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Rumbly Tummy...


gfmolly

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gfmolly Contributor

I have an embarassing symptom that I would love some insight into. My stomach/small intestines is so noisy, especially if I have ingested something that doesn't agree w/ me. The rumbling comes from the left side of my stomach area. My kids have asked if there is a dinosaur in my stomach! :huh:

To give you a bit of background, I have been gluten-free since Easter with many mistakes. I had negative bloodwork, but was told to try the gluten-free diet and was on it for a month before the bloodwork was done. I have had d since June of last year and these tummy rumblings started in Sept. They are especially loud in meetings and in class. I decided not to take a class next semester because I wanted to get to the bottom of this. I have felt good since being gluten-free and also have avoided lactose since Nov. My d has cleared up alot and most days I feel pretty good. I am anemic and I have bone loss in my hip area. I am 33 years old. My doc said I have IBS and gluten intolerance, not celiac.

The noises do seem to related to being glutened, and it seems to last 3-5 after I have made a mistake. I am getting better at the diet, so this happens less frequently. I seem to be extremely sensitive.

My questions are:

1) Do I need to try to get a solid diagnosis, or do I proceed with the diet since it is working?

2) Any advice on how to calm the stomach rumblings when they do occur?

3) I have learned alot of info on this website, but is there something obvious/not obvious that I could be missing? My iron supplement is gluten-free/cf, I use Aim toothpaste, I switched charcoal to the whole foods brand, and I am doing well reading labels.

Thank you for any light you can shed on the subject!

Terri


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ravenwoodglass Mentor

I would continue with the diet and eliminate anything that you eat right before the rumbles start. For me at 5 years gluten-free almost the only time my tummy complains now is when I get something I shouldn't. It will rumble for a day or two before the D hits.

Make sure you are checking you cosmetics and shampoos and such. Also any arts and crafts type supplies you may work with.

If you doctor has already told you that you are gluten intolerant I would not pursue any further as to whether you are a full blown celiac or 'just' gluten intolerant. They really are both the same thing and to keep from becoming a fb celiac you need to be just as diligent in your diet as those that had the misfortune to not get diagnosed before things got that far along.

gfmolly Contributor

Make sure you are checking you cosmetics and shampoos and such. Also any arts and crafts type supplies you may work with.

So even if it is not something I will ingest, I need to look for gluten in it? Are there different chemical names that I should look for in cosmetics that I would not be on the lookout for?

Thanks

Terri

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      Thanks for the reply. 
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      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
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