Enterolab Results Are In!

[dally099]

hi, so i finally got my enterolab results this afternoon, little confused by it all though. everything that i thought would be positive was negative so now im starting over again, however the genetic stuff has me a little confused so i would love some clarification from the experts here, thanks:

fecal antigliadin IgA 9 (normal range <10)

fecal antitissue transglutaminase IgA 6 (normal range <10)

quantitive microscopic felcal fat score <300 normal

casein 7 (normal <10)

eggs 5 (normal <10)

soy 6 (normal <10)

diatary yeast 5 (normal <10)

HLA-DQB1 molecular analysis Allele 1-0302

HLA-DQB1 Molecular analysis, Allele 2-0502

Seroligic equivilant: HLA-DQ 3,1 (subtype 8,5)

anyhelp i can get understanding this would be awsome!!

thanks everyone!!

[CarlaB]

You don't have the genes for celiac and you don't have active gluten sensitivity.

What are your symptoms?

[dally099]

You don't have the genes for celiac and you don't have active gluten sensitivity.

What are your symptoms?

hi, on my interpertation that was sent with my results it says that "i have one of the main genes that predisposes to gluten sensitivity and celiac sprue, HLA-DQ2 or HLA-DQ8. i also have a non celiac gene predipsoing to gluten sensitiivity DQ! or DQ3 not subtype 8."

my nightmare started at xmas of 2006 when i started getting D and swelling and hives and constant fatigue, i felt like i had the flu all the time. in jan 2008 i dropped 10lbs. i was 109lbs at 5'4" and went down to 97lbs. i had joint pain, and joint swelling as well, as i had stomach pain all the time, mouth sores and my hands and feet started getting what looked like pseriasis (SP!). i have been gluten and soy free since mid feb, have gained back the 10lbs feel 100% better!! however i know also get a rash on the inside of my knees and elbows that comes and goes as well. i also take pancreatic digestive enzymes now, as well as probiotics and iron. hope this helps thanks!!

[confused]

Which of ur genes is the gene for celiac. Im not sure if i am not looking at them right but i dont see dq2 or dq8.

But from i can can tell from your results, it looks like u dont react to gluten at all or any of the other food intolerances. How long had u been gluten free prior to doing the test.

paula

[dally099]

i talked to the nurse at enterolab, and she said that i have one gene that is a celiac sprue gene, and one gene for gluten sensitivity. she said the fecal antigliadin is very border line at 9. she said that i have probably caught it early, she said a year from now it could be a different story. she recomends that i not eat gluten, ill tell ya i feel a heck of a lot better not eating it. also soy gives me hives so i dont eat it either, she said that i may not produce enough i believe its antigliadin, and this is what sometimes can give people borderline results. arg im just fustrated as this is not as clear cut as i thought that it would be.

[Nancym]

0302 is DQ2, I have that one.

Did the nurse say anything about IgA insufficency? Sometimes people test negative because their body doesn't produce enough IgA. I think there's a blood test that determines whether you do or not.

[dally099]

0302 is DQ2, I have that one.

Did the nurse say anything about IgA insufficency? Sometimes people test negative because their body doesn't produce enough IgA. I think there's a blood test that determines whether you do or not.

thanks thats what i was looking for, she recomended i get my doc to run that test, i will be seeing him soon so i will bring that up with him, does DQ2 mean you have celiacs? she seems to think that i may have caught this early before the reall damage began. she figured that having a baby and a hysterectomy last year may be what the catalist was to set this all off. the other gene she said means i have gluten sensitivity. thanks

[Nancym]

thanks thats what i was looking for, she recomended i get my doc to run that test, i will be seeing him soon so i will bring that up with him, does DQ2 mean you have celiacs? she seems to think that i may have caught this early before the reall damage began. she figured that having a baby and a hysterectomy last year may be what the catalist was to set this all off. the other gene she said means i have gluten sensitivity. thanks

No, it just means that people who have celiacs have one or the other gene, usually. However lots of people without celiac also have the gene. That is if you define celiac as villious atrophy, which is how the medicos currently define it. I think there are more shades of gray though.

Certainly if the diet helps, you've got something going on.

[CarlaB]

does DQ2 mean you have celiacs?

No, about 30% of the general public carry a celiac gene. Sorry, I messed up on the gene analysis. There is only one gene that is not gluten sensitive, that is the DQ4, so essentially everyone except Asians have gluten sensitive or celiac genes.

If all your symptoms resolved on the gluten-free diet, that's the best indicator.

If they haven't all resolved, I'd keep looking for what else might be wrong.

[dally099]

me again, from what ive been reading on the net the DQ8 gene seems to be more rare then the DQ2. is this the case on this site? how many people have both the celiac gene and the sensitivity gene and what does this mean to you? thanks for all your input.

[SUZ42]

DQ 3 (8) is a Celiac gene. I'm paraphrasing here, but: It is quite rare. Only abt 9 % of DQ 3 Celiacs carry this gene. It is found in peoples of Southern European/Mediteranean dissent (spelled wrong). I got this info from a couple places, I think EnteroLab was one of them.

Suzanne

[sickofit]

Hi, does it really matter what the tests say? I had one test when I had insurance and a doctor and it came back negative as I had not eaten gluten for weeks prior. I've never been able to get tested since so have just had to read, read, read. I've been sick all my life and am now 60. The gluten-free diet (I've been doing for about 3 years) saved my life but I had to quit working and the internal damage has caused my immune system to go haywire. I get sick from anything I eat if I do not do a rotation diet and eating something once every 4 days is hard! I think we just have to go by how we feel and trial and error. I thought I had candida albicans for years and maybe I did but with lots of probiotics and a special diet for that, no sugar, flour, etc., got that under control. In all my books about candida I did read that some doctors believe it can cause autism, as well as some believe gluten can. Have you tried a special diet for your children?

[dally099]

i have not tried gluten-free for my kids yet, my son was dairy free for a long time as a baby-preschooler, he is just such a fussy eater, i am starting to give him at least some of my cookies and the better tasting stuff. my hubby eats some of it, dosent mind the pasta, desserts, and of course all the sauces i cook are gluten-free. we think autism is genetic and triggered by enviromental issues, my 2 autistic kids were "off" since birth. my hubby is in the military and had chemical exposure right before i concieved both of them, were as my two typical (average normal i guess you could say) he had no chemical exposure. so its something that we are going to look into further as a lot of guys in the military have kids with autism, but we are waiting till he retires, as it will cause some ripples if you know what i mean. i found it interesting that i have the DQ 3(8) gene as im of Italian/Russian decent. pretty cool i guess, (need to find something positive in all this). thanks for all the help!!

[nora-n]

0302 is DQ8 and one of the celiac genes, but the DQ5 is one of the DQ1 types, and there have been several postings here and on the neurotalk gluten-sensitivity forum that the DQ1 can be very sensitive to gluten, more than ordinary celiacs.

I tested negative for DQ2 or 8, (cannot get the actual results here in this country, this was done at the lab of some well-known celiac researchers) and I am sure it is DQ1 because I get neurological symptoms from gluten.

I also react to the tiniest amounts of gluten.

nora