Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Now That I Know That I Have To Watch Out For More Than Just Food...

justme

Recommended Posts

justme Enthusiast
justme
Posted

I need to find a gluten free shampoo.. unfortunately I have to use head & shoulders.. does anyone know if that is gluten free? or does anyone know of a gluten free alternative? is it possible that the gluten is drying out my scalp?

conditioner.. i'll use anything as long as it's not for thin hair or added body whatever.. I have A LOT of hair and do not need any added body!

face wash.. I am 22 but unfortunately I have the skin of a 13 year old and still get acne.. but everything seems to dry out my face at the same time.. so i need a gluten free face wash that will help with acne..

along with face wash comes face moisturizer..

toothpaste? whats gluten free? right now i use colgate.. well i think its colgate.. pretty much anything anti-cavity and whitening...

so where can I start? where is there a list of mainstream products?

also i guess deoderant?

perfumes aren't an issue right?

wow.. i thought avoiding gluten sucked before.. now it's even worse.. jeeeze..

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

For a while I thought I needed shampoo to control dandruff, too. I was severely allergic to the stuff, and it made my hair fall out in bushels.

The real reason for my 'dandruff' was the gluten. I had psoriasis on my scalp, which will produce the same flakes coming off as dandruff. Once I stopped eating gluten, and starting using gluten-free shampoo, conditioner and gel, the itchiness stopped, and the rash is much better.

So, now that you are gluten-free, try a gluten-free shampoo like Dove (that's what I use). It is much healthier for you than those anti-dandruff shampoos, and might be helpful in other ways, too.

Your acne may be gluten related, too. Even at my age (54 next month) I will get 'acne' when I get glutened or eat something like peppers.

I find using Dove or Ivory soap on my face (gluten-free) won't irritate my skin, and I rarely get outbreaks on my face now.

And yes, everything is an issue, including perfume. Make sure your lipstick, chapstick and everything else you put on your skin is gluten-free.

meemers Newbie
meemers
Posted

Okay you guys are scaring me a little. :( My doctor has only talked about what I digest, not what I use. Of I'm still new to this, maybe he didn't want to over whelm me - I'm in the middle of my fith week and I've only had one melt down this week.....

Ursa Major Collaborator
Ursa Major
Posted
Okay you guys are scaring me a little. :( My doctor has only talked about what I digest, not what I use. Of I'm still new to this, maybe he didn't want to over whelm me - I'm in the middle of my fith week and I've only had one melt down this week.....

Most doctors don't have a clue about non-food gluten issues (and most of them don't have a clue about nutrition and food, either). So, it doesn't surprise me that he didn't tell you about it.

Nantzie Collaborator
Nantzie
Posted

I use Pantene products. They will also label everything. Read the ingredients thoroughly. If there's no gluten listed, it's fine.

There's also a company that specially makes gluten-free shampoos = www.gfsoap.com I LOVE their stuff, but it's always easier to just grab the pantene at walmart, ya know?

Nancy

simplicity66 Explorer
simplicity66
Posted

On Feb 16th this year i got a call from my MD...he told me i tested positive for Celiac Disease...then replyed i will see you at your next visit which was 3wks away....i thought ok now what???....i was over-whelmed as well...if it wasnt for this forum i would be lost....i wasnt sent to a dietition nor did my MD provide any information on what i can and cannot eat or a explanation of this disease and what part of my body this has effected.....this list of CANNOT EAT!!!...is a long one just like the list for shampoo and conditioners as well as hair gel and deordrant etc....there is also gluten in putty for wall board....manufactures are hiding gluten everywhere think about it....we not eating it they have to do something with it....NoGlugirl has posted on here a list of products she has researched and uses everyday... its worth the time to scroll through the postings...this way you will have alittle bit of a starter on what to use that wont make you sick...leave nothing to guess check everything out ... i started which my food first then worked through my beauty products...make yourself a start and finish point....its costly but in the long run you will feel better ....best of luck too you and make everday a adventure instead of a stuggle.....there will be alot of bumps in the road....but soon the ride will be very smooth....eat well and stay healthy.

meemers Newbie
meemers
Posted
Most doctors don't have a clue about non-food gluten issues (and most of them don't have a clue about nutrition and food, either). So, it doesn't surprise me that he didn't tell you about it.

Basically he said that I watch everything that goes in my mouth. He put me on the Paleo diet due to additional issues. So all grains, dairy, and legumes are out of the picture right now. I have ann appointment on Thursday of this week, I'll ask him about the other products you guys are mentioning. Thanx :unsure:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

Meemers, just remember, your doc may tell you it doesn't matter what you use on your hair or skin. The doc is wrong. To begin with, anything your hands come in contact with can cause a cross contamination issue. Shampooing and conditioning your hair can gluten you. I find it very difficult to never get a taste of shampoo or conditioner, as you are rinsing, it is running pass your lips. It's best to just learn to use gluten free products for everything. Besides the fact, some of we celiacs are also allergic to gluten on the skin. I get hives or burning when gluten, oats, or soy touch my skin.

