Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Barking Up The Wrong Tree?

JennyC

Recommended Posts

JennyC Enthusiast
JennyC
Posted

We went camping last weekend and I was extremely careful not to give my son gluten, but of course their is always the question of cross contamination from mainstream foods. Sunday morning my son started to have diarrhea. Nasty, cloudy, explosive diarrhea. Sunday night and all day Monday he had a fever, and on Monday he also vomited. Today the vomiting and fever has subsided, but the diarrhea is still really bad. I took him to the doctor tonight and they ordered a stool culture and blood work (electrolytes and blood chemistry). I would like to make sure that this does not sound like he got glutened before I put him through blood work. :ph34r: I am concerned because he is loosing a lot of liquid, and we are nearing the end on day three and his diarrhea is getting worse. Please help!

Thank you!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ptkds Community Regular
ptkds
Posted

You should do the blood work to make sure he isn't dehydrated. That is what the electrolyte test is for. Sorry your ds is going through this :(

ptkds

CarlaB Enthusiast
CarlaB
Posted

It sounds like a bug ... does he normally get a fever and vomit with glutening?

I'd get him an electrolyte solution to take ... is Pedialyte gluten-free? If so, I'd be giving it to him.

JennyC Enthusiast
JennyC
Posted
  • Author

We're still pretty new at this, and I can't say for sure if he's ever been glutened since going gluten free. There has been days when he's had a bit of diarrhea, but it is usually accompanied by normal bowl movements and never with a fever. I just don't know what's going on! I just know that his "problem" is still going strong and it's day 4 now. :(

sspringer Newbie
sspringer
Posted

I am sorry to hear about your son. As I was reading through stuff yesterday I came across a post of someone saying there is gluten in charcoal. Is is a possibility that he had something to eat off from a fire with charcoal? Just a thought . It almost sounds like the flu to me, in my experiance with my daughter who is 3, if she was glutening there wouldn't ever be any fever. I hope he is feeling better soon..........

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,204
    • Most Online (within 30 mins)
      7,748
    JaymeC
    Newest Member
    JaymeC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.