelle

EG+FC Apprentice

I have the book and have read it from front to back and I checked out the website and other related website. All the storys are about people have D. I haven't started the diet yet but I guess I'll see in a a week when I start it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,320
    • Most Online (within 30 mins)
      7,748

    Angela Bingham
    Newest Member
    Angela Bingham
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.