Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heads Up On Levaquin


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

I am recoving from a bout with diverticulitis and colitis. I was given a couple of antibiotics, one Flagyl we were unable to get in the strength the doc wanted unless we went generic so I have not started that one, and don't know if I will.

Be aware that the Levaquin although gluten-free for certain, is a really nasty antibiotic. I had side effects I never thought I would see off something of this nature. First off it destabelized my blood sugar, I shot up to over 300 within 3 hours of taking it and the next morning my MS was a fasting 178. It dropped to 85 within a half hour and then was back up to 137 an hour later.

That was enough to convince me not to take another dose...... And then I started to hallucinate. I have never been happier that I had the experiences I did in the late 60's early 70's, at least I knew what it was that was making my world all pretty colored mosaics and flashing lights. If I had never 'tripped' it would have scared me to death. I went to bed looking at the colors and hopeing they would be gone in the AM. They were.

My doctor gets back today and I expect him to give me a call. After reading the leaflet that came with the drug I found they do not reccommend it for folks with diabetes, epilepsy or tendon problems. I have diabetes, epilepsy (although no seizures since a couple months gluten-free) and am an Ehlers Danlos person who dislocates regularly in their sleep. I guess the drug reps info wasn't real complete and he hadn't read the literature before giving it to me.

I wanted to make sure that folks are aware of these bizzare side effects. I don't know if the same thing would happen to someone without the brain damage I have from the celiac but no one mentioned them to me before I took the stuff, if they had I would have asked for something different.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rsm Newbie

I took it once a couple of years ago and broke out in hives overnight, it was bad, very bad.

GlutenWrangler Contributor

I'm on Levaquin right now for a Pseudomonas infection. I had some rough side effects at first too, but nothing like you had. I'm currently on my 8th day, and I think my body is getting used to it. I was in a horrible mood and I felt almost dead for about 3-4 days, but it ended up going away. But keep in mind, I'm not a diabetic or an epileptic, so it is definitely much more dangerous for you. I'm sorry it was too rough for you. It's definitely a strong antibiotic. Hopefully you can find another that is both strong and tolerable.

-Brian

ArtGirl Enthusiast

It just reinforces the fact that we need to be fully aware, read the drug information, and make fully informed decisions... irregardless of whether or not we THINK the doctor knows what s/he is doing!

I never trust doctors to know the ins and outs of the drugs they prescribe. I ALWAYS check with the pharmacist and read the inserts.

ravenwoodglass Mentor
I never trust doctors to know the ins and outs of the drugs they prescribe. I ALWAYS check with the pharmacist and read the inserts.

I agree completely. I just read the info the drug store gave me before I took that one dose. I should have read the insert also. I sure will next time.

Anteau25 Apprentice

I was prescribed levaquin about 2 months ago, but my pharmacy called me before they filled it because it could affect blood sugars. I am a diabetic also. They contacted my dr, and I got a different antibiotic. After reading your post I am even more thankful that the pharmacy caught it before giving it to me!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,118
    • Most Online (within 30 mins)
      7,748

    Shiwaji
    Newest Member
    Shiwaji
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.