Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anybody Have This

little d

Recommended Posts

little d Enthusiast
little d
Posted

Hi Ya'll

I was just wondering if anybody else has this Keratosis Pilaris is a skin condition herediarty of course. It looks like little pimples with hard little core the cores are hair, sometime can be itchy. I was diagnosed with this when I was 22. I just started to look around the internet for this to see if it might be connected to Celiac. But what I have seen so far say "KP is hereditary, inherited as an autosomal domiant gene...single gene from a parent...geneticllay predetermineind and treatment can be ointments, creams, lotions" Retine A was one cream that was prescribed to me and I totally could not tolerate on my skin. and I can not tollerate hardly any lotions or creams on my skin. I quikly stopped the cream and never went back the Dermatologist after that.

Later

Donna

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Juliebove Rising Star
Juliebove
Posted
Hi Ya'll

I was just wondering if anybody else has this Keratosis Pilaris is a skin condition herediarty of course. It looks like little pimples with hard little core the cores are hair, sometime can be itchy. I was diagnosed with this when I was 22. I just started to look around the internet for this to see if it might be connected to Celiac. But what I have seen so far say "KP is hereditary, inherited as an autosomal domiant gene...single gene from a parent...geneticllay predetermineind and treatment can be ointments, creams, lotions" Retine A was one cream that was prescribed to me and I totally could not tolerate on my skin. and I can not tollerate hardly any lotions or creams on my skin. I quikly stopped the cream and never went back the Dermatologist after that.

Later

Donna

I had it. Don't any more. Mine was related to food allergies. I've read it can be caused by dairy and indeed I had a dairy allergy. Daughter still has it. She too has a dairy allergy and a gluten allergy among other. I've been told by my naturopath that sea salt will make it go away. She sells bars of Himilayan sea salt. She said she used one on the bath and hers went right away.

dionnek Enthusiast
dionnek
Posted

Where do you get this? Not sure if this is what I"ve had for about 15 years (only about 50 dermatalogists couldn't figure it out!), but I have it on the insides of both shins and it is very itchy. Of course I scratch it and it bleeds and scabs, etc. Retin A didn't help (tried that in high school) and I think I've had every kind of cream imaginable and nothing helped. Have you found anything that gets rid of it? I would love any suggestions! I've been told it's eczema, psoraisis, ingrown hair, and many "Don't know" from dermatologists! Has not gone away with a gluten-free diet (been gluten-free for one year now - confirmed celiac last May).

little d Enthusiast
little d
Posted
  • Author

Hi Dionnek

I have this Keratosis Pilaris (little pimpply bumps that have ingrown hair that will come out when they get a little festered) I have had this all my life I don't ever remember a time when I have not had anything. On me they are all over mostly arms (usually they are on the back of the arms, thighs, buttuck area) Not me I have it all over. My sister always thought that is was lack of taking a bath and not washing good enough as kids well little did she know that it was and is something real. When I was 22yrs old I fianlly went to a dermatologist after I had an old boyfriend freek out on me because he wanted to be touchy feely and I did not want him to touch my arms or legs, because I didn't know what it was that I have had all my life, He demanded to know of course he never offered to pay for the bill. The Dermatologist know exactly what it was and also proptly wanted to check my thyroid levels, put me on Retin A which was not good for my skin totally broke out in hives and itched really really bad not a pretty site. I can not use a lot of Lotions especiallly with fragrance in it. I have learned to live and accept that it had unsightly arms and legs at times. At one time I thought I had a small case of DH last summer on my knees, sure did look like the pictures that I saw on the web, but it could have been from the sun lotion that I put on will swimming, with combo of eating Wheat bread sandwiche at that time I had been on gluten-free for 4 months and feeling great. I never went to the doctor to get anything diagnosed. I finallly stopped itching enough to be able to function so i never made a Dr appt. to see what the rash that I had. Yes I was eating gluten-free before I got tested for celiac disease, which made everything come back negative.

