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Positive Blood Work


momof2sn

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momof2sn Apprentice

I joined this message board on the 18th of April in dispair. My daugter, 21 mo, had an endoscopy on the 28th of March with a negative biopsy. She had the genetic make-up for celiac. The doctor pointed out that her B-12, folate and iron were low. She was lactose intolerant and her intestines were inflammed. She has also had diarrhea forever. Well, I got on here and basically said "HELP" Because of all of you I was compelled to call the doctor. The next day, she called, the blood work that was ordered for July (we were on a wait and see for my baby) was never done the first time!!!!!!!!! A big OOPS on there part!! We had the blood work done last Tuesday and by Friday I had learned enough and put here on the diet. Well two days later no more diarrhea!!! No, I didn't think I could get so excited about poop!!! Anyways, doc called me yesterday morning and said her blood work was positive!!! They want to do another endoscopy, I said "No" She was shocked I had already put her on the diet and said most moms want a positive biopsy to go with all the symptoms before they try the diet. I said all of this to say "THANK YOU". If I would have not gotten so much information and encourgement from all of you, I probably would still be dealling with diarrhea and not know any different!!

Ya'll are a great group of people and should pat yourself on the backs for helping my little baby get well, for good!!!!!!!!!!!!!!!

Shealey


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blueeyedmanda Community Regular

Glad to hear everything worked out for you. Your daughter will feel much better soon.

Canadian Karen Community Regular

That's wonderful news! You will soon notice some wonderful, positive changes in your child now! She is on the road to health!

Hugs and welcome!

Karen

Lisa Mentor

It wonderful to hear about some good news. I am so happy for you and your daughter!

JennyC Enthusiast

I'm so happy to hear that your daughter is getting better! It's amazing how happy we can get over poop! :lol: I hope your daughter continues to thrive on this diet and that you will be amazed by her progress.

Ursa Major Collaborator

Congratulations, that's wonderful news! Have you put her on supplements for her deficiencies? It takes too long to fix those without supplements.

You can give yourself a pat on the back for doing the right thing for your daughter, you can't rely on doctors to be much help.

momof2sn Apprentice
Congratulations, that's wonderful news! Have you put her on supplements for her deficiencies? It takes too long to fix those without supplements.

You can give yourself a pat on the back for doing the right thing for your daughter, you can't rely on doctors to be much help.

She is only on a multi-vitamin. Should she be on anything else?


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    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
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