Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms; Have Some And Some Odd Ones


mole

Recommended Posts

mole Newbie

Hi; I'm new here. Found the website through the May1st edition of Women's World magazine (its' my new bible lol). I read some of the symptoms and I have most of them but I don't have weight loss, more like weight gain and bloating. I have eliminated most corn from my diet, nitrates from my diet (causes my migrains), avoid most foods that make me feel icky but I don't know what to do with the puffiness I have in my face and around my joints. I have an appointment with my doctor for a full physical and lab work to be done because of my family history. I just would like to know what else I can do short of taking water pills to bring the bloating down. I had my gall bladder and 3 inches of my intestines removed due to impacted gall stones (ouch!) :( And I am starting to get mouth sores after eating certain foods now and I am beginning to wonder if eliminating meat all together will help. I would appreciate any advice.

"I am the mole, therefore I dig"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Hi; I'm new here. Found the website through the May1st edition of Women's World magazine (its' my new bible lol). I read some of the symptoms and I have most of them but I don't have weight loss, more like weight gain and bloating. I have eliminated most corn from my diet, nitrates from my diet (causes my migrains), avoid most foods that make me feel icky but I don't know what to do with the puffiness I have in my face and around my joints. I have an appointment with my doctor for a full physical and lab work to be done because of my family history. I just would like to know what else I can do short of taking water pills to bring the bloating down. I had my gall bladder and 3 inches of my intestines removed due to impacted gall stones (ouch!) :( And I am starting to get mouth sores after eating certain foods now and I am beginning to wonder if eliminating meat all together will help. I would appreciate any advice.

"I am the mole, therefore I dig"

Hey mole and glad that you have found this site.

There is an introduction page here on the home site that describes what Celiac Disease is all about, "dig" :) around with that information and see if it fits your symptoms. And many more articles with with lots of information. Check them out. It will help you arm yourself with information for your doctors appointment.

I think that you are wise to get a full physical and lab work done.

NoGluGirl Contributor
Hi; I'm new here. Found the website through the May1st edition of Women's World magazine (its' my new bible lol). I read some of the symptoms and I have most of them but I don't have weight loss, more like weight gain and bloating. I have eliminated most corn from my diet, nitrates from my diet (causes my migrains), avoid most foods that make me feel icky but I don't know what to do with the puffiness I have in my face and around my joints. I have an appointment with my doctor for a full physical and lab work to be done because of my family history. I just would like to know what else I can do short of taking water pills to bring the bloating down. I had my gall bladder and 3 inches of my intestines removed due to impacted gall stones (ouch!) :( And I am starting to get mouth sores after eating certain foods now and I am beginning to wonder if eliminating meat all together will help. I would appreciate any advice.

"I am the mole, therefore I dig"

Dear mole,

I love Women's World too! Gluten caused me to bloat and have difficulty losing weight as well.

I had my gallbladder removed several years ago when I was only 20! :( Guess what is a common symptom of Celiac? Gallbladder disease! My gallbladder was severely inflamed and irritated and nearly ruptured! My doctor said that was not it because nothing showed up in the tests. Those tests are only about 33 percent accurate at best! He even admitted that when I told him. Finally, I saw a surgeon, and thank goodness I did! I have a gift to welcome you to our community.

I have a list that should really help. This is overwhelming. I went through this with myself six months ago. You spend most of your day cooking and cleaning obsessively. The rest you are on the phone with reps from companies trying to find out what is safe. I decided to save you the trouble!

1. There are a number of things in the regular grocery that are safe. Some things are labeled already. Wal-Mart's Great Value brand has numerous things you can eat.

2. For the love of God use Coupons on items you are allowed to eat. People can get them and print them out online even. Call some of the local stores and ask if they accept online coupons.

3. Check the ads online and in the newspaper. You would be surprised how many people do not do this.

4. Some items like rice flour and rice noodles are safe to buy at the Chinese or oriental market. The merchants are more than happy to help you if you cannot read the label.

Now, here is my list of great things to get you started:

Condiments:

Smart Balance Margerine

Crisco Shortening

Crisco Oil

Pompeiian Olive Oil

Great Value soy sauce

Heinz Ketchup

Lea & Perrins Worchestershire Sauce (all Lea & Perrins Products are safe)

Sweet Baby Ray's Barbecue Sauce

Kraft French Fat-Free Salad Dressing

Kraft Thousand Island Fat-Free Salad Dressing

Pace Picante Sauce

Ortega Salsa

All Classico Red and *White sauces

All Jif Peanut Butters including Smooth Sensations

Welch's Grape Jelly

Cool Whip*

Philadelphia Cream Cheese*

Miracle Whip

Daisy Sour Cream (fat-free, low-fat, regular)*

Snack Foods:

Utz Potato Chips (Found at Sam

mouse Enthusiast

If you are going to have the blood test for Celiac, do not stop eating gluten. You can get a false negative, but never a false positive. You should not even cut back on your gluten consumption before the tests as that can also give a false negative.

Good luck and welcome to the forum.

mole Newbie
If you are going to have the blood test for Celiac, do not stop eating gluten. You can get a false negative, but never a false positive. You should not even cut back on your gluten consumption before the tests as that can also give a false negative.

Good luck and welcome to the forum.

thanks everyone for the kind words and to nogluegirl, I work at Wal-Mart and I buy alot of great value brands just because we get a discount that stuff (taste just as good as name brand foods). :D The list will be handy; as I all ready have alot of that stuff now. My phyiscal and lab work is not until June, so in order for the lab work to be accurract when do I need to start eating gluten again for the tests to not have a negative?

NoGluGirl Contributor
thanks everyone for the kind words and to nogluegirl, I work at Wal-Mart and I buy alot of great value brands just because we get a discount that stuff (taste just as good as name brand foods). :D The list will be handy; as I all ready have alot of that stuff now. My phyiscal and lab work is not until June, so in order for the lab work to be accurract when do I need to start eating gluten again for the tests to not have a negative?

Dear mole,

You are very welcome! I love Wallyville! :) My brother used to work there! As far as the gluten goes, if you do the blood test, you do not have a choice but to keep eating it. As mouse said, there will be a false negative if you don't. Enterolab is more accurate from what I hear. I would do that instead. It will detect Celiac genes, and antibodies up to a year after going gluten-free.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    2. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    4. - Scott Adams replied to Aretaeus Cappadocia's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    5. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,192
    • Most Online (within 30 mins)
      7,748

    DenisC
    Newest Member
    DenisC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
    • Scott Adams
      Seven months can still be early in celiac healing, especially if you were mostly asymptomatic to begin with—symptoms like low iron, vitamin D deficiency, nail changes, and hair issues often take much longer to improve because the gut needs time to recover before absorption normalizes. A tTG-IgA of 69 is not “low” in terms of immune activity, and it can take 12–24 months (sometimes longer) for antibodies and the intestinal lining to fully heal, particularly in teens and young adults. Eating gluten again to “test” things isn’t recommended and won’t give you clear answers—it’s far more likely to cause harm than clarity. Weight not changing is also very common in celiac and doesn’t rule anything out. Please know that your frustration and sadness matter; this adjustment is hard, and feeling stuck can really affect mental health. You deserve support, and if you can, reaching out to a GI dietitian or mental health professional familiar with chronic illness could really help you through this phase. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.