Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Going To Starve To Death


Ryniev

Recommended Posts

Ryniev Apprentice

I'm new here but I've leaving on vacation in 3 days with another family. Once we get to our destination, I should be fine. We are staying in a house and there is a really good health food store nearby. However, we are traveling for two days from St. Louis to Bozeman, MT and I just know it's going to be fast food hell and slim pickings.

I'm going to bring my own food but it's not like I can cook anything in the car. I guess I'll be eating lots of gluten free bars, crackers and fruit. I'm getting a bit nervous about the whole thing. Maybe I should just look at it as "fast and cleansing" time? :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest KG in FL
I'm new here but I've leaving on vacation in 3 days with another family. Once we get to our destination, I should be fine. We are staying in a house and there is a really good health food store nearby. However, we are traveling for two days from St. Louis to Bozeman, MT and I just know it's going to be fast food hell and slim pickings.

I'm going to bring my own food but it's not like I can cook anything in the car. I guess I'll be eating lots of gluten free bars, crackers and fruit. I'm getting a bit nervous about the whole thing. Maybe I should just look at it as "fast and cleansing" time? :P

I guess fasting and cleansing time is better than despretely searching for a toilet at every reststop or gas station!!haha I think I've done that to myself before and I won't be ever doing it again!!

I know there are many items you can pack in your car. But I feel for you. Myself, I hate eating an apple when everyone else gets Taco Bell. I think even Burger King could get me jealous when I'm starving!

So keep yourself full of "safe" things and keep your willpower up till you arrive safely with as few bathroom stops as possible!

Guest j_mommy

Take a little cooler with foods that you can heat up when they stop to gas up!!!!

I always take baggies of diffrent food so I don't have to settle for what gluten-free at teh gas station!

Good Luck!

Karen B. Explorer

Are you taking an ice chest? Or even a little 6-pack cooler? You can put a cup of ice in a zip lock bag to keep a small cooler cold. If it's a road trip, there shouldn't be a problem with stopping at a grocery store and hitting a deli counter for some Boars Head Meat. The Honey Roasted turkey is good. I frequently take lunchmeat and crackers (Nut Thins) for lunch at work. And you can pick up fresh fruit or fruit cups while you're there. Make sure to ask the deli person to clean the blade before slicing your meat. All Boars Head Meat is gluten-free but they usually sell cheaper stuff that may not be. Open Original Shared Link

If you hit McDonalds, they have a gluten free grilled chicken breast that is very good and you can have their salad. Just make sure you talk to a manager and emphasize that your food can't touch bread and how sick you get from gluten. In my experience, the managers get it, the person behind the register may not.

Open Original Shared Link

Taco Bell seems to flunk gluten-free but other fast food places have gluten-free menus. I don't know what's in your area of the country but spend some time checking it out before you leave and take printed gluten-free menus with you so you won't get somewhere and be tempted. Most places, the manager will know what you're talking about. When you get back, dropping an email to the corporate website praising or lamenting your experience can go a long way on PR.

If you want to only eat food you bring, Jif peanut butter to go cups would be ideal for travel. That way, you also limit the chance of cross contamination to your supply. I've had to write off big jars of peanut butter at work because someone didn't understand that dipping their gluten contaminated knife in my jar would be a problem.

Open Original Shared Link

Dinty Moore is gluten-free and can be heated up in a convenience store using their microwave.

Also, when I had to sit with family members in the hospital, I took Turkey Spam singles, crackers and apples. It's not as good as Boars Head, but it requires no refrigeration.

Having said that, I agree you should pack along the gluten-free bars as insurance and the standard Celiac travel equipment -- immodium (just in case).

Juliebove Rising Star

Ener-G makes bread packed two slices per package. It's shelf stable and keeps for a long time. Expensive, yes, but perfect for road trips.

Open Original Shared Link

You can take some of that and a small jar or single serve packs of peanut butter and make a sandwich.

This store sells single serve items. Granted, many of them are not gluten free, but you can get some things like jam and jelly that might be of use:

Open Original Shared Link

We've made several cross country moves in recent years and the good thing is there are more and more foods available at the various convenience centers and such. Many of them sell single serve or small packages of cheese, fresh fruit, salads, and I even saw packages of baby carrots at one. And most have small packages of nuts.

