Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab


pnltbox27

Recommended Posts

pnltbox27 Contributor

dx in feb by blood test and also upper and lower scope all came back positive for celiac, so i have no problem accepting the fact i have celiac and i am lving the gluten-free life, but my question is do i need to also get tested with enterolab??will that give me a better idea how screwed up my inside are??i see in alot of peoples signatures test levels and results and was just curious.. thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Nope. No need for you. You have the gold standard of celiac tests!

Enterolab is best for those of us who are negative for celiac but nontheless think we're sensitive to gluten. It's also good for someone who's already gluten-free and isn't willing to go back on gluten for testing.

Nantzie Collaborator

Nope. Enterolab is generally used when someone has negative or inconclusive tests, but still responds to the gluten-free diet as if he has celiac. A lot of people get enterolab to make sure they're barking up the right tree and it's not "all in their head".

Since you have positive tests, I would skip the Enterolab unless you want to do it out of curiousity. Some people like to know what genes they're dealing with, for example. They do a full genetic panel for all the genes associated with gluten problems (not just the celiac genes) for $150.

Nancy

pnltbox27 Contributor

ok thanks ,but one more question what will the full genetic panel tell me??does that cover allergies to dairy , nuts etc....?

CarlaB Enthusiast

No, it will tell you whether you have celiac genes or gluten intolerant genes. Unless you're Asian, you have either celiac or gluten intolerant genes as there's only one gene not considered to be gluten intolerant.

All it would tell you is whether you had one or two celiac genes. A few people have celiac with gluten intolerant genes, but MOST celiacs have a celiac gene.

The best test for other foods is an elimination diet.

Nantzie Collaborator

The genetic test will tell you if you have one celiac gene and one gluten intolerant gene, or two celiac genes, or two gluten intolerant genes. Two gluten intolerant genes aren't likely because you tested so strongly positive, but it's still possible. This is done by a cheek swab.

The rest of what Enterolab does is via stool testing - You can actually order individual tests, so if you're concerned that there might be another food intolerance going on, you can do that. They have individual tests for:

Casein (dairy) - $99

Egg - $99

Yeast - $99

Soy - $99

Gluten - $99

Open Original Shared Link

These are all intolerances and not the same as an allergy. If you go to an allergist they can identify any true allergies, such as nuts. I've never been, so maybe someone else can give you more info on how all that works.

Nancy

Nantzie Collaborator

Hi Carla! Sorry 'bout that echo (echo.. echo.. echo...) :ph34r:

;)

Nancy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pnltbox27 Contributor

thanks for the info. and the quick response

ENF Enthusiast

I had all of the Enterolab tests (I think), even though I was previously diagnosed with Celiac by endoscope and blood tests. Enterolab found two Celiac genes.

According to the results I have soy and casein antibodies, also. I do not know if they mean anything, but I avoid dairy completely, and soy as much as possible.

There is a lab run by a diffrent company, which Dr. Peter Green recommends in some circumstances, that does DNA testing. I cannot remember the name, but it's been mentioned on this forum.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      3

      New issue

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      My journey is it gluten or fiber?

    3. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

    4. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,101
    • Most Online (within 30 mins)
      7,748

    Steve Olson
    Newest Member
    Steve Olson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor. 
    • knitty kitty
      If you haven't noticed a difference yet, bump up your Thiamax.  Add in another Thiamax with breakfast and lunch.  Increase the NeuroMag as well.  You can add in another Benfotiamine, too.   Thiamine is safe and nontoxic even in high doses.  Taking more is fine. I had to bump mine up several times when first starting.  It's a matter of finding what works for you.  Everyone is different.   Stick with it.  Some of the health improvements are very subtle and gradual.   Keep going!  You're doing great!
    • knitty kitty
      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance nor a dairy allergy.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  When the villi grow back, the villi can resume making lactase again.  I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine.  Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness.  Histamine release is what causes us to wake up in the morning.  Unfortunately, excessive histamine can cause insomnia.  Our bodies can make histamine, but foods we eat contain different amounts of histamine, too.  Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems.   I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, has been most helpful.   The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract.  After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet.  It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables.  I learned to recognize when I had consumed too much histamine from different combinations of foods.  Everyone is different and can tolerate different amounts of histamine in their food.  B Vitamins help us make enzymes that break down histamine.  Vitamin D helps regulate and calm the immune system.  Supplementing with Thiamine helps prevent mast cells from releasing histamine.  Keeping a food-mood-poo'd journal helps identify problematic foods.   I hope you will consider trying the AIP diet.
    • trents
      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    • hjayne19
      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.