Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have Celiac?

JessieFree

Recommended Posts

JessieFree Apprentice
JessieFree
Posted

hello all I am a 23 year old female. For the last for years I've had a problem with belching I saw a gastro specialist about 4 years ago who told me nothing was wrong. I just figured it was in my head. i now have a 3 year old a year after he was born I dropped a lot of wait and stopped having a period. I was trying to lose the baby weight so I figured the excessive weight loss was due to my diet and exercise. But I was still eating alot, always hungry, and still losing wait. It's been 2 and a half years and I have yet to get a period my gynecologist told me I just needed to eat more and gain weight guess he though I was anorexic. Well neway bout 4 monts ago I started having excessive gas and bloating I figured I was eating to much or something but it never went away no matter what I took and my stomach that has always been flat is sticking out all the time sometimes I look like I'm pregnant. I get muscle cramps like I used to when I was a kid and tingling in my body. My gastro specialist said my biopspsy was positive for celiac but he still wants to do a blood test and even if thats negative he still wants me to do the gluten-free diet for 3 months with a dietitian and if I don't feel better run more tests. So do I have it or not? I've only been gluten-free for a few days now I think I feel better but I've thought that b4. Does this sound like a true match? Why can't he give me a yes or no answer I'm tired of tests

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

If you had a positive biopsy you definately have it. Go gluten-free completely and forever. Welcome!

AndreaB Contributor
AndreaB
Posted

If you have a positive biopsy you have celiac. There is no way around that one.

As far as other tests, it depends on what they are looking for. You don't need a celiac panel since the biopsy is the gold standard for diagnosis to most doctors.

Definately go gluten free and if symptoms don't improve (could be quickly or more slowly) then look into other things. It doesn't hurt to have bloodwork done for other tests, such as vitamin/mineral levels to make sure you aren't deficient in anything.

JessieFree Apprentice
JessieFree
Posted
  • Author

Thanx I don't understand why he couldn't just tell me "Yes you have it"

If you have a positive biopsy you have celiac. There is no way around that one.

As far as other tests, it depends on what they are looking for. You don't need a celiac panel since the biopsy is the gold standard for diagnosis to most doctors.

Definately go gluten free and if symptoms don't improve (could be quickly or more slowly) then look into other things. It doesn't hurt to have bloodwork done for other tests, such as vitamin/mineral levels to make sure you aren't deficient in anything.

Lisa Mentor
Lisa
Posted

Jessie:

You do have an option of going gluten free immediately. If you do not see results, then you can do further testing. Your endoscopy and biopsy were positive, that is a confirmation of celiac.

Welcome to the Club.

CarlaB Enthusiast
CarlaB
Posted
Thanx I don't understand why he couldn't just tell me "Yes you have it"

Sometimes we forget medicine is a business .... or else, maybe he wanted to be thorough, though the biopsy is the gold standard, you can't get more thorough than that.

BTW, you will learn more here than from any dietician. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Russ H
      - Russ H replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      For people who can tolerate oats, Marks and Spencers sell a nice loaf: https://www.marksandspencer.com/food/made-without-wheat-gluten-free-oaty-loaf/p/fdp60140058
    2. cristiana
      - cristiana replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Are Lindt chocolate balls gluten free?

      Not much use to Canadians but if any British Lindt lovers are looking at this, give Marks & Spencer's Swiss Truffles a try - no barley but same taste. I'm pretty sure that in a blind tasting a coeliac would not know the difference - but then again, if you want to put this to the test, get a non-Coeliac to try this! I don't want anyone here to get glutened...
    3. cristiana
      - cristiana replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      I'm based in the UK and haven't tried that bread but in the past have got on quite well with Genius. Mostly I tend to eat bread with added seeds just because I find it more interesting. It is good to speak to another UK coeliac though as I am absolutely sure that up until recently a lot of the bread I was eating had added vitamins - but when I...
    4. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      Whole Foods carries a 365 brand that is large slices.
    5. trents
      - trents commented on Scott Adams's article in Additional Concerns
      2

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

      IMO, the information contained in this article is extremely important. Several medical science articles I have run across lately indicate that researchers are just beginning to uncover connections between gut health and diseases we would never have imagined as having a link. One example is Parkinson's. But this sentence caught my eye from this article...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,435
    • Most Online (within 30 mins)
      7,748
    Vivien Armstrong
    Newest Member
    Vivien Armstrong
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Russ H
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Russ H · Posted

      For people who can tolerate oats, Marks and Spencers sell a nice loaf:   https://www.marksandspencer.com/food/made-without-wheat-gluten-free-oaty-loaf/p/fdp60140058
    • cristiana
      Are Lindt chocolate balls gluten free?

      By cristiana · Posted

      Not much use to Canadians but if any British Lindt lovers are looking at this, give Marks & Spencer's Swiss Truffles a try - no barley but same taste.  I'm pretty sure that in a blind tasting a coeliac would not know the difference - but then again, if you want to put this to the test, get  a non-Coeliac to try this!  I don't want anyone here to get glutened! https://www.marksandspencer.com/food/swiss-milk-chocolate-truffles/p/fdp21056736
    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      I'm based in the UK and haven't tried that bread but in the past have got on quite well with Genius. Mostly I tend to eat bread with added seeds just because I find it more interesting.   It is good to speak to another UK coeliac though as I am absolutely sure that up until recently a lot of the bread I was eating had added vitamins - but when I was in Tesco's today I couldn't find a brand that did.  Am I imagining this?
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      Whole Foods carries a 365 brand that is large slices.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      It’s actually very common for doctors to order both an endoscopy with biopsies and additional imaging like a CT scan with contrast, depending on your symptoms. The endoscopy with biopsy is the gold standard for diagnosing celiac disease because it allows doctors to directly examine the small intestine and check for villous atrophy. A CT scan, however, doesn’t diagnose celiac disease but can help rule out other causes of abdominal pain, weight loss, anemia, or inflammation. Your doctor may be looking for complications, structural issues, or conditions that can mimic celiac symptoms. So while the CT isn’t part of routine celiac testing for everyone, it is normal if your doctor wants a more complete picture of what’s going on.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.