Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Going To Give Up Eating


isiskingdom

Recommended Posts

isiskingdom Contributor
Dear isiskingdom,

I know what you mean. A lot of times, I dread getting hungry, because I am afraid of eating. I did really well the first two months, then boom! I may have Lyme disease plus like ten other things wrong. However, I will tell you, as loco_ladi mentioned, stress makes everything worse!

I have an idea though. Do you still have your gallbladder? Celiac causes gallbladder disease. Is the pain in your upper right quadrant? You know, right under your rib cage? It also causes severe colon cramping in some people. It did that to me. I felt like someone was taking a double-edged sword and ripping it straight through my intestines. Since having my gallbladder out, that has stopped.

Sincerely,

NoGluGirl

Dear NoGluGirl,

I had my gall bladder out in Jan of this year they thought they had taken care of my pain but, when I still had it thats when I was tested for celiac. Right now I was also tested for a blood disease but, I don't think that would be the cause for my pain on my side. My doctors are stupid out here. I'm not sure what else they should look for. I really do not want to swallow the camera pill because if it doesn't pass in time they have to open me up and I can't swallow pills bigger then sudefed. Also I would like to put on my post what I have but, not sure how to do that. Like how it says what u have all been dignosed with.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NWLAX36Mom Rookie

You talk about being afraid to "swallow the camera pill". Is that for a small bowel study? My doctor said that can be done with the camera or in a radiology department. You drink barium and then they take x-rays every 10 minutes or so to see your small intestines. Then when it is all the way through, the doctor comes in and pushes around on your intestines and takes more pictures. Why don't you ask your doctor about a small bowel series in this manner?

I'm sure you must be so frustrated; hang in there. It will get better.

isiskingdom Contributor
You talk about being afraid to "swallow the camera pill". Is that for a small bowel study? My doctor said that can be done with the camera or in a radiology department. You drink barium and then they take x-rays every 10 minutes or so to see your small intestines. Then when it is all the way through, the doctor comes in and pushes around on your intestines and takes more pictures. Why don't you ask your doctor about a small bowel series in this manner?

I'm sure you must be so frustrated; hang in there. It will get better.

No, for this one you do have to swallow it. It checks out the small intestine.........Here is what it looks like.....................................Open Original Shared Link I have had a colonoscopy, endoscopy, small bowel and nucular scan done. I have been a metical project for about a year now. I lost my job last June do to this pain and have not been able to work since.

NoGluGirl Contributor
Dear NoGluGirl,

I had my gall bladder out in Jan of this year they thought they had taken care of my pain but, when I still had it thats when I was tested for celiac. Right now I was also tested for a blood disease but, I don't think that would be the cause for my pain on my side. My doctors are stupid out here. I'm not sure what else they should look for. I really do not want to swallow the camera pill because if it doesn't pass in time they have to open me up and I can't swallow pills bigger then sudefed. Also I would like to put on my post what I have but, not sure how to do that. Like how it says what u have all been dignosed with.

Dear isiskingdom,

That is right, I remember now that you told me this before! There still could be other issues.

You could have gotten an injury to your bile duct during the surgery. It is not common, but does occur.

Stones stuck in the bile ducts also can occur.

Another possibility is pernicious anemia. I have heard some terrible things about it. Pain can be caused by it, if I recall correctly. Additional food allergies are another possibility. Doing a rotation diet could help you identify any.

You are talking about the signature you would like to put on there. That is where we put our names and diagnosis. It really is not complicated. All you do is go up to the top where it says My Controls. There will be a list of things on the side. Click on Edit Signature. Type in what you want to have on there. That is it!

Sincerely,

NoGluGirl

isiskingdom Contributor
Dear isiskingdom,

That is right, I remember now that you told me this before! There still could be other issues.

You could have gotten an injury to your bile duct during the surgery. It is not common, but does occur.

Stones stuck in the bile ducts also can occur.

Another possibility is pernicious anemia. I have heard some terrible things about it. Pain can be caused by it, if I recall correctly. Additional food allergies are another possibility. Doing a rotation diet could help you identify any.

