Confused About Enterolag Results

[lapsy]

Hi everyone!

I'm new to all of this and this is my first post but I've been lurking for a while. I just got my test results from Enterolab and I'm not sure what they mean... Or maybe I do know but I just don't want to face the truth

Would someone please tell me what my resluts mean??? I'd be sooooo gratefull. Please be honest, I can take it

Fecal Antigliadin IgA 23 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 11 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)

Fecal anti-casein (cow

[ravenwoodglass]

Short qnd simple, you need to avoid both gluten and casein.

[Nantzie]

You have one of the genes I have: DQ1, subtype 6. It tends to cause neuro and mood issues a little more. You may have pain or mobility issues (like fibromyalgia), headaches, sleep issues, nightmares, balance issues, irritability, anger, anxiety, depression, etc.

These can be symptoms that other gene types have, but with DQ1, subtype 6, they seem to be more common or more pronounced. These are all things I had no idea could even be connected to gluten (I was just trying to find a way to get rid of my GI issues), but I was happily surprised when all of these other things went away.

My kids both have the other gene you listed (as well as the DQ1, subtype 6), but I'm not too sure how the symptoms might differ. My husband and his family are in denial about the possibility that they may also have gluten problems, even though my husband and his dad both have GI issues.

My husband eats gluten-free at home and often comes home for lunch, so sometimes he'll go a couple weeks without gluten. His energy and mood improves, his bloating goes down, he doesn't seem to have as many GI issues. When he goes back on it, his bloating comes back, he gets irritable, sometimes will get bad dreams and his GI issues come back.

Nancy

[hathor]

You have one of the genes I have: DQ1, subtype 6. It tends to cause neuro and mood issues a little more. You may have pain or mobility issues (like fibromyalgia), headaches, sleep issues, nightmares, balance issues, irritability, anger, anxiety, depression, etc.

Where did you find out this information? I have a subtype 6 and a subtype 5. I don't know that I have any pain, sleep or mood issues (more than anyone else ), but I have always been prone to headaches. I also have a lousy sense of balance and have had bouts of a balance disorder called Mal de Debarquement Syndrome. But I'm dealing with the one by doing yoga and the other seems treatable (for me) with ginkgo (there is no accepted medical treatment -- heck, I had to diagnose the thing for myself & then show the information to my doctor, & he agreed -- why he gets the big bucks I guess -- I mentioned ginkgo, he said not to try, I did anyway & my symptoms of two months went away within a day or two).

[Nantzie]

Really, it's just through being here mostly. I was told when I got my genetic results by someone here that DQ1 tends to have more neuro symptoms as well as the GI. As I've read other people's results and symptoms, it has held true in many cases that there tends to be more cases of neuro with DQ1. I was also told that you tend to be hypersensitive to gluten also. I'm not sure if that is true because I don't see a lot of people talk about that, but I know it is sure true with me.

I had the GI symptoms on a moderate level since I was 17, then they got severe after my first pregnancy at age 31. The neuro symptoms only started when I was 32 and pregnant with my second. It was almost three years before I figured out the gluten connection. The last month or so before I went gluten-free I started to have slurring speech, but by that time I knew what was going on. The speech slurring does come back sometimes when I'm glutened. To the point where a friend of mine called me and she thought I was drunk at 4 in afternoon.

I started having balance issues at 17 when my GI symptoms started. A few months after going gluten-free, I started noticing that it was getting better. It's still there a little bit, but very minimally. If I close my eyes and stand with my feet together I can feel a vague pull back and to the right, but I don't have to change my stance or hold on to something to keep from falling over anymore. So you might see some improvement in that over the next several months.

Nancy

[hathor]

I hope you are right about the balance improving. I have a new, more challenging yoga tape. I've only done it one time & I kept falling over on the balance moves

Often I get a little dizzy when I stand up, something which seems to be getting worse. Did you ever have that?

I know if I am glutened, the most noticeable thing to me is the brain fog.

You might want to try gingko & see if that gives you that last little bit of balance improvement. I think it works by improving capillary blood flow. I ran across the mention of ginkgo as a possibility for helping balance disorders on the web site of some medical school's balance clinic. I don't take it every day, only when I travel to stave off or deal with MdDS (which crops up from boat or plane travel). But maybe I should take it everyday, come to think of it.

Don't take ginkgo, though, if you have any bleeding problems or are taking any blood thinners, though. When I was researching all this, that was the only counterindication I ran across.

I wonder if my daughter inherited this particular gene from me. She is always complaining about her balance.

[Nantzie]

I used to get dizzy standing up every once in a while. Now that you mention it, I can't remember the last time it happened. Hmm.

I'll keep the ginkgo in mind. At this point, my balance is functionally fine, I just know there's that little bit if I do the "test". I'm curious if it will go away completely just by being gluten-free.

Our new neighbors have a boat though. I'll have to get some for when we go to the lake with them. Good to know that it helps with that.

Nancy

[JerryK]

I'm a DQ 3,1 subtype 7,5. I can tell you most certainly that testing doesn't matter that much.

The real test is in what happens when you eat gluten.

I get brain fog, irritability, anxiety, lethargy, aches/pains and then the big D to top things off.

If you stop eating it and your symptoms go away, but return when you start eating gluten again, you have little to gain from testing. Now as I posted earlier today as long as I'm on the wagon, I feel normal..to the point of forgetting about it...until I eat something I shouldn't, which is a strong reminder.

After you are gluten-free for a while, your body will tell you LOUDLY, you shouldn't have eaten that.

[hathor]

Our new neighbors have a boat though. I'll have to get some for when we go to the lake with them. Good to know that it helps with that.

I never had problems until I went on an ocean cruise. (Even so, an earlier cruise caused no problems.) I felt fine onboard. But once I was off I felt like I was on a strongly rocking boat. The symptoms are worse under fluorescent lights and seem to go away in the car. That, in a nutshell, is MdDS. Plus it seems to hit middle-aged white women who have just gone on a cruise and there is no test for it. So many seem to go through either scads of irrelevant tests or are told by their doctors they need to see a therapist because nothing is wrong with them. It can go away in a few hours, a few days, a few weeks, a few months, a few years ... or never. I'm glad I wasn't in the never category; it was driving me nuts. Talk about people thinking you were drunk in the middle of the day. I would go grocery shopping and have to hold on the cart for dear life & be extra careful when I let go to pick something up.

Like I said a few weeks of ginkgo and the problem went away. (The symptoms went away quickly but came back if I stopped the supplement. After a few weeks the symptoms didn't come back.)

A couple times I've felt rocky after long plane flights since then, which cleared up with the gingko. But now I take preventative doses during plane & boat travel and I'm fine. I haven't been willing to go on an ocean cruise again, though. I don't want to be one of those people who get it and it never goes away.

It is interesting to think that gluten may have been the precipitating problem for all this. And a pesky gene or two