Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results

JodiC

Recommended Posts

JodiC Apprentice
JodiC
Posted

I was curious what these test results mean

IGG antibody negative

(tissue transglutaminase) IGA antibody negative

gliadin antibody positive (barely)

When these were done I hadn't even heard about celiac so I was eating gluten (lots of it) everyday.

Shouldn't the test results be alot higher? Since then all bloodwork has been negative. I stupidly did a gluten challenge and the dr didn't even retest the bloodwork, only did a endo. Results on the endo were and always have been suggestive of celiac but says could also be other things causing the villius atrophy. I am so confused. The fact that a strict gluten free diet has produced no change in my health is unnerving, and makes me suspicious. Also, is it possible to have the DQ8 gene and not active celiac? Thanks for any help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nora-n Rookie
nora-n
Posted

You have villous atrophy and DQ8 and symptoms and a positive blood test?

It is quite rare for other things causing villous atrophy, but in small children, casein allergy is known to cause flattening of the villy in some cases. Also, infection with giardia can temporarily cause a little damage to the villi.

I think it is highly unlikely that you do not have celiac.

Some celiacs do not get better. The villi do not grow out. Also, there are some celiacs that react to casein the same way as to gluten, and get villi damage from it, according to a new finnish study.

(=try to totally avoid all milk products for some months)

Have you been truly gluten-free? Avoiding possibe hidden gluten like shampoos and lipsticks and moisturizers and dog food and bird feed and self-copying paper and paper plates and paper cups? I even react to citric acid and MSG.

nora

confused Community Regular
confused
Posted
You have villous atrophy and DQ8 and symptoms and a positive blood test?

It is quite rare for other things causing villous atrophy, but in small children, casein allergy is known to cause flattening of the villy in some cases. Also, infection with giardia can temporarily cause a little damage to the villi.

I think it is highly unlikely that you do not have celiac.

Some celiacs do not get better. The villi do not grow out. Also, there are some celiacs that react to casein the same way as to gluten, and get villi damage from it, according to a new finnish study.

(=try to totally avoid all milk products for some months)

Have you been truly gluten-free? Avoiding possibe hidden gluten like shampoos and lipsticks and moisturizers and dog food and bird feed and self-copying paper and paper plates and paper cups? I even react to citric acid and MSG.

nora

I never knew paper plates and cups are not gluten free. Does anyone know which ones are safe. We use them all the time, i never thought to look to see if they were safe. Im wondering if that is what got me sick the other day.

paula

chrissy Collaborator
chrissy
Posted

jodi---you need to have a total IgA serum test done---if you happen to be IgA deficient, those test results would mean nothing. if the gluten free diet is not helping your symptoms, i think maybe it would be a good idea to contiue to investigate other things that might be causing your symptoms. some people get celiac damage that does not heal, but they are in the minority, most people will heal on a gluten free diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,739
    • Most Online (within 30 mins)
      7,748
    gexewib
    Newest Member
    gexewib
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Feeling of Phlegm and thickness in throat

      By nanny marley · Posted

      Has anyone had any feeling in the throat like Phlegm , thick throat feeling after eating gluten ? Just wondering if this could be a symptom ?
    • nanny marley
      Feeling of phlegm and thickness in throat

      By nanny marley · Posted

      Has anyone had any feeling in the throat like plemb, thick throat feeling after eating gluten ? Just wondering if this could be a symptom ?
    • knitty kitty
      Still unsure.....

      By knitty kitty · Posted

      If you're more comfortable starting slow, that's fine, but do increase your dose to 500 mg per day as quickly as possible.  The World Health Organization recommends 500 mg thiamine HCl per day when deficiency is suspected.  Dr. Lonsdale had researched high dose thiamine for decades, and he has used higher doses, 1 to 3 grams in some cases.   Like I explained above, it's at that 500 mg level or higher that passive diffusion happens and thiamine can get into cells.  Inside the cells, thiamine turns the mitochondria back on.  Mitochondria produce energy the cells use to function.  I had been taking a multivitamin containing thiamine HCl regularly and still had become deficient.  Malabsorption of celiac disease really affects vitamin absorption.  I bought a bottle of thiamine HCl.  I was skeptical, too. I thought it couldn't be that easy.  I took 500 mg all at once.  I had improvement within minutes.  I couldn't believe the sensation of energy spreading to all parts of my body.  My brain felt like it was lifted out of a sub-sub-basement by an elevator and lights were coming on, floor by floor, of a skyscraper.  It was mental improvement, mental clarity.  Thiamine is needed for nerves to transmit electrical impulses, so the more nerves transmitting electrical impulses, the more my brain started working better.  The better my brain started working, the better I felt physically.  My muscles had more energy.  I wanted to get up and do stuff.   P.S. Questions are welcome.  "there's no poverty like ignorance, no wealth like knowledge". Keep learning!
    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      Thanks! I think I'll start slow. See what happens. Should I notice the thiamine working almost straight away if I'm really deficient? What kinda of difference did you notice? More mental? Of also physical in the sense of more energy?    Sorry for all the questions! 
    • knitty kitty
      Still unsure.....

      By knitty kitty · Posted

      Absolutely no danger of overdosing on the stuff.  Thiamine is nontoxic, and safe.  I had gotten to 1000 mg of Thiamine HCl a day at one point.   Do continue taking the multivitamin with the other B vitamins.  You may want to add a magnesium supplement because magnesium and thiamine make enzymes together.  I like Magnesium l-Threonate (Neuro-Mag by life extension).  You may want to add a B Complex in addition to the multivitamin (take them at different times).  All the B vitamins are water soluble.   With Thiamine HCl, there's a "magic moment" about 500 mg, where sufficient thiamine can get into the cells by passive diffusion, and the difference is amazing.  In thiamine insufficiency, the thiamine transporters (special gates into the cell) shut down.  Thiamine cannot get into the cells until there's a higher concentration outside of the cell.  Once that happens, the  thiamine can get through and go to work inside the cells.   If you're brave, start with 300 mg at one meal and 200 mg at the next meal.  Increase as you feel comfortable.  You may want to stay at one amount for a few days before increasing again.  Just keep adding another 100 mg as long as you keep feeling improvement.  If you feel uncomfortable, skip the next dose.  Thiamine HCL is water soluble and excess is easily excreted.  Don't take thiamine close to bedtime because you may feel too energized to sleep.   Thiamine HCl may feel like riding in the back of a pick up truck on a gravel road.  Benfotiamine feels like you're in a chauffeur driven Rolls Royce.  TTFD feels like you're driving a Lamborghini.  You'll get there no matter what kind of thiamine is taking you there.  Just keep taking it.  The health improvements can be very subtle, but you'll notice in the long run.   I started with 500 mg of Thiamine HCl, to see what would happen and had amazing improvement within an hour.  I took 300 mg with each of two meals and 100 mg with snacks.  I eventually added in Benfotiamine (250 mg  a couple of times a day) and reduced the thiamine HCl.  Later I added in TTFD (50 mg) several times a day.  Just experiment and see what feels right for you. Everyone is different and has a different level of deficiency.   I kept having additional improvement with each type of thiamine.  I've taken thiamine for almost fifteen years now.  I still take all three kinds on maintenance doses.  You have to experiment and see which ones work best for you in which combination.   I'm right here if you need anything.   You'll be fine.
×
×
  • Create New...