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Celiac & Seizures?

Walter S

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Walter S Explorer
Walter S
Posted

I have been dealing with memory loss and dizzy spells/ brain fog for months now. Also, I have been dealing with exhaustion. But, yesterday I came dangerously close to passing out in my classroom at work. First it felt like the ground was moving under me and tilting me back and forth and side to side. Then I got weaker and dizzier. Then, I statred to not be able to see. I was only able to see a tiny bit of the filing cabinet in front of me. I was trying to grab onto something for support and began to moan and groan. Then I just kind of came out of it without keeling over and hitting the floor. It scared me terribly though. I saw the doctor today and he wants me to get to a neurologist right away to check for seizure disorder. I did have a seizure problem when I was a kid, but it went away and hadn't bothered me since. Has anyone had a similar experience? Is there any connection with Celiac?

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Lisa Mentor
Lisa
Posted

Walter, have you had your blood sugar checked recently?

Walter S Explorer
Walter S
Posted
  • Author

I have had my blood sugar checked and it was okay, but the doctor didn't check it today. He did however bring it uo and said to try to eat 4 times a day to keep the blood sugar up just in case, but that he didn't think it was that.

dionnek Enthusiast
dionnek
Posted

I have that happen a lot (well, luckily it hasn't happened since my celiac dx in the past year). I've had every test and been to 10 doctors - they never could figure it out but it has gone away since I"ve been gluten-free so I wonder if it was something to do with malabsorption? I was anemic when I was younger, so they just chalked it up to that, but my iron has been good the past 5 years or so and I was still having these spells (several times I actually did black out). Let us know if they figure anything out!

missy'smom Collaborator
missy'smom
Posted

What you describe sounds like my fainting problem. I've had it since I was a child. I've been told that it might be related to unstable blood pressure. As a former diabetic(gestational), I would suggest re-checking the blood sugar, things can take a turn suddenly. Good luck with the neuro doc. My sister has seizures and they are nothing like what you describe. She has been to the ER many times and it took them a long time for them to take her seriously. They have run every test on her and she's on meds but her doc recently told her straight up that he has no clue what's going on or why and can do nothing more other than taking her off meds, hospitalizing her and waiting for a seizure to happen. She's increased doses but they're not helping much anymore and he can't increase the dose anymore. I'm pushing her to be tested for Celiac. After talking with her about it for a few months, she certainly has it and I'm positive that the lack of effectiveness in the increased doeses of drugs are from malabsorbtion. We recently figured out what her trigger was and her sezures started some time after that. She never had problems before.

For my fainting problem, I haven't been in the situations that trigger it since going gluten-free so I don't yet know if it has changed. What dionnek said applies to me too except I haven't been tested for much. I don't think I had celiac as a child.

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