Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Interesting Article In The New Scott Free Issue


jerseygrl

Recommended Posts

jerseygrl Explorer

There is an article about a young woman who has just been dx'd with celiac disease. Now, instead of the flirtatious girl that she once was, she feels

extremely inhibited socially. She worries about getting glutened by kissing someone! In fact, she has been known to carry a new toothbrush

and toothpaste to any party in case she meets someone she's attracted to.. Now, there are a whole lot of "issues" I could comment

on regarding this, but for now, I am curious about this one aspect -- I dont have celiac, but my young DD does --

is it common to have to worry about playing "tonsil-hockey" with someone (of course, she's not dating till she's 30, heh heh!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



snapple Apprentice

I don't know about everyone else, but I do worry about kissing those that eat gluten. I have been known to be so strict about others lips touching mine, that my husband started comlaining a lot (he wasn't getting his daily alottment of kisses :P ) . I have toned it down some, but yes, it is something I really am careful with. Usually if it has been a few hours or he has brushed his teeth, than we can kiss freely. other than that, we usually stop and think before kissing ensues. Spontaneous is no longer part of our vocab :lol:

Kate

jerseygrl Explorer

Wow, this concern just never occured to me. But then again, there was the girl who died 6 months or so ago by kissing her boyfriend

after he ate peanuts. She was allergic, and I guess he just didnt think about it...... so sad.

Nantzie Collaborator

Yep. My husband doesn't kiss me if he's had gluten. He has to brush his teeth first. Or if several hours have gone by, it seems to be okay.

Just like the rest of the celiac life, the boys who really care about her will be more than willing to do what they need to do to keep her safe and healthy. It will probably weed out a lot of jerks. ;)

My daughter also is going to have to deal with this when she dates. Although my husband assures me that we're moving to an island, patrolled by boyfriend-eating sharks. :lol: I'm pretty sure he's kidding. :unsure:

:D

Nancy

jerseygrl Explorer

I don't know how old your daughter is, Nan, but maybe by the time my 6yo learns how to jump the BF-eating sharks,

there will be a cure or a pill ofr celiac disease ;)

Nantzie Collaborator

LOL!

Nancy

blueeyedmanda Community Regular
Wow, this concern just never occured to me. But then again, there was the girl who died 6 months or so ago by kissing her boyfriend

after he ate peanuts. She was allergic, and I guess he just didnt think about it...... so sad.

That is sad, it probably was the last thing on his mind.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kyalesyin Apprentice

We've had problems with kissing a few times here....

We know when I've had gluten and not gotten rid of it- my wife gets rash around her mouth. I find that eating cheese works well- seems to pick up any clinging gluten and get rid of it very effectively.

jerseygrl Explorer

Oddly, my DD never has stomach discomfort when glutened -- she just gets terribly aggitated and really "wigs out" neurologically.

That should make for an interesting dating scenerio!! :lol::blink:

mandasmom Rookie

My husband is really allergic to shell fish--I sent him to the hospital on our honeymoon bacuse I had eaten lobster and then kissed him!!!! We are very careful about kissing....lots of toothbrushes in our house!!!! But i have given up my seafood..just to be sure!!

sfm Apprentice
There is an article about a young woman who has just been dx'd with celiac disease. Now, instead of the flirtatious girl that she once was, she feels

extremely inhibited socially. She worries about getting glutened by kissing someone! In fact, she has been known to carry a new toothbrush

and toothpaste to any party in case she meets someone she's attracted to.. Now, there are a whole lot of "issues" I could comment

on regarding this, but for now, I am curious about this one aspect -- I dont have celiac, but my young DD does --

is it common to have to worry about playing "tonsil-hockey" with someone (of course, she's not dating till she's 30, heh heh!)

I don't always think of things like that - but my boyfriend will not kiss me, after eating gluten, until he has had a chance to rinse his mouth or chew gum for awhile. My children are the same way, and won't drink from my straw or my cup if they've been eating gluten. And it does make sense, if you think about it... I am extremely sensitive to very small amounts of gluten.

Sheryll

zansu Rookie

it does give all new meaning to the phrase "you make me sick!" :o

Karen B. Explorer

When I was first diagnosed, I didn't believe that it could be that sensitive. I was still thinking of it like an allergy (a little bit is okay). My hubby didn't tell me what he was doing but for a few weeks, he tracked which days he had raisin bran for breakfast and which days he had a gluten-free hot cereal. He also called me at work to see if I was having tummy troubles.

After a few weeks he showed me the results and we've been careful since then. Understand that we've been married for over 20 years and I'm not talking about a major lip lock. Our only morning contact was a quick peck on the way out the door and it was enough to make my tummy rumble all day. That was when I started changing my paradigm for Celiac from a dimmer switch (like my MSG allergy) to an on/off switch.

I would almost think that such sensitivity was psychosomatic except that I didn't know he was tracking my answers when I gave them. When he charted it, there wasn't a lot more to say but "You're right, Dear!"

Sneaky man, my husband.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

    2. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    4. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    yooperjb
    Newest Member
    yooperjb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.