New To Forum- Questions!

[Nathan1097]

Long story short...

I have had bad intestinal infections for years, which have increased over the last year. They diagnosed me with "ileitus" as when I have these flareups, my white blood cell count goes way up. The pain has been enough to "win" me morphine in the ER. I was hospitalized for five days while they ran tests. They came up with nothing. I have had CT scans, xrays, colonoscopies, fecal testing.... everything. The GI dr. I saw- head of the department and the big university here- said he had no idea!

So my bf suggested I cut out gluten. So far, so good, although I did have a small bout of my "problem" (without the sweating and fainting and vommiting, but with diarhea and ache) about a month ago, but it was very mild compared to usual.

Now, my issue is that no matter what I do, I feel faint, tired, and have diarrhea most of the time. I came accross this forum from google where I found this old page of posts: Open Original Shared Link

My bp was 92/55 yesterday at the dr's. She didn't seem to think anything of it, but it normally runs 110/80 or so.

Now mind you- I'd rather have diarhea than what feels like a blockage with the horrible pain and vommiting all night that goes with my "episodes".... But the faint thing is a little embarassing. It feels a bit like I'm pregnant, but I know I am not. (Just had a test at the ER on Tuesday, plus I'm on B/C.)

I am not losing weight that I know of. When I was exercising more I got to be borderline too thin, but now I've just reached a plateau.

Looking forward to reading.

Jennie

[little d]

Hi sorry to here everything that you are going through. I have never heard of fainting with celiac disease but ok the rest of you symptoms sound like that you can be intolerant to Gluten. You just have to remember the Gluten and wheat is in everything, even your shampoo I was reading my Conditioner and it has wheat somethingorther in it, keep looking on the net to get a list of things that are not safe. All my test came negative but I know that i have some kind of intolarance.

Donna from tx

[mommida]

Are you anemic? All your symptoms and the fainting can be from low blood iron.

L.

[dionnek]

I too had the "spells" you are talking about for many years (at least 20) prior to finally being dx with celiac last year. I would, out of the blue, start getting dizzy and nauseas and sweating and then either pass out or start vomitting and have D and vomitting for about 12 hours. When I was a kid they thought it was b/c I was anemic that I was passing out, but even 3 iron pills a day didn't do any good (in retrospect, that would have been b/c I had celiac and nothing was being absorbed!). Since going gluten-free, I have not had any of these spells except for one time recently, and that was probably related to something else (I'm 7 months pregnant).