Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Philly Gluten Free Cooking Spree

SunnyDyRain

Recommended Posts

SunnyDyRain Enthusiast
SunnyDyRain
Posted

I am sort of interested in attending this, but does anyone have any idea why it's so expensive? Do we get to eat the food? 50.00 bucks sounds really steep to go watch a bunch of people cook! Am I missing something?

The link...

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 53
  • Created
  • Last Reply
blueeyedmanda Community Regular
blueeyedmanda
Posted

I want to go too! I know our favorite store is giving the food. I think it would be a lot of fun.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author
I want to go too! I know our favorite store is giving the food. I think it would be a lot of fun.

I do think it would be cool to see what they come up with... but 50 bucks?

Perhaps they should let Celiacs in free?

Also the idea that there are 10 doctors in the Philly Area that know about Celiac is Amazing! :P

blueeyedmanda Community Regular
blueeyedmanda
Posted

I had mentioned this John awhile ago when I saw it in Washington, and I told him I wanted to go to the Philly one. We will be in Washington DC this weekend cause I have an oncology conference but I should be able to convince him to travel again. I think we get to eat all the food there. I better get some food out of the deal, for 50 bucks.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author
I had mentioned this John awhile ago when I saw it in Washington, and I told him I wanted to go to the Philly one. We will be in Washington DC this weekend cause I have an oncology conference but I should be able to convince him to travel again. I think we get to eat all the food there. I better get some food out of the deal, for 50 bucks.

That weekend I'm actually going to be up north, so If i go i drive up there, drive down to philly, then drive up there, then drive back to Camp Hill.

Fun! But I have a GP appointment on monday up there, so it will be spaced out.

mamaw Community Regular
mamaw
Posted

I read the info from the website. It appears that for $50.00 you get to watch & cheer on your favorite doctors or area chefs. Get a cookbook & that's it.

I did e-mail the group to ask if any gluten-free food would be available for the attendees.... I'll post my findings as soon as I hear from them....

It looks like a fundraiser for the group.....

mamaw

floridanative Community Regular
floridanative
Posted

mamaw is correct. This event is a fundraiser and the attendess they really want there are doctors. They figure that people with Celiac already know way more about Celiac and gluten free food than most doctors, of any discipline. One of my own knucklehead ex docs told me flat out 'you know all the food you love, well you can't have any of it on the gluten-free diet and who would want that?' They think we can't follow the diet and that fact may be keeping some of them from even testing for it. Part of the money raised from the cooking sprees goes to the hospital of the winning dr. to start an awareness campaign, and some to the support group in that area. The VIP tix that are $100 get you some food and some Redbridge beer as far as I know.

I'm in charge of getting the docs signed up for Atlanta. I have four booked and need 6 more. If anyone reading this knows a doc affiliated with Grady - I'd greatly appreciated their contact info. The Atlanta event is at the Hyatt Regency downtown, on Oct. 27th.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


joelcontrol Apprentice
joelcontrol
Posted

:P I WENT TO THE ONE IN NEW YORK

I AM NOT A CELIAC MY EIGHT YEAR OLD IS.

I VOULENTEERED TO HELP.

I WORKED HARD TO HELP SERVE THE FOOD.

THERE WAS FOOD SERVED AND WINE AND BEER.

THE FOOD WAS PRETTY GOOD. IN NY IT WAS OVER 200 PEOPLE.

MOSTLY CELIACS AND FRIENDS AND FAMILY.

I HAD A GREAT TIME. I THINK EVERY ONE ENJOYED THEMSELVES.

IT IS ALSO A FUNDRAISER. WHAT WOULD DINNER AND DRINKS COST YOU ELSEWHERE?

PLUS YOU SOCIALIZE AND FIND OUT dRS ETC

PS I THINK NY WAS SOLD OUT. LET US KNOW HOW IT WENT. IF I HAD THE ENERGY I WOULD GO FROM NY.

mamaw Community Regular
mamaw
Posted

This is the relpy I received today

Thank you for your interest in the NFCA Philadelphia Cooking Spree. The event is June 23 at the Hyatt Regency Penn's Landing from 7-10pm. The VIP admission is $100 and includes a copy of "Beyond Rice Cakes" and also a meet and greet session with the chefs and doctors as they prepare to cook before the event. The general admission is $50 and children are $35. There will be plenty of food for all to try, along with the new gluten free Redbridge Beer. This is a very fun event and a chance to meet other celiacs in your area. Heidi Collins, CNN anchor and National Spokesperson for NFCA will speak. For more information and to register, please go to Open Original Shared Link.

