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Extreme Coldness

cdfiance

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cdfiance Explorer
cdfiance
Posted

Just wondering if anyone has experienced feeling constantly extremely cold or know any possible causes of it. Alex (my fiance) has been dealing with it since she got sick but it's been more extreme lately. I read that hypothyroidism can cause coldness but I don't think that's her problem because she seems to have the opposite of many of the other symptoms.

It could just be because she's so thin but she been able to gain a bit of weight in the past few weeks and if anything the coldness has gotten worse. We keep the house nice and warm for her and she's always wearing multiple layers but often she still gets chills while I'm sweating.

Hopefully she'll have time to mention it to one of her docs at her next appointment but anyone know why this could be happening. Could it just be a normal part of recovery? Any other ideas besides warm clothes and hot baths to keep her warm?

Thanks,

Ryan

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holdthegluten Rising Star
holdthegluten
Posted

Have her get her thyroid checked, even if the other symptoms dont match. If you lose weight quickly your thyroid levels usually go down with it. A simple med of synthetic thyroid coulb be all she needs. Even people that have a low-normal range can have the always being cold symptom and be healed by the med. Good Luck

Murph Newbie
Murph
Posted

I spent a couple yrs pretty cold & ~6-9 months incredibly cold way inside at the core all the time. I ended up keeping a thermometer w/in reach so I could see if I could or should turn up the heat. I would never feel warm enough to tell otherwise & and it's not exactly worthwhile to heat a house to 110

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

I know I joke that my internal thermometer is broken. Pre-diagnosis I was always too warm. Post-diagnosis when I get too hot I can't cool down quickly and when I get too cold it takes forever to warm up. I wear sweaters and bring light jackets in the summer in Florida because I get too cold.

I would still get her thyroid checked. Mine always tested normal. So who knows anymore.

Teacher1958 Apprentice
Teacher1958
Posted
Just wondering if anyone has experienced feeling constantly extremely cold or know any possible causes of it. Alex (my fiance) has been dealing with it since she got sick but it's been more extreme lately. I read that hypothyroidism can cause coldness but I don't think that's her problem because she seems to have the opposite of many of the other symptoms.

It could just be because she's so thin but she been able to gain a bit of weight in the past few weeks and if anything the coldness has gotten worse. We keep the house nice and warm for her and she's always wearing multiple layers but often she still gets chills while I'm sweating.

Hopefully she'll have time to mention it to one of her docs at her next appointment but anyone know why this could be happening. Could it just be a normal part of recovery? Any other ideas besides warm clothes and hot baths to keep her warm?

Thanks,

Ryan

Before I had any idea what was happening to me, especially at night, I would have these episodes that felt like ice water was literally streaming through my veins. It coincided with symptoms of malabsorption that I was also having. It was awful, and there was no way to warm up. Now that I am gluten-free I no longer have this. I'm back to my usual hot, steamy, "turn-on-the-air-conditioning" self. It's been so hot in Ohio that I've been having fantasies about the blizzard of February '07! :lol:

Karen B. Explorer
Karen B.
Posted

Pre-diagnosis, I joked about having "cold flashes" instead of hot flashes because I'd get so bone chilling cold and the only thing that would make it go away was soup or something hot to drink. Since I was overweight then and remain so, I don't think it was a weight issue.

Then I found out that taking kelp supplements helped stop the cold flashes. Kelp supplements have iodine (for your thyroid).

Since the Celiac diagnosis in 2003, I haven't needed kelp and haven't had a problem with it.

loraleena Contributor
loraleena
Posted

Get her thyroid checked. Especially her thyroid peroxidase antibodies. Get the whole panel not just the TSH. Being very thin can make you cold as well. Does she perhaps have a low grade fever going on?? I get these a lot and they make me shiver.

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TrillumHunter Enthusiast
TrillumHunter
Posted

I was freezing when my serum iron was four. It was that to the core cold that I could only get rid of with a hot, hot bath. Once I got my iron up that went away. I've had my thyroid tested (over and over) and it is fine.

Karen B. Explorer
Karen B.
Posted
Then I found out that taking kelp supplements helped stop the cold flashes. Kelp supplements have iodine (for your thyroid).

I should have added that I had my thyroid tested during this period and it was within the normal range. However, when I stopped taking kelp, the cold spells returned. I don't know exactly what was going on because at diagnosis, I was very deficient in iron, B vitamins, and folic acid (that they tested for) and who knows what I may have been deficient in that they didn't test for.

neesee Apprentice
neesee
Posted

When my dh didn't have his blood sugar under control, he was freezing. Especially after he ate his meals. I'm quite sure it's a diabetic problem. It took a fair amount of time before that improved.

He's not the one with celiac, I am. He is a type II daibetic.

cdfiance Explorer
cdfiance
Posted
  • Author

Thanks for the input everyone. Sounds like she needs to get her thyroid checked to rule out any problems. I

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

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      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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