You are talking about the signature you would like to put on there. That is where we put our names and diagnosis. It really is not complicated. All you do is go up to the top where it says My Controls. There will be a list of things on the side. Click on Edit Signature. Type in what you want to have on there. That is it!

Sincerely,

NoGluGirl

NoGluGirl

Thanx for the help now I will not have to repeat myself. I just ate Blue Diamond nut thins and now I feel icky 10 min's later!!! Does anyone else have a problem with them?

Nancym Enthusiast

Nuts are pretty hard to digest. That's why I think the SCD diet might help you, it concentrates on easy to digest thing. I think my gut is fairly healthy now that I've been gluten-free/CF for 1.5 years but even now if I overdo the nuts (or eat much of any sort of seed) I will have diarrhea.

JNBunnie1 Community Regular

Isis, have you been tested for heavy metal toxicity? It can create reactions to other things while you're suffering from it, but then once you're body is cleansed of the heavy metals you can return to normal foods. It can't hurt to try.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



isiskingdom Contributor
Isis, have you been tested for heavy metal toxicity? It can create reactions to other things while you're suffering from it, but then once you're body is cleansed of the heavy metals you can return to normal foods. It can't hurt to try.

What do they have to do for that?

Kellygirl Rookie
I have pain in my right side or across my stomach, also nausea a headache and feeling like my back end is going to explode and Very tired . I cut out dariy. I have been keeping a food diary since I found out. I also know that its no shampoo or anything like that since I switched to Dove and I know its safe. I was dignosed a month and half ago I was told I should feel better but do not one bit.

This little bit of info might not make you happy but it is something to know. I notice you had your gall bladder out! Both my mother and my sister did also, I thank goodness haven't had to go through that. My sister experienced severe pain, like a gal bladder attack for about a year after she had it removed. My mother found that she cannot eat peppers of any sort, onions or anything spicy because she will get pain that mimic's a gal bladder attack.

Just a little info.

Kelly

isiskingdom Contributor
This little bit of info might not make you happy but it is something to know. I notice you had your gall bladder out! Both my mother and my sister did also, I thank goodness haven't had to go through that. My sister experienced severe pain, like a gal bladder attack for about a year after she had it removed. My mother found that she cannot eat peppers of any sort, onions or anything spicy because she will get pain that mimic's a gal bladder attack.

Just a little info.

Kelly

WOW that's interesting they told me I should be good as new. I am no where better. I do not eat peppers or onions but, it could be something else thatnks for the info

NoGluGirl Contributor

Dear isiskingdom,

The Blue Diamond Nut Thins do not agree with Rachel--24 either! She had numerous food intolerances. They are a result of Lyme, Heavy Metal Toxicity (esp. Mercury), and Candida. I had my gallbladder out, and fats do not always set well with me. I have been eating peanut butter again recently, and began having pain where my gallbladder was again. :(

My doctor told me a lot of people do not adjust well to having their gallbladder removed. You have a difficult time digesting fat because it is gone. I had mine out quite some time ago, but still have a rough time. I am not as sensitive there as I was. However, if I eat too much fat, I get stomach cramps, diarrhea, nausea, and reflux.

Heavy Metal Toxicity can be tested for by a few methods. The most accurate is to have you take a chelator (a substance that forces the mercury to be excreted) and take a urine test. However, some people have taken hair analysis, and they found it in there. If you want to know more about this, Rachel started a thread "OMG! I Think I Might Be Onto Something!" over a year ago. We now have over 1055 pages! :lol: I joined back in August, but got caught up finally! The other members on the forum would be more than happy to answer questions you have regarding this.

Sincerely,

NoGluGirl

isiskingdom Contributor
Dear isiskingdom,

The Blue Diamond Nut Thins do not agree with Rachel--24 either! She had numerous food intolerances. They are a result of Lyme, Heavy Metal Toxicity (esp. Mercury), and Candida. I had my gallbladder out, and fats do not always set well with me. I have been eating peanut butter again recently, and began having pain where my gallbladder was again. :(

My doctor told me a lot of people do not adjust well to having their gallbladder removed. You have a difficult time digesting fat because it is gone. I had mine out quite some time ago, but still have a rough time. I am not as sensitive there as I was. However, if I eat too much fat, I get stomach cramps, diarrhea, nausea, and reflux.

