Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Did I Do Wrong This Time?!?!?!?


Walter S

Recommended Posts

Walter S Explorer

Hello All. I had another party yesterday. It was a second birthday for my friend's son. I have a lot of friends with young children and many godchildren, so I attend a lot of parties. Well, I thought for sure I had everything planned out to be safe this time. I brought all of my own food (wrapped) and onl ate what I brought. I had a gluten free bagel before the party (I was there very eraly helping set up for the party and picking things up because the boy's mother and I are very close friends and she is going htrough a divorce so I try to help her as much as possible!) So then during the party I had a plain baked chicken cutlet (which I cooked at home) on gluten free bread. I drank decaf tea (black), which I have been drinking right along, and water. The only other thing I had was a handful of blue organic corn chips which I understood to be gluten free as per the literature I received from my nutritionist. I have been having blue corn chips on accassion for a snack or with a sandwich at lunch. The only thing different is that I got a different brand at the supermarket when I was picking up the food for the party. Could that be the problem? The fact that it was a different brand. I was doing ok most of the day, but after most guests had left I was helping to clean up when the diarrhea struck very bad. I was running in and out of the bathroom and just barely making it. Eventually I had to leave without being able to help finish cleaning up. I felt bad about that, but of course I couldn't help it. Basically anytime I eat away from home (even though I bring my own food) I still get sick. It's frustrating and embarassing. I'm not sure what else to do or what I am doing wrong? The only thing I can think of is that the brand of blue corn chips was different and so next time I will take care of that, but is that likely to be the culprit here? I'm just not sure. Thanks in advance for any input you might offer. I know people have said I should give it time becasue it takes months to heal and feel better, but it doesn't seem like a coincidence that everytime I eat away from home that I get sicker than usual. Perhaps it is just a matter of time, but I wonder if I am doing something wrong and not realizing it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wowzer Community Regular

Maybe CC. From maybe shaking someones hand. Also check the ingredients on the bag. I'm sure that has to be so frustrating, especially when you bring your own food.

Teacher1958 Apprentice
Hello All. I had another party yesterday. It was a second birthday for my friend's son. I have a lot of friends with young children and many godchildren, so I attend a lot of parties. Well, I thought for sure I had everything planned out to be safe this time. I brought all of my own food (wrapped) and onl ate what I brought. I had a gluten free bagel before the party (I was there very eraly helping set up for the party and picking things up because the boy's mother and I are very close friends and she is going htrough a divorce so I try to help her as much as possible!) So then during the party I had a plain baked chicken cutlet (which I cooked at home) on gluten free bread. I drank decaf tea (black), which I have been drinking right along, and water. The only other thing I had was a handful of blue organic corn chips which I understood to be gluten free as per the literature I received from my nutritionist. I have been having blue corn chips on accassion for a snack or with a sandwich at lunch. The only thing different is that I got a different brand at the supermarket when I was picking up the food for the party. Could that be the problem? The fact that it was a different brand. I was doing ok most of the day, but after most guests had left I was helping to clean up when the diarrhea struck very bad. I was running in and out of the bathroom and just barely making it. Eventually I had to leave without being able to help finish cleaning up. I felt bad about that, but of course I couldn't help it. Basically anytime I eat away from home (even though I bring my own food) I still get sick. It's frustrating and embarassing. I'm not sure what else to do or what I am doing wrong? The only thing I can think of is that the brand of blue corn chips was different and so next time I will take care of that, but is that likely to be the culprit here? I'm just not sure. Thanks in advance for any input you might offer. I know people have said I should give it time becasue it takes months to heal and feel better, but it doesn't seem like a coincidence that everytime I eat away from home that I get sicker than usual. Perhaps it is just a matter of time, but I wonder if I am doing something wrong and not realizing it.
Teacher1958 Apprentice

Hi,

I'm assuming that you checked the label on the new chips. If not, it could certainly be the chips. I haven't been doing this very long (only a month), but I have found that I have to be very brand specific when I purchase products. For example, I love to eat hummus, and the store where I shop has several varieties. I have been buying the one kind and doing fine, but I wanted a smaller quantity the last time I shopped, so I picked up another brand. I decided to check the label just to make sure it was okay. I was shocked to find that it was made on machinery that processed wheat. I went ahead and checked all of the other brands and flavors and found that the only one that was gluten free was the one I had been buying all along. I am going to just put out a few questions for you to think about:

1) When you heated up the chicken at the party, what did you put the chicken on to heat it up?

2) There were lots of little ones at the party, and you know how thorough (not) small children are about washing their hands. Is there any chance that you might have dried your hands on a towel that had a hidden residue of cake frosting or something like that?

3) Also, check all cups and dishes before you use them. My dishwasher sometimes kicks up crumbs onto cups and dishes, then during the drying cycle, the hot crumbs stick to the dishes. If you're using a dark colored dish, you might not see one.

4) I assume the tea was the same brand you always use.

5) You didn't toast the gluten free bread before you ate it, did you? That's something I didn't even think about until I was ready to eat my toast, and my husband said, "No, don't do it!" Duh. The toaster was filled with wheat crumbs.

This disease is so frustrating. We have to be on our toes every time we open our mouths. Yesterday I just plain lucked out. I decided to try some restaurant food at a Thai restaurant, so I ordered steamed vegetables with tofu. Well, the food arrived, and the tofu had been deep fried. I had already asked the waitress if the tofu would be breaded, and she said 'no.' I ate a bite of the tofu and then panicked!! What if the tofu had been deep fried with other breaded foods??? I gave the tofu to my son and waited for the agony to begin, but it never did. My son reminded me that Thais don't usually bread their food. However, if it had been a Japanese restaurant, I would have been in a world of hurt, because they bread and deep fry their foods very frequently. I was reading Living Gluten-Free for Dummies, and they recommended that we have our own separate colanders and pasta spoons, because the residue of pasta is very difficult to totally remove in the cleaning process.

Oh well, I'm getting long winded again, so I will sign off. I hope you can find out what went wrong. Eating is such a social event, and it's hard to be in situations where we can't partake like other people.

happygirl Collaborator

Walter,

Did you check the ingredients on the chips? Unless you KNOW it is safe, don't eat it.

My two main guesses are:

In cleaning up, helping, etc you might have touched something, ad then touched your mouth.

My hunch though, is that since you are still new to the diet, you haven't healed, so your body isn't properly digesting food yet. So even if you are gluten free, you can still be getting sick.

Pick up some immodiums to keep with you and take whenever you are out/when you start feeling ill.

kbtoyssni Contributor

I would also be suspicious that someone ate something with gluten, then reached into the chip bag and contaminated everything. It's pretty risky eating anything at a party if there are gluten foods around.

JEM123 Newbie

I would also be suspicious that someone ate something with gluten, then reached into the chip bag and contaminated everything. It's pretty risky eating anything at a party if there are gluten foods around.

[/quote

That's my thought too. CC from someone else handling the chips.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Karen B. Explorer

This may be a dumb question, but kids can be enthusiastic. Any of them kiss you on the mouth after eating cake or grab your hand with cake crumbs on theirs?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.