Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Contact Legislators About Celiac Disease


darlindeb25

Recommended Posts

darlindeb25 Collaborator

Subject: [CeliACTIONetwork] Contact legislators about Celiac Disease

The American Celiac Disease Alliance makes this easy. Please take the

time to take action...

<<Disclaimer: Verify this information before applying it to your

situation.>>

Many of you waited a decade or more to FINALLY be diagnosed.

We can't wait a decade for doctors, dietitians, insurance companies,

or legislators to learn about celiac disease.

So far, 8 members of Congress GET IT - and have cosponsored Rep.

Lowey's bill H.Con.Res 70 to help raise awareness about celiac

disease and to urge more federal funding for celiac research.

Rep Arcuri, Michael A. [NY-24] Rep Frank, Barney [MA-

4]

Rep Goode, Virgil H., Jr. [VA-5] Rep Gordon, Bart [TN-

6]

Rep Kuhl, John R. "Randy", Jr. [NY-29] Rep Shays, Christopher [CT-

4]

Rep Udall, Mark [CO-2] Rep Waxman, Henry A. [CA-30]

Its time for the other Representatives get on board, too!

Take a few minutes and call your Representative 1.800.985.8762 and

ask them

to cosponsor H.Con.Res. 70, and urge its passage as soon as

possible.

Go

to:

Open Original Shared Link

to send an email message.

On average, it takes 11 years for an individual to be diagnosed with

celiac disease. No one should have to wait a decade to find out they

have the most common genetic disorder of humankind. Now's the time

to raise awareness and to increase funding for celiac research.

Thank you.

Beth Hillson

President

American Celiac Disease Alliance

www.americanceliac.org


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,069
    • Most Online (within 30 mins)
      7,748

    shyloh
    Newest Member
    shyloh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.