Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Hi All, Im New

missmommy

Recommended Posts

missmommy Contributor
missmommy
Posted

hi everyone, im new to all this.

um my mom found out she had celiac disease almost a year ago. her dr told her to tell her children and grandchildren to be tested. well i never heard of it before, so i lagged. but finally a few weeks ago i took myself and my two children to get a blood test for it. dr called yesterday and said the kids test came out ok but my didnt.

first off my dr never heard of the disease either so when i asked for the blood test she still didnt get what i wanted it for. but i guess the lab sent it all the way to c.a.

i asked the dr what i was suppose to do (since im 8 weeks pregnant). she said she wasnt sure, to ask my obgyn to set me up with a dietician.

so then i called my mom and she said since im preggo they probably wouldnt be able to confirm the results without a biopsy. then she told me to maybe just not eat bread.

i am totally confused, can anyone relate? :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BRUMI1968 Collaborator
BRUMI1968
Posted

Hi. You definitely need to read on this site and elsewhere about going gluten-free, especially since you are pregnant. There is a book called "gluten free for dummies" which is a decent place to start. There are also folks on here who have a newbie packet. You should post a post asking for it.

Good luck to you! It's going to be difficult, but it's so going to be worth it for your health in the long run.

mftnchn Explorer
mftnchn
Posted
Hi. You definitely need to read on this site and elsewhere about going gluten-free, especially since you are pregnant.

I agree, and welcome to the forum. There is a wealth of information here, you should know that going gluten-lite isn't enough. There is a lot to learn and adjust to.

There are many many choices of food that you can eat though, so don't worry about not having enough nutrition for your baby.

Usually the positive blood test is followed by a biopsy as I understand it but I don't know what happens if you are pregnant since the endoscopy is a general anesthesia procedure.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to yellowstone's topic in Coping with Celiac Disease
      3

      Has someone experienced discrimination because of their illness?

      Regarding the discrimination you asked about, it is a lot more easy now to discriminate when you're supposed to answer whether or not you have celiac disease on job applications, and from what I've seen, MANY companies now include this question on their applications:
    2. Scott Adams
      - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

      It's too bad relationships end because of this disease, but I suppose that being healthy may be more important than being married or living with someone who isn't on board with the gluten-free diet.
    3. Flash1970
      - Flash1970 commented on Scott Adams's article in Spring 2026 Issue
      2

      When Home Isn't Safe: Celiac Disease, Cross-Contamination, and the Right to a Gluten-Free Space

      This is a huge topic. My ex husband didn't care. Even though I had my own area where his food wasn't allowed, I'd find crumbs. I was always constantly cleaning. I threw a lot of food away because I wouldn't be sure if he had contaminated it. It really showed what a narcissistic person he was and is. Now I'm in my own home. Much better. I do have dogs...
    4. Russ H
      - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number...
    5. suek54
      - suek54 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      46

      Shaking/Tremors and Off Balance

      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly. I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,941
    • Most Online (within 30 mins)
      10,442
    Sensible
    Newest Member
    Sensible
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Has someone experienced discrimination because of their illness?

      By Scott Adams · Posted

      Regarding the discrimination you asked about, it is a lot more easy now to discriminate when you're supposed to answer whether or not you have celiac disease on job applications, and from what I've seen, MANY companies now include this question on their applications:  
    • Russ H
      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

      By Russ H · Posted

      People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number of beneficial microbes and reduced gut inflammation. Inulin is used by some plants as carbohydrate store, it is a complex polymer of fructose in the same way that starch is a complex polymer of glucose. Inulin cannot be digested by humans but serves as food source for some gut bacteria. Inulin is present in many vegetables but the richest sources are (g/100g): chicory root 41.6 Jerusalem artichoke 18.0 dandelion greens 13.5 garlic 12.5 leeks 6.5 onions 4.3 The Scientist: Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease    
    • suek54
      Shaking/Tremors and Off Balance

      By suek54 · Posted

      Hi Ginger38 Well done you for pushing through the pain barrier of eating gluten, when you know each mouthful is making you poorly.  I went through the same thing not long ago, my biopsy was for dermatitis herpetiformis. Result positive, so 95% certain I have gut coeliacs too. But my bloods were negative, so very pleased I went for the gluten challenge and biopsy.  Hang on in there. Sue
    • Scott Adams
      Has someone experienced discrimination because of their illness?

      By Scott Adams · Posted

      When symptoms like fatigue, brain fog, or low energy change how we interact, others sometimes misinterpret that as disinterest, rudeness, or negativity—especially if they don’t understand the underlying condition. That doesn’t make their behavior okay, though. You don’t deserve to be treated poorly for something outside your control. Often, it reflects a lack of awareness or empathy on their part, not a fault in you. It can help to explain your condition to people you trust, but it’s also completely valid to set boundaries and distance yourself from those who respond with hostility. Your experience—and your reaction to it—makes sense. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      HLA-DQ2 POSITIVE it's nothing

      By Scott Adams · Posted

      Being HLA-DQ2 positive doesn’t diagnose celiac disease by itself, but it does mean he has the genetic potential for it, so it absolutely deserves careful follow-up if symptoms or concerns are present. You’re right that celiac is often downplayed, but it’s a serious autoimmune condition—not an allergy—and it can affect the brain, nervous system, and overall health if untreated. Given everything your son has been through, you’re doing the right thing by advocating and asking questions. I would strongly recommend getting a full copy of his records, and if possible, consulting a gastroenterologist who understands celiac disease well so you can get clear answers and, if needed, proper testing and monitoring.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.