Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Losing Weight


Buck22

Recommended Posts

Buck22 Rookie

I've been trying so hard to stay gluten (and corn) free and have been mostly successful over the past few weeks, but I'm still losing weight. I understand that it can take a while, but I'm eating as much as I can and still the scale goes backwards. I have a few of questions:

1. How much of a setback does an accidental glutening cause? Do the villi go completely flat again immediately or does it take time and sustained glutening before you redamage them as severely as you did before you knew what was happening?

2. Is there and drug or herb that will speed up the villi healing process?

3. Is it easier for flattened villi to extract nutrients from liquids or solids, or does it not make a difference? Any specific foods whose nutrients are easier for sick villi to absorb?

Thank you,

Richard

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



isiskingdom Contributor
I've been trying so hard to stay gluten (and corn) free and have been mostly successful over the past few weeks, but I'm still losing weight. I understand that it can take a while, but I'm eating as much as I can and still the scale goes backwards. I have a few of questions:

1. How much of a setback does an accidental glutening cause? Do the villi go completely flat again immediately or does it take time and sustained glutening before you redamage them as severely as you did before you knew what was happening?

2. Is there and drug or herb that will speed up the villi healing process?

3. Is it easier for flattened villi to extract nutrients from liquids or solids, or does it not make a difference? Any specific foods whose nutrients are easier for sick villi to absorb?

Thank you,

Richard

I have the same problem as you. From all I've been through I have dropped so much weight and I can not seem to gain any. I would like the same questions answered as you. Also what can we take for bruising?

cyberprof Enthusiast

I don't have answers for you (I'm new too.) But I think if you're having these issues you may need the support of a dietician. Certainly your doctor should want/need to help you so you don't become (more) malnorished.

I still have the opposite problem (overweight) but wonder if I'm malnorished, too. Talking to my doctor next Tuesday. Strange paradox.

Good luck!

~Laura

I've been trying so hard to stay gluten (and corn) free and have been mostly successful over the past few weeks, but I'm still losing weight. I understand that it can take a while, but I'm eating as much as I can and still the scale goes backwards. I have a few of questions:

1. How much of a setback does an accidental glutening cause? Do the villi go completely flat again immediately or does it take time and sustained glutening before you redamage them as severely as you did before you knew what was happening?

2. Is there and drug or herb that will speed up the villi healing process?

3. Is it easier for flattened villi to extract nutrients from liquids or solids, or does it not make a difference? Any specific foods whose nutrients are easier for sick villi to absorb?

Thank you,

Richard

isiskingdom Contributor
I don't have answers for you (I'm new too.) But I think if you're having these issues you may need the support of a dietician. Certainly your doctor should want/need to help you so you don't become (more) malnorished.

I still have the opposite problem (overweight) but wonder if I'm malnorished, too. Talking to my doctor next Tuesday. Strange paradox.

Good luck!

~Laura

you will come to find that the people on here know why more then a dietitian. I was told by the dietitian its ok to eat wheat as long as its not a lot but, thats not true.Welcome to the board!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.