Once again, thank you so much for your interest. Please contact me if you have any more questions.

Thank you for contacting the National Foundation for Celiac Awareness with your question. We hope you continue to stay in touch with us as we discover new information almost daily about celiac disease. With your support, we will find a cure.

Sincerely,

Connie Maltin

Volunteer

National Foundation for Celiac Awareness (NFCA)

"The information above is not intended nor suited to be a replacement or substitute for professional medical treatment

or for professional medical advice relative to a specific medical question or condition. We urge you to always seek the

advice of your physician or medical professional with respect to your medical condition or questions. The above information

is not intended to establish a doctor/patient relationship with any physician. There is no replacement for personal medical

treatment and advice from your personal physician."

mamaw

Judyin Philly Enthusiast
Judyin Philly
Posted

I VOULENTEERED TO HELP.

I WORKED HARD TO HELP SERVE THE FOOD.

quote]

I'm so glad you posted...MY QUESTION IS............WHEN THE FOOD IS SERVED, ARE THE INGRED ON LITTLE CARDS ON THE FOOD?

SINCE I CAN'T HAVE DAIRY, CASEIN, SOY & TAPIOCA--HOW WILL I KNOW THE gluten-free FOOD IS SAFE.

ANOTHER FORUM SAID THE APPITIZERS ARE 'HEAVY' AND LEAVE ROOM FOR THE MAIN DISHES.

THIS WILL DETERMINE WHETHER I GO OR NOT.

JUDY

blueeyedmanda Community Regular
blueeyedmanda
Posted

We might be going, and I know my gluten free buddy and her husband are also interested. It would be nice to meet some people there.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author

I may be tempted to go also... now that it seems worth it.. espically with the drive.

I would be worried about dairy also....so ingredients on cards would be nice.

blueeyedmanda Community Regular
blueeyedmanda
Posted

It sounds like it might be alot of fun, think of all the neat people we would meet too. People who have celiac and understand what we are going through and the struggles you have when you first start out.

mamaw Community Regular
mamaw
Posted

I know I will not be attending because of my poor health at the present time...plus I live near Pittsburgh so I would need to add the cost of an overnight stay ,gas at $3 bucks a gallon . It does sound like alot of fun & of course to meet others too......

I don't know about the recipe cards as that was not addressed in the feed-back I received from them in my previous post.....

hope you have fun ..

mamaw

joelcontrol Apprentice
joelcontrol
Posted

I HAD MADE THAT SUGGESTION AFTER SEEING NY EVENT. CONTACT THEM AND ASK THEM.

I THINK YOUR CONCERN IS VERY IMPORTANT.

Judyin Philly Enthusiast
Judyin Philly
Posted

HI ALL

MAMDA..LOVE THE CAPE MAY LITE HOUSE IN YOUR PICTURE.

I WROTE TO ASK ABOUT YOUR TRP BUT NEVER HEARD BACK.

GUESS IT WAS GOOD AS USUAL?

DID YOU GO TO BELLA VILLA RESTURANT?

OK I JUST SENT IN MY $$ FOR ME AND 2 OTHER FRIENDS.

ALSO DIANE ON LIST SERVE CALLED AND WAS TOLD THEY '''WOULD HAVE CARDS ON THE FOOD WITH THE INGRED'''

THAT' WHY I DECIDED TO GO.

WHO ELSE IS STILL GOING?

jUDY

blueeyedmanda Community Regular
blueeyedmanda
Posted
HI ALL

MAMDA..LOVE THE CAPE MAY LITE HOUSE IN YOUR PICTURE.

I WROTE TO ASK ABOUT YOUR TRP BUT NEVER HEARD BACK.

GUESS IT WAS GOOD AS USUAL?

DID YOU GO TO BELLA VILLA RESTURANT?

OK I JUST SENT IN MY $$ FOR ME AND 2 OTHER FRIENDS.

ALSO DIANE ON LIST SERVE CALLED AND WAS TOLD THEY '''WOULD HAVE CARDS ON THE FOOD WITH THE INGRED'''

THAT' WHY I DECIDED TO GO.

WHO ELSE IS STILL GOING?

jUDY

Judy, did you send me a PM? I haven't gotten any. I did reply in our Cape May thread, but I will just send you a PM and tell you all about it :)

I'll see if John and I could go, it sounds fun!

