Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thanks You


confused

Recommended Posts

confused Community Regular

I just wanted to say thank you to everyone that has been so supportive and helpful these last few months. I do not think i could have made it threw this time without all of you. I am so happy to be finally getting to be normal (whatever normal is) and loving it. I am now coaching my sons baseball team and im helping out in tball, golf and gymnasitics with the other kids. It is so nice to be out for 3 hours at one time and not care that there is not a bathroom were you at. It is nice not to have anxiety when out with others. It is also nice not to look 9 months pg all the time, now only like 4 lol. It is so nice to cook dinner and not worry how you are going to make foods like you did pre-gluten free days, that you just know how to cook the healthy way. It is so nice not to have to come on line everytime i want to eat something, or spending time looking up every little thing in life. it is so nice not to have the need to read every single post. And i could have not got to this point without all of you.

Last night i even talked to a 2 people and explained celiac to them and they were fascinated to learn about it. It is so nice when talking about the disease just becomes second nature and u are not stumbling at words trying to explain the disease that you and your son have. I finally know that celiac is just an part of my life, it is not who I am.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

Paula,

glad to hear you are feeling better!!! This board is a blessing in disguise, you walk away with more info and some great friends. It helps all around. :)

NoGluGirl Contributor
I just wanted to say thank you to everyone that has been so supportive and helpful these last few months. I do not think i could have made it threw this time without all of you. I am so happy to be finally getting to be normal (whatever normal is) and loving it. I am now coaching my sons baseball team and im helping out in tball, golf and gymnasitics with the other kids. It is so nice to be out for 3 hours at one time and not care that there is not a bathroom were you at. It is nice not to have anxiety when out with others. It is also nice not to look 9 months pg all the time, now only like 4 lol. It is so nice to cook dinner and not worry how you are going to make foods like you did pre-gluten free days, that you just know how to cook the healthy way. It is so nice not to have to come on line everytime i want to eat something, or spending time looking up every little thing in life. it is so nice not to have the need to read every single post. And i could have not got to this point without all of you.

Last night i even talked to a 2 people and explained celiac to them and they were fascinated to learn about it. It is so nice when talking about the disease just becomes second nature and u are not stumbling at words trying to explain the disease that you and your son have. I finally know that celiac is just an part of my life, it is not who I am.

paula

Dear Paula,

I am so happy for you! It is great you are doing so well! You sure are busy! It must be nice to be active again! I was amazed when the reflux was better. I did not think anything would help it because it was so bad. Who would have thought gluten could cause such trouble?

Sincerely,

NoGluGirl

confused Community Regular

Thank you both, it is so nice to be getting better. Of course I am not 100 percent better, but i bet i am at least 75 per cent better. I think also being busy helps alot cause i dont have time to sit around and feel sorry for myself or have the time to sit here all day and think what to eat or cook, now i just grab the foods i like and go.

I just hope some day I can get my step-son to feel as well as I do, he is still having rough days, but i think he is still eating gluten on occasion. But i am going to wait til all all of the allergy testing is done on him, then he will be getting serious on this plan.

paula

NoGluGirl Contributor
Thank you both, it is so nice to be getting better. Of course I am not 100 percent better, but i bet i am at least 75 per cent better. I think also being busy helps alot cause i dont have time to sit around and feel sorry for myself or have the time to sit here all day and think what to eat or cook, now i just grab the foods i like and go.

I just hope some day I can get my step-son to feel as well as I do, he is still having rough days, but i think he is still eating gluten on occasion. But i am going to wait til all all of the allergy testing is done on him, then he will be getting serious on this plan.

paula

Dear Paula,

75 percent better is great! I agree that staying busy is good. I never have been good about sitting still. I do not know why. I suppose I am hyper! Sitting around feeling sorry for yourself really does not do any good, as you said.

I am sorry to hear your step-son is having such a difficult time. I was going to ask about him in my last post. I think he needs to be extremely strict on the diet. If he is not, the results will not be very good. My reaction is so bad, I have not cheated once in the 8+ months I have been gluten-free.

Sincerely,

NoGluGirl

confused Community Regular

Well see I am not positive if he is cheating, he just has not felt very good since his first round of allergy testing. He has huge circles around his eyes, he is always tired, and just hormonal(not sure if that is cause he was grounded for running up an 121 buck cell phone bill) and he has had to work the bill off. He has also had a very bad cough since last week. His mouth and lips look fine and that is mostly the first sign i can tell he has ate gluten. So maybe it is just the allergy testing that has him sick. Plus i think he might be hormonal cause his mom kept saying she was coming this weekend and said she would call last friday to confirm and she has not called.

