Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Losing Weight


Buck22

Recommended Posts

Buck22 Rookie

I've been trying so hard to stay gluten (and corn) free and have been mostly successful over the past few weeks, but I'm still losing weight. I understand that it can take a while, but I'm eating as much as I can and still the scale goes backwards. I have a few of questions:

1. How much of a setback does an accidental glutening cause? Do the villi go completely flat again immediately or does it take time and sustained glutening before you redamage them as severely as you did before you knew what was happening?

2. Is there and drug or herb that will speed up the villi healing process?

3. Is it easier for flattened villi to extract nutrients from liquids or solids, or does it not make a difference? Any specific foods whose nutrients are easier for sick villi to absorb?

Thank you,

Richard

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



isiskingdom Contributor
I've been trying so hard to stay gluten (and corn) free and have been mostly successful over the past few weeks, but I'm still losing weight. I understand that it can take a while, but I'm eating as much as I can and still the scale goes backwards. I have a few of questions:

1. How much of a setback does an accidental glutening cause? Do the villi go completely flat again immediately or does it take time and sustained glutening before you redamage them as severely as you did before you knew what was happening?

2. Is there and drug or herb that will speed up the villi healing process?

3. Is it easier for flattened villi to extract nutrients from liquids or solids, or does it not make a difference? Any specific foods whose nutrients are easier for sick villi to absorb?

Thank you,

Richard

I have the same problem as you. From all I've been through I have dropped so much weight and I can not seem to gain any. I would like the same questions answered as you. Also what can we take for bruising?

cyberprof Enthusiast

I don't have answers for you (I'm new too.) But I think if you're having these issues you may need the support of a dietician. Certainly your doctor should want/need to help you so you don't become (more) malnorished.

I still have the opposite problem (overweight) but wonder if I'm malnorished, too. Talking to my doctor next Tuesday. Strange paradox.

Good luck!

~Laura

I've been trying so hard to stay gluten (and corn) free and have been mostly successful over the past few weeks, but I'm still losing weight. I understand that it can take a while, but I'm eating as much as I can and still the scale goes backwards. I have a few of questions:

1. How much of a setback does an accidental glutening cause? Do the villi go completely flat again immediately or does it take time and sustained glutening before you redamage them as severely as you did before you knew what was happening?

2. Is there and drug or herb that will speed up the villi healing process?

3. Is it easier for flattened villi to extract nutrients from liquids or solids, or does it not make a difference? Any specific foods whose nutrients are easier for sick villi to absorb?

Thank you,

Richard

isiskingdom Contributor
I don't have answers for you (I'm new too.) But I think if you're having these issues you may need the support of a dietician. Certainly your doctor should want/need to help you so you don't become (more) malnorished.

I still have the opposite problem (overweight) but wonder if I'm malnorished, too. Talking to my doctor next Tuesday. Strange paradox.

Good luck!

~Laura

you will come to find that the people on here know why more then a dietitian. I was told by the dietitian its ok to eat wheat as long as its not a lot but, thats not true.Welcome to the board!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,205
    • Most Online (within 30 mins)
      7,748

    pinetopgarden
    Newest Member
    pinetopgarden
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.