Judyin Philly Enthusiast
Judyin Philly
Posted

I think I saw you post on a thread and ask there but who knows what thread now..maybe was the cape may one.

how will i know you

:lol: will have to look for a handsome young couple...and a tag that says..blueeyedmanda... :lol:

yes really looking forward to it esp. since i can really eat safely here with the other intollerances listed.

Judy

Judy, did you send me a PM? I haven't gotten any. I did reply in our Cape May thread, but I will just send you a PM and tell you all about it :)

I'll see if John and I could go, it sounds fun!

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author

I won't be going, I decided against it for monetary and food problems. With me being sick and not knowing and not really having the money and the Drive to philly with gas prices and well.. i'm a little bit of a stick in the mud when i'm not feeling right. why else would I be surfing celiac.com at 11pm on friday night when the rest of my generation is out drinking and dancing (and doing god knows what!)

blueeyedmanda Community Regular
blueeyedmanda
Posted
I won't be going, I decided against it for monetary and food problems. With me being sick and not knowing and not really having the money and the Drive to philly with gas prices and well.. i'm a little bit of a stick in the mud when i'm not feeling right. why else would I be surfing celiac.com at 11pm on friday night when the rest of my generation is out drinking and dancing (and doing god knows what!)

I am in that generation and we are home every friday night. We are also sticks in the mud...and proud of it!

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author

Heh, well at least you both are stick in the muds! My b/f is out with his friends from highschool getting drunk, like they do every other friday night. I got my parents..wait they were in bed by 10...

I sometimes feel like the oldest 26 year old on the planet.

blueeyedmanda Community Regular
blueeyedmanda
Posted

John is unable to drink, just a shot will throw him into a sickness that can last for days. He had high doses of potent chemo 6 years ago, and his liver took a hit. If he was to drink regularly he would need a transplant within 10 years. I was never much of a drinker. I did it in highschool on the railroad tracks, and in the woods by the river. I outgrew the partying years ago.

Another reason to stay home is everything is so expensive, for two of us to go to the movies it is almost 17 for both tickets. Yikes!

John is already half asleep on the couch. We finished watching Norbit 30 minutes ago.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
  • Author
John is unable to drink, just a shot will throw him into a sickness that can last for days. He had high doses of potent chemo 6 years ago, and his liver took a hit. If he was to drink regularly he would need a transplant within 10 years. I was never much of a drinker. I did it in highschool on the railroad tracks, and in the woods by the river. I outgrew the partying years ago.

Another reason to stay home is everything is so expensive, for two of us to go to the movies it is almost 17 for both tickets. Yikes!

John is already half asleep on the couch. We finished watching Norbit 30 minutes ago.

Wow, sounds like john went through some stuff. Glad that your both healthy today.

I drank all though high school, I agree it has gotten very old... but why.. other people still have fun with it.. do i not do it right? I have a taste for ammoretto sours.. but 2 of them and i'm loopy and sleepy. I agree it's really expensive for movies, but thankfully, we don't find many movies we need to see in the theaters. Last one was pirates... the one before that was miami vice? Unless you count Happy Feet in Imax. Ohh speaking of happy feet, June 30th there is a free showing of happy feet at Levitt Pavillion in Harrisburg! I guess they do alot of free stuff there...

Jeff is younger and less mature than me. He is 1.5 years younger, and had yet to leave his parents nest. Everyweekend when we go home, his mom does all his laundry for him and irons his shirts and cooks him food... Gah. just thinking of that makes me sick. On top of all that, his friends are younger than him, some are still in college! Hanging out with them is like the simpsons meet family guy meeting super troopers. Jeff will be a great man someday, when he gets done growing up.

Kayaking Mom Newbie
Kayaking Mom
Posted

Kayaking Mom Newbie
Kayaking Mom
Posted
I am sort of interested in attending this, but does anyone have any idea why it's so expensive? Do we get to eat the food? 50.00 bucks sounds really steep to go watch a bunch of people cook! Am I missing something?

The link...

Open Original Shared Link

HI --- I am just learning to respond to this group, so I am sorry that this is a late reply. I have attended this event in both NY and DC (I have children in both cities) and it was alot of fun. You get to meet so many people from your area with celiac. There is so much food to try along with what the chefs and doctors are creating. If you drink, there is also free Redbridge beer, and if not there are sodas and water. My husband, who is not celiac, had a fantastic time talking to the other guests and learning of their stories. This event is one where everyone is upbeat and having a great time - no complaining about being celiac. Money from the evening is used to raise celiac awareness in the community.

Wishing you good health and happiness.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.