I guess it is just easy to blame everything on gluten til you look at the big picture.

paula

NoGluGirl Contributor
Well see I am not positive if he is cheating, he just has not felt very good since his first round of allergy testing. He has huge circles around his eyes, he is always tired, and just hormonal(not sure if that is cause he was grounded for running up an 121 buck cell phone bill) and he has had to work the bill off. He has also had a very bad cough since last week. His mouth and lips look fine and that is mostly the first sign i can tell he has ate gluten. So maybe it is just the allergy testing that has him sick. Plus i think he might be hormonal cause his mom kept saying she was coming this weekend and said she would call last friday to confirm and she has not called.

I guess it is just easy to blame everything on gluten til you look at the big picture.

paula

Dear Paula,

There is another possibility. He may of other sensitivities besides gluten. Is he still eating dairy? That could be trouble. It tends to cause sinus issues. If he is stressed out, that only adds to it. I understand why you would make him pay that bill off, though! That is a lot of money!

Sincerely,

NoGluGirl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

NoGluGirl,

No he is not eating dairy anymore, well that i know of lol. We do have soy milk that he drinks with his cereal in the morning. So maybe soy is giving him problems like it did me. I am now gluten dairy and soy free. Next friday they will be testing him for foods, i cant wait to find out if he is allergic to other foods,

Im sure all the wind we have is not great for his other allergies either. The baseball fields are like a completly dusting and it is terrible. My eyes are even so red from being out there. I think I will go buy us both sunglasses later on today so we can get some protection tonight.

Yes he got grounded and we gave him a list of chores that hd to be done, and we blocked text messaging from his phone. He was not an happy person, but we told him he had 100 free text, cause he had 300, but he decided to text over 900 times. I think if we didnt catch on this month when we did, he would have easily gone over 2 or 3 thousand cause he was doing like 80 an day. but we caught on on the 3 day of hte billing cycle, thank goodness. I guess it just shows 13 yr olds dont need cell phones lol

paula

SunnyDyRain Enthusiast
Yes he got grounded and we gave him a list of chores that hd to be done, and we blocked text messaging from his phone. He was not an happy person, but we told him he had 100 free text, cause he had 300, but he decided to text over 900 times. I think if we didnt catch on this month when we did, he would have easily gone over 2 or 3 thousand cause he was doing like 80 an day. but we caught on on the 3 day of hte billing cycle, thank goodness. I guess it just shows 13 yr olds dont need cell phones lol

paula

Holy Crap! Who is he texting, and about what?

I used 12 text messages last mo, and that was alot!

confused Community Regular
Holy Crap! Who is he texting, and about what?

I used 12 text messages last mo, and that was alot!

Well the ones that i read were dumb, there was like 10 that all they said was O and that is all. He was texting like 10 people and said practically the same thing to them all. I have no idea what the 900 said last month, But at least now i know why he was getting F's on homework assignwmnts, when he was in his room supposedly doing homework he was texting instead.

I know I use like 6 a month, i just text hubby when i need him to bring me home somehting lol, or when he or I are at the drs.

paula

NoGluGirl Contributor
NoGluGirl,

No he is not eating dairy anymore, well that i know of lol. We do have soy milk that he drinks with his cereal in the morning. So maybe soy is giving him problems like it did me. I am now gluten dairy and soy free. Next friday they will be testing him for foods, i cant wait to find out if he is allergic to other foods,

Im sure all the wind we have is not great for his other allergies either. The baseball fields are like a completly dusting and it is terrible. My eyes are even so red from being out there. I think I will go buy us both sunglasses later on today so we can get some protection tonight.

Yes he got grounded and we gave him a list of chores that hd to be done, and we blocked text messaging from his phone. He was not an happy person, but we told him he had 100 free text, cause he had 300, but he decided to text over 900 times. I think if we didnt catch on this month when we did, he would have easily gone over 2 or 3 thousand cause he was doing like 80 an day. but we caught on on the 3 day of hte billing cycle, thank goodness. I guess it just shows 13 yr olds dont need cell phones lol

paula

Dear Paula,

I am glad he does not have dairy either. Soy might be a problem. It could also be the carageenan. Other members have warned me about that, too! It is sort of like msg. Who knew? Maybe you will find more answers from the allergy testing. Let us know!

It gets pretty windy here as well. That can be bad for allergies. We live near the corn fields. The dust piles up in our house like you would not believe! My eyes are extremely dried out all of the time, and burn off and on.

I cannot believe he send so many text messages! We never text! The price is rediculous! I am surprised you let him live! Since his grades are going down, it is obvious that needs to go! I never saw why people get 12 year olds and even children those things. It is not like they need it for business! I know you want to keep in touch with them, but those things can be such a distraction. They actually banned them at my school for that reason.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.