Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Migraines

JodiC

Recommended Posts

JodiC Apprentice
JodiC
Posted

I have Celiac (diagnosed finally in 2005 after years of illness) and am wondering how to tell if your child has it? I can't remember back when I was his age what kind of symptoms I was having. My twin boys seem to be plagued lately with headaches and vomiting. In one of the boys, the headache comes on very fast, causes him to vomit uncontrollably and then he falls into a very deep sleep. I was also plagues with migraines in my pre diagnosis days but was in my early 20's. They are only 6. The last time they were tested for Celiac was when they were 3 going on 4 and the tests came back negative. They also get pretty irritable at times and seem to not be able to control themselves without alot of nagging from me and my husband :). I should mention he also see "fireworks" before they hit. I'm assuming this is the aura. I don't know if I should have them retested. I thought Celiac went dormant until puberty for some reason, but I suppose that is not the case for all children. Any help would be appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2kids4me Contributor
2kids4me
Posted

Celiac does not go "dormant"...you can develop celiac at any age and once it starts - its there for life.

My daughter had migraines so bad - she would stagger down the hallway grabbing the walls. She would cover her head and ask for the lights to be turned out - but they were already off.

Once we discovered she was celiac - and went gluten free...the migraines stopped. Its one of the symptoms we see if she gets glutened.

Try going gluten free and see if they stop. Tests can be false negative in children.

Sandy

darlindeb25 Collaborator
darlindeb25
Posted

If I knew then, what I know now, I would have tested my kids with gluten free just to see if it helped. My kids all suffer headaches, I too have one everyday of my life. My son Nick was on beta-blockers at the age of 6 for migraines and he still has them, not as bad as when he was young. His son and daughter, 8 and 7, both have migraines and Colin is on beta-blockers now. My son Joe had headaches that came on instantly and he would scream, tell everyone to be quiet, shut off the lights, he would cry and if I could get him to calm down and rest, he would be asleep in minutes and when he woke, he would be fine. My daughter has migraines and my 2 older sons have headaches, not migraines really. I have to wonder if it isnt gluten related. My moms family all had headaches like that, but she doesn't think gluten is a problem for her. My dad is the celiac, yet my mom has gone pretty much gluten free with him and her headaches have lessened. My sister accuses me of thinking everything is caused by celiac disease and she is celiac too. Am I wrong? There seems to be a connection to me!

natalie Apprentice
natalie
Posted

Yes, yes, yes!!!! I have had headaches my whole life. I remember being in public school going to the nurses station. I would lay in a completely dark room, the pain was excruciating. Eventually I would vomit fall asleep and feel a little better when I woke up. This all happened while I was 6+ years old. The headaches were a major symptom of my celiac.

Natalie

mamatide Enthusiast
mamatide
Posted

My 8yo DD has a lot of headaches and belly aches. My 6yo is Celiac. I'm gluten intolerant (no intestinal damage but definite mood-related symptoms and gastro stuff when I eat it).

Back to my 8yo. She had headaches every day for about a month. I thought maybe her glasses, school, whatever. But then we went gluten-free for a week and the headaches went away. (We're gluten-free at home completely - she was eating gluten in her lunches at school) then she ate it and they came back. She most recently went almost 2 months gluten-free and ate (regular) pizza last night. We're waiting to see if any of her symptoms come back.

That's the problem with a gluten-free trial I guess. Waiting and watching for symptoms that may or may not appear.

I'll let you know if the headaches come back.

mamatide

Karen B. Explorer
Karen B.
Posted

You may already know this but artificial sweetners (especialy aspartame, Nutrasweet) and MSG are two of the leading causes of migraines. I have Celiac but gluten doesn't give me a migraine (fortunately! brain fog and D are enough).

Aspartame is my migraine trigger. What amazes me is how many people think nothing of it and act like you're nuts for not wanting it. Kinda like gluten, actually. And the only thing that helps is going to sleep. From what I've seen here in this forum, Celiac makes it's own rules sometimes. Given the family history, I'd consider it even if tests come back negative. They don't have to have full-blown Celiac to simply react to gluten.

karenchal Newbie
karenchal
Posted

Hi All,

My Son who is 5yrs old has Crohns Disease and since we have put him on a Gluten Free diet, he has improved dramatically. The Symptons are very simalar to Coeliacs so we thought we would give it a go. Anyone else in a simalar situation??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JodiC Apprentice
JodiC
Posted
  • Author

Thank you for your replies. It completely breaks my heart to see them suffering so much. I didn't want to take them gluten free in case it could actually trigger the disease. I don't know if this is true but as a mother I worry. I know what to do for myself but am unsure when it comes to my kids. Maybe it's more of wishful thinking that they don't have to deal with the disease. :(

Another question is would the endoscopy show damage at their age? The reason I ask is that they have to get their tonsils removed due to the fact they are chronically enlarged and I thought maybe they could do it all at once.

aikiducky Apprentice
aikiducky
Posted

If it's already few years ago that they were tested you could ask to have them tested again. As they have a celiac relative (you), they should be tested at least every five years or so anyway, since celiac can be triggered at any age. In other words, the fact that they have tested negative once is not a guarantee that they won't test positive later in life.

Pauliina

Murph Newbie
Murph
Posted

Grr double-post.

Murph Newbie
Murph
Posted
Celiac does not go "dormant"...you can develop celiac at any age and once it starts - its there for life.

Sandy

My celiac went "dormant"!!

Had much trouble as a toddler - so says Mom, then no problem until ~age 35, I believe triggered by my little brother's sudden tragic death.

And as for my 2 cents, I'd put the kids on a gluten-free diet.

Nancym Enthusiast
Nancym
Posted
Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,854
    • Most Online (within 30 mins)
      7,748
    TDeb
    Newest Member
    TDeb
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.