Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Til 100% Better


holdthegluten

Recommended Posts

holdthegluten Rising Star

Does anyone feel 100% better (Like they used to feel). I feel better, but after 4 months i still feel more tired than usual, and a lttle dizzy at times. How long until i feel really good again? When does the fatigue lift and i can feel sharp and upbeat again?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Are you taking any B-12 suppliments? That might help with the fatigue and the dizziness.

aikiducky Apprentice

I've been gluten free for two and a half years and I can say that I feel 100% ok.

It took me I think (can't remember exactly) at least a year. Around four months, although I could tell the diet was working and I was generally much better than before, I was still certainly not 100%.

In addition to gluten, I also avoid cow's milk, also traces of, and less carefully (small traces are ok) eggs, nightshades and legumes. I might occasionally eat a gluten-free cake made with potato starch or that has egg in it, but gluten and milk I have to be very careful with. It really speeded up my recovery when I figured out my other intolerances.

As to fatigue though, only dairy makes me tired the way gluten does. The other things just give me digestive symptoms.

You might have to look at other things that might be bothering you. Or it might just take more time.

Pauliina

Julie-uk-nz Apprentice

I would also suggest taking a look at the scd diet (do a search on here for it) it gives you a great list of legal/illegal foods to eat whilst your gut is healing. I don't follow the diet 100%, maybe i will soon but a few of the recipes are great esp the chicken soup which you can make in bulk and eat for a few days.

eleep Enthusiast

I would also say that it took me a year to feel like I was 100% -- I'd also been sick for quite a while, so I didn't really have much of a sense of what 100% meant for me. So I got to be more and more pleasantly surprised as things got better and better.

JamiD Apprentice
I would also suggest taking a look at the scd diet (do a search on here for it) it gives you a great list of legal/illegal foods to eat whilst your gut is healing. I don't follow the diet 100%, maybe i will soon but a few of the recipes are great esp the chicken soup which you can make in bulk and eat for a few days.

I tried doing a search on the scd diet, but didn't get any results. Any suggestions?

Thanks.

Holdthegluten: I felt great at first, but now also having tiredness and dizziness. I'm at the 4 month mark also.

  • 2 weeks later...
oceangirl Collaborator
I tried doing a search on the scd diet, but didn't get any results. Any suggestions?

Thanks.

Holdthegluten: I felt great at first, but now also having tiredness and dizziness. I'm at the 4 month mark also.

Hi.

I am almost a year in and still have good days and bad days. I am gluten, corn, soy, legume and (MOSTLY) dairy-free (cheese sometimes). I recommend Elaine Gottschall's SCD diet very much. Look up her book BREAKING THE VICIOUS CYCLE and you should find info there. I would recommend trying at least a modified SCD or a Paleo diet for a bit while you heal- it helped me a lot. Still wonder if I'll ever be completely symptomless. good luck to you.

lisa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



deedub Rookie

after a few months gluten free, i feel relatively the same. so aside from the gas and stomach "sensations" i get, i feel great.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.