Later Donna

little d Enthusiast
little d
Posted
  • Author

Dionnek, sorry I went off on a stupid old boyfriend and did'nt really answer you question. No it has not gone away on a gluten-free diet. It got better but still had it not as bad when I was pregnet with my daughter I drank water like it was going out of style, the one and only thing I think that I craved at that time. My skin did look better, lotions don't help, my guess I that maybe it is connected to staying very hydrated, but I have to force myself to drink water. It is genitic and my daughter has some bumps on her arms and she is getting a little freeked at times because she does not like them. Do I wish that I could have smooth silky skin like everybody els of course, but God made me like this and I have learned to deal with it, am i still embarrased by my arms, sometimes, will I let my husband caress my arms and leg(NO WAY) for me it is irritating for my arms to be caress. I'd rather caress him very ralaxing for me that is. Ok I know a little too personal sorry!

Donna

NWLAX36Mom Rookie
NWLAX36Mom
Posted

My son has had it on his arms and cheeks ever since he was a baby. Once a doctor recommended Eucrin Plus cream in the jar. Don't know if that is something safe for a celiac to use but it does help him if he uses it consistently.

Flor Apprentice
Flor
Posted

I've had it since I was a kid (or a baby) -- just on the back of my arms. it's not itchy for me but as an adolescent I couldn't leave it alone and so it was irritated all the time. My husband has it and our son has had it from birth. Interestingly, I did NOT have it while I was pregnant and that's the only time in my life.

I ignore it -- it's worse in winter and better in summer. I haven't read anything about it being associated with food allergies or celiac disease, but then there's so much we don't know.

A dermotologist gave me some heavy-duty lactic acid lotion for it when I was younger but it didn't seem worth the trouble or expense to keep doing it. It helped a little. The dermo also told me it was genetic.

I'll do some research on this and let you know if I learn anything new.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

My DS had this from early childhood. It went away after he was gluten free for a few months. So did everybody's acne in my family. Oh and the exzema. And of course my DH.

Generic Apprentice
Generic
Posted

My daughter has this and I have had a couple of friends with it as well. I believe it is a vitamin A defincency. I know a couple of people who have asked dermatologists about it and they say they don't know or it's normal. Whatever!

Try taking vitamin A and see what happens. It only returns when my daughter quits taking the vitamin A, same as for 1 of my friends. Fish oil particularly cod liver oil works really well.

The other friend doesn't bother becasue she doen't care, it doesn't bother her.

Yenni Enthusiast
Yenni
Posted

I have had it my whole life. It used to be on my face a little but now I am mostly just red there kinda. Very soft skin otherwise.

But I have it on the back of my arms. I can't feel it much, never had a problem with itching.

I read and was told cremes with AHA and BHA is good for it. You gotta keep that skin out of the sun though when you use that type of creme.

I am not using anything on it when I don't feel it in any ways. I think I have a milder one. But the AHA/BHA stuff can make your skin a bit irritated so I stopped using it.

My brother has this too and also my mom some. It's from her side of the family. I think grandpa had some too...

Going gluten free hasn't made any difference so far.

CarlaB Enthusiast
CarlaB
Posted

I had this on the back of my arms and the sides of my legs/buttocks. It has completely gone away since I've been gluten-free ... so have my rough elbows.

  • 6 years later...
AlwaysLearning Collaborator
AlwaysLearning
Posted

Ingrown hairs of all sorts all over my calves. Definitely worse when I had an influx of gluten into my diet. Definitely better after going gluten free.

It was actually one of the symptoms that helped me figure out that my body was reacting to something I was eating. And my sister confirmed it when she started having similar problems after going gluten free then retoxing to have gluten testing done, suddenly having the same symptoms she had seen me suffer with for years.

I suspect that it may be made worse if gluten is not a steady part of your diet, rather a reaction to a sudden influx as I was probably detoxing and retoxing most of my adult life without realizing it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.