Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Have Celiac?


JessieFree

Recommended Posts

JessieFree Apprentice

hello all I am a 23 year old female. For the last for years I've had a problem with belching I saw a gastro specialist about 4 years ago who told me nothing was wrong. I just figured it was in my head. i now have a 3 year old a year after he was born I dropped a lot of wait and stopped having a period. I was trying to lose the baby weight so I figured the excessive weight loss was due to my diet and exercise. But I was still eating alot, always hungry, and still losing wait. It's been 2 and a half years and I have yet to get a period my gynecologist told me I just needed to eat more and gain weight guess he though I was anorexic. Well neway bout 4 monts ago I started having excessive gas and bloating I figured I was eating to much or something but it never went away no matter what I took and my stomach that has always been flat is sticking out all the time sometimes I look like I'm pregnant. I get muscle cramps like I used to when I was a kid and tingling in my body. My gastro specialist said my biopspsy was positive for celiac but he still wants to do a blood test and even if thats negative he still wants me to do the gluten-free diet for 3 months with a dietitian and if I don't feel better run more tests. So do I have it or not? I've only been gluten-free for a few days now I think I feel better but I've thought that b4. Does this sound like a true match? Why can't he give me a yes or no answer I'm tired of tests


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

If you had a positive biopsy you definately have it. Go gluten-free completely and forever. Welcome!

AndreaB Contributor

If you have a positive biopsy you have celiac. There is no way around that one.

As far as other tests, it depends on what they are looking for. You don't need a celiac panel since the biopsy is the gold standard for diagnosis to most doctors.

Definately go gluten free and if symptoms don't improve (could be quickly or more slowly) then look into other things. It doesn't hurt to have bloodwork done for other tests, such as vitamin/mineral levels to make sure you aren't deficient in anything.

JessieFree Apprentice

Thanx I don't understand why he couldn't just tell me "Yes you have it"

If you have a positive biopsy you have celiac. There is no way around that one.

As far as other tests, it depends on what they are looking for. You don't need a celiac panel since the biopsy is the gold standard for diagnosis to most doctors.

Definately go gluten free and if symptoms don't improve (could be quickly or more slowly) then look into other things. It doesn't hurt to have bloodwork done for other tests, such as vitamin/mineral levels to make sure you aren't deficient in anything.

Lisa Mentor

Jessie:

You do have an option of going gluten free immediately. If you do not see results, then you can do further testing. Your endoscopy and biopsy were positive, that is a confirmation of celiac.

Welcome to the Club.

CarlaB Enthusiast
Thanx I don't understand why he couldn't just tell me "Yes you have it"

Sometimes we forget medicine is a business .... or else, maybe he wanted to be thorough, though the biopsy is the gold standard, you can't get more thorough than that.

BTW, you will learn more here than from any dietician. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,847
    • Most Online (within 30 mins)
      7,748

    rossick11
    Newest Member
    rossick11
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
    • Colleen H
    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.