My daughter likes Shelton's Turkey sticks. They're a good source of protein. A small can of Vienna Sausages is another option.

Guest KG in FL
Ener-G makes bread packed two slices per package. It's shelf stable and keeps for a long time. Expensive, yes, but perfect for road trips.

Open Original Shared Link

You can take some of that and a small jar or single serve packs of peanut butter and make a sandwich.

This store sells single serve items. Granted, many of them are not gluten free, but you can get some things like jam and jelly that might be of use:

Open Original Shared Link

We've made several cross country moves in recent years and the good thing is there are more and more foods available at the various convenience centers and such. Many of them sell single serve or small packages of cheese, fresh fruit, salads, and I even saw packages of baby carrots at one. And most have small packages of nuts.

My daughter likes Shelton's Turkey sticks. They're a good source of protein. A small can of Vienna Sausages is another option.

I bet you're right about that. If we all try and purchase better quality foods, they will have to sell healthier foods. Vienna sausages are gluten-free? I haven't checked. I liked them as a child- yes, a good fall back if needed. I moved cross country a few times but I haven't moved anywhere in a few years! haha I kind of miss it in a sick, yet fun, great way!!

CarlaB Enthusiast

When we travel, I pack most of my food, but if we see a Chick-fil-a, I'll have a grilled chicken salad and waffle fries. Double check that it's a dedicated fryer.

I also will eat Wendy's chili and Frosty.

You can bring a box of cereal with you - just buy some milk and ask for a bowl. I've done that at fast food restaurants, too. I don't "ask" if I can do it ... I just say I have food allergies, may I have a bowl for my cereal. They don't say anything.

Hardees has a "low carb burger" that is gluten-free. It's wrapped in a lettuce leaf, so you get to hold it to eat it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



grey Explorer

What about single serving cans of tuna & those packets of mayo or mustard, pepper, etc.? Just mix in a bowl, or eat on a sandwich or bun. A jar of pb is, imho, never a mistake - you'll never starve. And can't we eat the Wendy's baked potato? How about bringing gluten-free tamari sauce and crushed almonds to put on it?

Also, most gas stations quickie marts have a microwave- so all those gluten-free noodle dishes (Taste of Thai, for ex) you could nuke, or a can of gluten-free soup.

Other rt favorites - nuts, popcorn, apples, & cherries (esp. this time of year). Some gas stations have fruit at the check out too.

have fun!

Guest KG in FL
When we travel, I pack most of my food, but if we see a Chick-fil-a, I'll have a grilled chicken salad and waffle fries. Double check that it's a dedicated fryer.

I also will eat Wendy's chili and Frosty.

You can bring a box of cereal with you - just buy some milk and ask for a bowl. I've done that at fast food restaurants, too. I don't "ask" if I can do it ... I just say I have food allergies, may I have a bowl for my cereal. They don't say anything.

Hardees has a "low carb burger" that is gluten-free. It's wrapped in a lettuce leaf, so you get to hold it to eat it.

Hardee's has this low carb wrapped in a lettuce leaf? Cool, I thought they were going the HUGE jumbo burger route, mainly!! Did you try it? We are getting the PF Chang soon so I am waiting to try the infamous lettuce wraps there. I've had Chili's lettuce wraps. How do these compare?? I bet they are all good.

Oh, Chik-fil-a- is this a sandwhich or salad? Because last time I got Chick-fil-a, it was 1pm, no breakfast, and the kids needed food (busy day), so they got all the good stuff, and I got nothing.

Karen B. Explorer
When we travel, I pack most of my food, but if we see a Chick-fil-a, I'll have a grilled chicken salad and waffle fries. Double check that it's a dedicated fryer.

---snip---

One note on Chick-fil-A, last time I checked every meat item on their menu has MSG (it's in the fries too). If MSG isn't an issue, no problem. But it has been an issue for me. My info may be outdated, it's been a couple of years since I checked last.

Karen B. Explorer

I know you couldn't get this in 3 days but it might be good to keep this on hand for future emergencies.