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

gfp Enthusiast
gfp
Posted
wow.. i thought avoiding gluten sucked before.. now it's even worse.. jeeeze..

Its nowhere near so hard.... seriously

Food wouldn't be hard if we could use the same food everyday.... but obviously we'd get bored outa our heads and probably nutritionally miss out...

It might seem a big deal but its not the same, using the same shampoo or soap isn't like eating the same thing everyday...

The hardest thing is using "other peoples soaps" etc. like resto restrooms... however for this I just (unless its labelled as containing gluten) use it and try and make sure not to get it under my nails etc and then make sure I really really rinse and use a paper towel or 10 to make sure.... its not 100% but neither is eating out ....

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

Amen....

meemers Newbie
meemers
Posted
Meemers, just remember, your doc may tell you it doesn't matter what you use on your hair or skin. The doc is wrong. To begin with, anything your hands come in contact with can cause a cross contamination issue. Shampooing and conditioning your hair can gluten you. I find it very difficult to never get a taste of shampoo or conditioner, as you are rinsing, it is running pass your lips. It's best to just learn to use gluten free products for everything. Besides the fact, some of we celiacs are also allergic to gluten on the skin. I get hives or burning when gluten, oats, or soy touch my skin.

Take care. Listening to others experiences are much better teacher than talking to someone who has never had an intolerance.

Wow. I never thought about that, but you're right, just like a two year old everythng eventually ends up in our mouths......A guy I work with sent me this link yesterday, seems that there are quite a few us at work with celiac, so I've been nosing around this forum since last night and have a learned a lot ya'll already. Thanx

meemers Newbie
meemers
Posted
Wow. I never thought about that, but you're right, just like a two year old everythng eventually ends up in our mouths......A guy I work with sent me this link yesterday, seems that there are quite a few us at work with celiac, so I've been nosing around this forum since last night and have a learned a lot ya'll already. Thanx

Well, after all of this "talk" I did some checking it looks like my hair products, toothpaste, and soap are fine. But the skin care system I use on my face has gluten. Never thought to ask myself (I'm the sales consultant) if the products had gluten in it....go figure. We have other products that are gluten free, but none of the face washes seem to be. Sent the company an email on that, we'll see what they say.

Thanks to all of you for widening my gluten vision.......meemers

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      3

      New issue

      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      My journey is it gluten or fiber?

      If you haven't noticed a difference yet, bump up your Thiamax. Add in another Thiamax with breakfast and lunch. Increase the NeuroMag as well. You can add in another Benfotiamine, too. Thiamine is safe and nontoxic even in high doses. Taking more is fine. I had to bump mine up several times when first starting. It's a matter of finding what...
    3. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all. Reacting to Casein is not the same as lactose intolerance nor a dairy allergy. Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy....
    4. trents
      - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    5. Scott Adams
      0

      Can Your Gut Microbiome Predict Celiac Disease Years in Advance?

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,101
    • Most Online (within 30 mins)
      7,748
    Steve Olson
    Newest Member
    Steve Olson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      New issue

      By Jmartes71 · Posted

      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor. 
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      If you haven't noticed a difference yet, bump up your Thiamax.  Add in another Thiamax with breakfast and lunch.  Increase the NeuroMag as well.  You can add in another Benfotiamine, too.   Thiamine is safe and nontoxic even in high doses.  Taking more is fine. I had to bump mine up several times when first starting.  It's a matter of finding what works for you.  Everyone is different.   Stick with it.  Some of the health improvements are very subtle and gradual.   Keep going!  You're doing great!
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance nor a dairy allergy.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  When the villi grow back, the villi can resume making lactase again.  I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine.  Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness.  Histamine release is what causes us to wake up in the morning.  Unfortunately, excessive histamine can cause insomnia.  Our bodies can make histamine, but foods we eat contain different amounts of histamine, too.  Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems.   I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, has been most helpful.   The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract.  After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet.  It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables.  I learned to recognize when I had consumed too much histamine from different combinations of foods.  Everyone is different and can tolerate different amounts of histamine in their food.  B Vitamins help us make enzymes that break down histamine.  Vitamin D helps regulate and calm the immune system.  Supplementing with Thiamine helps prevent mast cells from releasing histamine.  Keeping a food-mood-poo'd journal helps identify problematic foods.   I hope you will consider trying the AIP diet.
    • trents
      Insomnia help

      By trents · Posted

      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    • hjayne19
      Insomnia help

      By hjayne19 · Posted

      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.