Heavy Metal Toxicity can be tested for by a few methods. The most accurate is to have you take a chelator (a substance that forces the mercury to be excreted) and take a urine test. However, some people have taken hair analysis, and they found it in there. If you want to know more about this, Rachel started a thread "OMG! I Think I Might Be Onto Something!" over a year ago. We now have over 1055 pages! :lol: I joined back in August, but got caught up finally! The other members on the forum would be more than happy to answer questions you have regarding this.

Sincerely,

NoGluGirl

NoGluGirl

You are a Restaurant Owner ? That is so kool so do you have a lot of gluten-free items on the menu? I will ask about the heavy metal toxixity but, I'm sure they will just brush that off.

NoGluGirl Contributor
NoGluGirl

You are a Restaurant Owner ? That is so kool so do you have a lot of gluten-free items on the menu? I will ask about the heavy metal toxixity but, I'm sure they will just brush that off.

Dear isiskingdom,

I am a restaurant owner in Rachelville! The girls were goofing around on the "OMG! I Think I Might Be Onto Something" Thread last summer. They named our ideal gluten-free town after Rachel, who started the thread. Everyone has made up silly things ever since, like Purple Glittery Bats, and all kinds of other fun things! Our community is like no other! Rachel is our town President!

We just pick whatever jobs we want!

I would love to open a real gluten free restaurant. That would be awesome! I also have thought about doing gluten free catering. No one does it around here that I know of. It is something I think would be great!

Heavy metal toxicity is often ignored by most doctors. However, going to a naturopath would probably be your best bet with it. My doctor is a holistic physician. She does hair testing. I hope to do that soon. Do you have metal fillings in your mouth?

Sincerely,

NoGluGirl

isiskingdom Contributor
Dear isiskingdom,

I am a restaurant owner in Rachelville! The girls were goofing around on the "OMG! I Think I Might Be Onto Something" Thread last summer. They named our ideal gluten-free town after Rachel, who started the thread. Everyone has made up silly things ever since, like Purple Glittery Bats, and all kinds of other fun things! Our community is like no other! Rachel is our town President!

We just pick whatever jobs we want!

I would love to open a real gluten free restaurant. That would be awesome! I also have thought about doing gluten free catering. No one does it around here that I know of. It is something I think would be great!

Heavy metal toxicity is often ignored by most doctors. However, going to a naturopath would probably be your best bet with it. My doctor is a holistic physician. She does hair testing. I hope to do that soon. Do you have metal fillings in your mouth?

Sincerely,

NoGluGirl

I called the doctor today and I had to go in to get my weight and BP checked. I asked about the heavy metal test and they said they will be testing for it on Monday. It sucks you are so far away because if you owned a gluten-free restaurant I would be there in a heartbeat. With you having the same thing I know that the food would be made with no CC. I am having another bad day I've had pain in my side and upper stomach All day.

NoGluGirl Contributor
I called the doctor today and I had to go in to get my weight and BP checked. I asked about the heavy metal test and they said they will be testing for it on Monday. It sucks you are so far away because if you owned a gluten-free restaurant I would be there in a heartbeat. With you having the same thing I know that the food would be made with no CC. I am having another bad day I've had pain in my side and upper stomach All day.

Dear isiskingdom,

I think the restaurant or catering thing would be great. I know that the gluten-free population is growing around here. One bread company is going to try and make a gluten-free bread now. This is progress! The problem is, I probably will not be able to eat it, either. I cannot have yeast because of the Candida.

I have not been having a good couple of days myself. I am worried. I have felt weirder all over than normal. I have felt strange, like I am going to nearly pass out, and stiff. I may have Lyme, so that could be why. The heart palpitations are a real problem, too. My Thyroid is hyped up again, and it is probably adding to this. All of this got really bad after a terrible migraine yesterday. I need a lot of testing, and have no money.

It is wonderful they are going to test for heavy metals Monday! Swift action is important! The sooner you find out, the sooner you can fix it! Chelation can be a long process, but it is worthwhile.

When you begin feeling better, that is when you realize you should be proud for sticking it out! Let me know how things go!

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Have I got coeliac disease

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    4. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Have I got coeliac disease

    5. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.