Minute Hamburger Bun Mix Starter Kit by Fast & Fresh

Open Original Shared Link .com/Minute-Hamburger-Bun...m=AFAIFIFJKNYD4

I've tried it and it's a good bun from mix to microwave in less than 5 minutes. I toast mine after the microwave just so it isn't snow white but it's a good bun and very easy to make. A bit pricey but worth it in the right situation.The same people make pizza crust and other stuff but I've only tried the bun. It holds together better than the buns I make with GFP mix. In fact, tonight at Fuddruckers, I told my Mom and Hubby that I'm not going to bake buns anymore because they don't hold together as well as these do.

The package reminds me of the old Suzy Bake oven mixes. 4 bags of mix per kit, each makes a 2 piece bun, and the bun mold that you microwave it in.

Ryniev Apprentice

Thanks all for the good advice. I decided to go the cooler route and went to Trader Joe's today and stocked up on good stuff so I should be set for the road. I also bought some rice pasta, marinara sauce, roasted red pepper soup, bread mix to take with me so that I have stuff to cook up right away once we get there in case they want to order up pizzas or something.

CarlaB Enthusiast
Hardee's has this low carb wrapped in a lettuce leaf? Cool, I thought they were going the HUGE jumbo burger route, mainly!! Did you try it?

Yes, I've had it twice ... it's nice to order a regular burger at a fast food restaurant. I seldom eat fast food, but this was a road trip.

We are getting the PF Chang soon so I am waiting to try the infamous lettuce wraps there. I've had Chili's lettuce wraps. How do these compare?? I bet they are all good.

I've only ever had the PF Chang's lettuce wraps. They are very good.

Oh, Chik-fil-a- is this a sandwhich or salad? Because last time I got Chick-fil-a, it was 1pm, no breakfast, and the kids needed food (busy day), so they got all the good stuff, and I got nothing.

Grilled chicken salad. No croutons. No sunflower seeds (yes, they have wheat). You can ask for the tortilla strips instead.

VegasCeliacBuckeye Collaborator

Here is the link for restaurnats in Bozeman, MT

Open Original Shared Link

They have a Wendys and McDonaldsm, so you will have some choices. It looks like there is also quite a few steakhouses (they have an OUTBACK!!!) and cafes. The website has all of the contact numbers, so get crackin!

bb

Ryniev Apprentice
Here is the link for restaurnats in Bozeman, MT

Open Original Shared Link

They have a Wendys and McDonaldsm, so you will have some choices. It looks like there is also quite a few steakhouses (they have an OUTBACK!!!) and cafes. The website has all of the contact numbers, so get crackin!

bb

Thanks for the link. My friend is from Bozeman and she told me recently that her stepdad could no longer have gluten (she didn't know whether or not he had Celiac disease) so I'm hoping for a good resource when I'm there. Also we will have our own kitchen so I can cook and grill etc. I know my friend is dying to go to the Naked Noodle which obviously won't have much that I will be able to eat.

I'm more worried the endless drive through S.Dakota and Wyoming because there isn't much of anything. I'm going to check and see if they have an Outback in Sioux Falls though. Also, I'm going to check and see if I can find a Chipolte's because their website said everything except the superhot salsa and flour tortillas are gluten-free and they will gladly change gloves for me, so I've been eating there and loving it!

Elaine Allen Rookie
I'm new here but I've leaving on vacation in 3 days with another family. Once we get to our destination, I should be fine. We are staying in a house and there is a really good health food store nearby. However, we are traveling for two days from St. Louis to Bozeman, MT and I just know it's going to be fast food hell and slim pickings.

I'm going to bring my own food but it's not like I can cook anything in the car. I guess I'll be eating lots of gluten free bars, crackers and fruit. I'm getting a bit nervous about the whole thing. Maybe I should just look at it as "fast and cleansing" time? :P

Karen B. Explorer
----snip----

I know my friend is dying to go to the Naked Noodle which obviously won't have much that I will be able to eat.

----snip----

You may be able to get them to fix your rice pasta and top it with something gluten-free. just make sure to tell them to use fresh water. Apparently, it's common to have one huge pot of boiling water in which all pasta is cooked. Obviously, that won't work for gluten-free. It may take a little longer for your order since they have to bring the water up to a boil. You might also consider taking along a bag of prepared Tinkyada pasta tossed with olive oil in your cooler and all they'd have to do is heat it in the microwave and top it. Tinkyada is durable enough to do this, if you're using another rice pasta, it might be a problem.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.