Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Now That I Know That I Have To Watch Out For More Than Just Food...


justme

Recommended Posts

justme Enthusiast

I need to find a gluten free shampoo.. unfortunately I have to use head & shoulders.. does anyone know if that is gluten free? or does anyone know of a gluten free alternative? is it possible that the gluten is drying out my scalp?

conditioner.. i'll use anything as long as it's not for thin hair or added body whatever.. I have A LOT of hair and do not need any added body!

face wash.. I am 22 but unfortunately I have the skin of a 13 year old and still get acne.. but everything seems to dry out my face at the same time.. so i need a gluten free face wash that will help with acne..

along with face wash comes face moisturizer..

toothpaste? whats gluten free? right now i use colgate.. well i think its colgate.. pretty much anything anti-cavity and whitening...

so where can I start? where is there a list of mainstream products?

also i guess deoderant?

perfumes aren't an issue right?

wow.. i thought avoiding gluten sucked before.. now it's even worse.. jeeeze..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

For a while I thought I needed shampoo to control dandruff, too. I was severely allergic to the stuff, and it made my hair fall out in bushels.

The real reason for my 'dandruff' was the gluten. I had psoriasis on my scalp, which will produce the same flakes coming off as dandruff. Once I stopped eating gluten, and starting using gluten-free shampoo, conditioner and gel, the itchiness stopped, and the rash is much better.

So, now that you are gluten-free, try a gluten-free shampoo like Dove (that's what I use). It is much healthier for you than those anti-dandruff shampoos, and might be helpful in other ways, too.

Your acne may be gluten related, too. Even at my age (54 next month) I will get 'acne' when I get glutened or eat something like peppers.

I find using Dove or Ivory soap on my face (gluten-free) won't irritate my skin, and I rarely get outbreaks on my face now.

And yes, everything is an issue, including perfume. Make sure your lipstick, chapstick and everything else you put on your skin is gluten-free.

meemers Newbie

Okay you guys are scaring me a little. :( My doctor has only talked about what I digest, not what I use. Of I'm still new to this, maybe he didn't want to over whelm me - I'm in the middle of my fith week and I've only had one melt down this week.....

Ursa Major Collaborator
Okay you guys are scaring me a little. :( My doctor has only talked about what I digest, not what I use. Of I'm still new to this, maybe he didn't want to over whelm me - I'm in the middle of my fith week and I've only had one melt down this week.....

Most doctors don't have a clue about non-food gluten issues (and most of them don't have a clue about nutrition and food, either). So, it doesn't surprise me that he didn't tell you about it.

Nantzie Collaborator

I use Pantene products. They will also label everything. Read the ingredients thoroughly. If there's no gluten listed, it's fine.

There's also a company that specially makes gluten-free shampoos = www.gfsoap.com I LOVE their stuff, but it's always easier to just grab the pantene at walmart, ya know?

Nancy

simplicity66 Explorer

On Feb 16th this year i got a call from my MD...he told me i tested positive for Celiac Disease...then replyed i will see you at your next visit which was 3wks away....i thought ok now what???....i was over-whelmed as well...if it wasnt for this forum i would be lost....i wasnt sent to a dietition nor did my MD provide any information on what i can and cannot eat or a explanation of this disease and what part of my body this has effected.....this list of CANNOT EAT!!!...is a long one just like the list for shampoo and conditioners as well as hair gel and deordrant etc....there is also gluten in putty for wall board....manufactures are hiding gluten everywhere think about it....we not eating it they have to do something with it....NoGlugirl has posted on here a list of products she has researched and uses everyday... its worth the time to scroll through the postings...this way you will have alittle bit of a starter on what to use that wont make you sick...leave nothing to guess check everything out ... i started which my food first then worked through my beauty products...make yourself a start and finish point....its costly but in the long run you will feel better ....best of luck too you and make everday a adventure instead of a stuggle.....there will be alot of bumps in the road....but soon the ride will be very smooth....eat well and stay healthy.

meemers Newbie
Most doctors don't have a clue about non-food gluten issues (and most of them don't have a clue about nutrition and food, either). So, it doesn't surprise me that he didn't tell you about it.

Basically he said that I watch everything that goes in my mouth. He put me on the Paleo diet due to additional issues. So all grains, dairy, and legumes are out of the picture right now. I have ann appointment on Thursday of this week, I'll ask him about the other products you guys are mentioning. Thanx :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Meemers, just remember, your doc may tell you it doesn't matter what you use on your hair or skin. The doc is wrong. To begin with, anything your hands come in contact with can cause a cross contamination issue. Shampooing and conditioning your hair can gluten you. I find it very difficult to never get a taste of shampoo or conditioner, as you are rinsing, it is running pass your lips. It's best to just learn to use gluten free products for everything. Besides the fact, some of we celiacs are also allergic to gluten on the skin. I get hives or burning when gluten, oats, or soy touch my skin.

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

gfp Enthusiast
wow.. i thought avoiding gluten sucked before.. now it's even worse.. jeeeze..

Its nowhere near so hard.... seriously

Food wouldn't be hard if we could use the same food everyday.... but obviously we'd get bored outa our heads and probably nutritionally miss out...

It might seem a big deal but its not the same, using the same shampoo or soap isn't like eating the same thing everyday...

The hardest thing is using "other peoples soaps" etc. like resto restrooms... however for this I just (unless its labelled as containing gluten) use it and try and make sure not to get it under my nails etc and then make sure I really really rinse and use a paper towel or 10 to make sure.... its not 100% but neither is eating out ....

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

Amen....

meemers Newbie
Meemers, just remember, your doc may tell you it doesn't matter what you use on your hair or skin. The doc is wrong. To begin with, anything your hands come in contact with can cause a cross contamination issue. Shampooing and conditioning your hair can gluten you. I find it very difficult to never get a taste of shampoo or conditioner, as you are rinsing, it is running pass your lips. It's best to just learn to use gluten free products for everything. Besides the fact, some of we celiacs are also allergic to gluten on the skin. I get hives or burning when gluten, oats, or soy touch my skin.

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

Wow. I never thought about that, but you're right, just like a two year old everythng eventually ends up in our mouths......A guy I work with sent me this link yesterday, seems that there are quite a few us at work with celiac, so I've been nosing around this forum since last night and have a learned a lot ya'll already. Thanx

meemers Newbie
Wow. I never thought about that, but you're right, just like a two year old everythng eventually ends up in our mouths......A guy I work with sent me this link yesterday, seems that there are quite a few us at work with celiac, so I've been nosing around this forum since last night and have a learned a lot ya'll already. Thanx

Well, after all of this "talk" I did some checking it looks like my hair products, toothpaste, and soap are fine. But the skin care system I use on my face has gluten. Never thought to ask myself (I'm the sales consultant) if the products had gluten in it....go figure. We have other products that are gluten free, but none of the face washes seem to be. Sent the company an email on that, we'll see what they say.

Thanks to all of you for widening my gluten vision.......meemers

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748

    Rrenee2990
    Newest Member
    Rrenee2990
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.