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Test Results Are In

confused

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confused Community Regular
confused
Posted

Well today I got the results back for my stepson, and all of them came back elevated, but the malabsorption. But he does carry one celiac gene and one gluten gene. So since he does not have malabsorption is that a good thing or bad, or was it cause he was already gluten free for a few weeks prior to testing.

paula

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Jestgar Rising Star
Jestgar
Posted

It means you caught the disease before it did so much damage that he wasn't absorbing food.

confused Community Regular
confused
Posted
  • Author

Is anyone else this subtype

Serologic equivalent: HLA-DQ 2,1 (Subtype 2,6)

Im wondering if i should get him a thing here to talk to other teenagers. Does anyone else have their kids on here.

paula

ravenwoodglass Mentor
ravenwoodglass
Posted

I am glad you now know and can get him feeling better.

Having him come on the board is a great idea. I would not even ask him his screen name so he could feel he has the freedom to ask whatever questions he needs to. Having other kids to talk to could help alot. The more responsible he feels for his diet the better he may comply, if that is even an issue.

NoGluGirl Contributor
NoGluGirl
Posted
Well today I got the results back for my stepson, and all of them came back elevated, but the malabsorption. But he does carry one celiac gene and one gluten gene. So since he does not have malabsorption is that a good thing or bad, or was it cause he was already gluten free for a few weeks prior to testing.

paula

Dear Paula,

I am glad you found out early! Had he waited until later to do the diet, he might have ended up with much worse health issues. It is great he has no malabsorption. That means you got him diagnosed before it was severe. I think it would be a great idea if you could get him to talk to others!

There may be some of his friends who are sick and do not know what to do. This could help people!

Sincerely,

NoGluGirl

confused Community Regular
confused
Posted
  • Author

Thanks everyone. I am happy that we now know. I am now trying to talk my husband into having the gene test done. I want to know if the celiac gene came from him or my ss mom. I am sure it came from the bio mom since the sister has celiac. But i want to be sure for the sake of the rest of the kids. But he is afraid to find out. So we shall see if i can make him do it lol.

Ok this might be a dumb question but i was wondering, ,since there was no malabsorption does that mean his body was absorbing everything that it was supposed to. Or will he now grow and gain weight from being gluten free. He is very skinny and not as tall as his classmates, and it has made him very sad, so i was hoping maybe being gluten free now that he would grow.

paula

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

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      By trents · Posted

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